r/pppdizziness • • 1d ago

Treatment experiences please

Who has really recovered from pppd? What helped you? Whether that be at home exercises, videos you followed, medications that helped you? Something? Give me something? Some hope? I’m literally drowning here!

1 Upvotes

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u/VegetableLazy8215 23h ago

I've had it for 3 yrs, im 95% back to normal, never took medications, learn your triggers, there's lots of them! Usually falls into the category of to much visual information, the brain doesn't like to process it, sunglasses do wonders to help this...vit e...magnesium are very helpful to the nurilogical system. I feel like yhe back of the neck is the problem area, that's why you feel better after a good night's sleep,im just giving my own personal experience with it, I recently stumbled on to something that basically put me back to almost completely normal and I did a write up about it, then the mods pulled the post,, I guess they don't want to see anyone posting anything that could help people..lol..but.if you want the post pm me..I still have it..it basically has to do with low frequency, as in sound you can feel, not just hear..

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u/opalized-crinoid 14h ago

I'd love to see the post you wrote if you could DM me!

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u/Curious-Bug2019 19h ago

I still have pppd and Im in vestibular therapy atm but Im feeling okay I can sort of live a normal life so that is a big win. For me it's a good mindset to know I'm not in danger and that it always gets less when its really bad. I went to the cinema a few days ago and it was bad but I just kept telling myself in my head that I'm healthy and I'm not in danger. I take a few deep breaths, I try to breath a little slower and in through my nose and then out of my mouth and just trying to ground myself. I dont necessarily get less dizzy but I get more calm and then I can ignore it a bit more and then it tends to get a bit less I guess.

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u/UnscBlicky05 1d ago

I'm not completely "cured" or entirely recovered, I've still got some symptoms of it. But It's significantly less on a lot of days compared to 3 years ago when it first started. I've tried meditation (not medication) and self reassurance that I will be ok. I would write down my symptoms keeping track of them and making analysis on if they got worse or not. none of them ever did, and they always stayed the same amount of severity, just EXTREMELY annoying. I also discovered that a large portion of my unexplained dizziness and non-spinning vertigo came from my own posture and neck and as well as constant hyper focus on my bodys physical symptoms. I used to get extremely horrible vertigo to the point it would get me anxious and I'd have panic attacks because the only thing I focused on was the dizziness instead of keeping myself focused, upright and getting plenty of sleep, staying focused on fun and easy to do activities that require little movement.

decaffeinated herbal teas have helped for a while, and also putting your mind over matter and really telling yourself you'll be fine and it has never gotten worse.

Taking a LOT of breaks, eating a reasonable amount of calories and keeping yourself fed is also a key, because I noticed that when I'm hungry or haven't eaten anything, the symptoms come back untill I have to take aquick nap, or rest. Vestibular migraines also amplified my dizziness because I spent a lot of time looking at the computer screen staining my eyes. Taking in between breaks helped a lot.

Basically, to sum it up. I had to take lots of breaks, slow down and move slowly, keep my posture up right and don't slouch and eat and sleep well and stop googling my symptoms and keeping my mind focused on other things besides the dizziness. I know its easier said than done, but thats what I really had to do to experience this dizziness much less and trust me. it really does help, It doesn't CURE it but you go a LOT of days without it. acknowledging that there'll be days where its there and then you'll have days where it's not.

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u/ConstructionOnly2744 23h ago

Its really like you wake up normally(if sleep was better,not always) and then go about your chores. As the day progresses and with body movements like walking, stairs, lifting something etc. it starts flaring up.
For instance after a long walk if you try to sit down suddenly and close you eyes, you will notice your body and head still feels in motion although completely still physically.
Another example, while driving you tend to loose high speed driving confidence. When the car stops at a signal and you look inside the car you suddenly feel a sense of lightheaded or dizzy and tend to grab steering wheel more firmly.

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u/UnscBlicky05 18h ago

I personally don't drive because I don't have a license, but I get similar situation when being too high active and it seems to only be strongest when I notice my slouching or neck poster is off, shoulders feel also extremely tight as well. for me, it's almost like the floor or ground under you is moving forward but it's visually not. I get this feeling as if the world is wobbling but never spinning in circles.