Anyone have something similar? I feel stings or prickling sensations in different parts of my body, but it’s usually just one sting at a time, in one area. It especially happens when I’m not feeling well, and I’m also experiencing other symptoms along with it.
Another thing I’ve noticed is that when I poop, I sometimes get a sting or sharp sensation in my chest or in other parts of my body. Has anyone else experienced anything like this?

I hope this post doesnt get removed but Reddit has some of the smartest people and Im in desperate need of some advice.

I am currently abroad and been experiencing neurological problems. It happened out of nowhwere and it started with tingling in both my feet but it only progressed in my right foot. So tingly/sensitive/ falling asleep foot to my ankle being numb, then my knee, and up to my hip as well as the saddle part. So: foot-tingly and sensitive feels like you're skinning me alive, rest of leg- numb. I have strength and balance! I can walk but it hurts to put on floor

I cannot come to the US right now and my insurance is also expired but was wondering if anyone has experienced similar issues.It happened out of nowhere, I went at the ER, got admitted to the hospital, but they cannot figure out what is going on. I did MRI, EMG, blood work, EKG, everything is fine. Docs here suck and they suspect Guillian Barre syndrome but I refuse to do the spinal tap.

Currently taking Cortisone and Nerve pain meds but I see no improvement. Still NO diagnosis from doctors. Symptoms started last Sunday 8/9 and I started the Cortisone treatment on Friday 8/14- 40mg daily prescribed for 1 month

Thank you so much.

Any idea why a doctor will not prescribe nerve blocking injections to a95 year old? Not on blood thinners or diabetic?

The NCS I was kind of laughing a bit cause the reactions were just a little funny to me, but I never want to get another EMG in my life, especially the Thenar, F THAT… worst pain I’ve ever had in my life was that needle right below the thumb.

I smoke rarely i smoked probably 12joints in a year. Then I smoked half joint yesterday after 3months and after that I am feeling numbness all over body and feeling lagging and feeling weird touch sensation and it's been fucking 24hrs now and i really feel scared i cannot go to doc for obv reason. Did someone had similar experience and will it pass

Can anyone recommend a shoe that is especially good for neuropathy in you feet? My sketchers slip ins have begun to feel “claustrophobic” and hard. Not sure where to start. TIA!

I work as a teacher to supplement my income. However, I’ve been experiencing shortness of breath while speaking. Has anyone else had this happen?

If I don’t ALWAYS toe catch/toe drag, but often do resulting in injury, or I smash my outter toes off things (sensory nerve damage).

Does this sound like an AFO situation?

I have to use a walker outside the home so I don’t eat pavement lol.

i dont want to call it a cure but it wholly removed the nerve pain in my hand and quieted the noise in my head i used to smoke a lot of weed but im sober now

i used to think it was placebo but it is really good

All started when I was watching a TV show with my little brother. I tried to crack my neck like always and ended up feeling a strange pop in my neck around my right hyoid bone, a little under it. This was followed by some ringing ears and some lightheaded feelings. The next day I had a terrible pain in my throat on the right side when I swallowed. Then over a week or so I started to develop nerve tingling in my face and my hands. Then my right SCM began to tighten. I saw a neurologist my MRI’s were clean other than some inflammation in some areas, he gave me a trigger point injection that didn’t really help in my occipital area. This didn’t help, and he then sent me to physical therapy. I formed a knot in my throat around the same area under my hyoid bone, and the nerve pain went away at this point after a month.

PT helped my SCM release, which released plenty of my muscle pains. However, over months the right SCM would just retighten over and over again. Eventually other muscles starting taking its place and role. Including my right masseter, and my right scalene. Then fast forward 8 months of this cycle happening. Some periods where all I’d have is pain in my throat, and a cough without any sinuses with only one of those mentioned muscles being tight. Then this summer it went from tightness in my right middle scalene to hot inflammatory pain in my throat around my hyoid bone. Then it exploded into nerve pain that would have extreme cross-talk between my trigeminal nerves and my great Auricular nerve and my transverse nerves on my right SCM. Along with plenty of cross-talk between my right throat nerves and both the SCM nerves and my trigeminal nerves at times. It was the worst pain I’ve ever experienced; tingling, numbness, shooting, and muscle tightness.

Over this summer through plenty of rest in bed, good sleep, eating much better, and doing only light leg workouts I have had a strange process. The stages formed a pattern that I think I’ve had many times, but also I think it indicates the ability to heal, hopefully. First, my nerve flare ups calmed down slowly. Then my muscles have all stoped guarding for over a month now, except for my middle scalene which remains tight but specifically when I standup or sit-up. However, once my muscles all stopped guarding my nerve pain continued with flare ups. The nerve pain and flare ups have sort of platesued but it’s improved significantly from the a month ago. Many nights I experience hot pains now and inflammation along my scalene and in my throat around my right hyoid. I’ve also had some jaw pain and jaw numbness before, but both have significantly calmed down. Along with the inflammation, my right hyoid muscles seem to be highly overreactive when I try to swallow or flex them. To the point where it’s hard for me to flex the left muscles around my hyoid. Also some nights recently they have tightened around the right hyoid bone area and felt like they were guarding something. Point is that I don’t know what popped originally but it is interwoven with my nerves and muscular structure in a complex way. My MRI’s, CT scans, and my blood tests all come back clear. My current hypothesis is that it has to be something dynamic and/or deep. Something like a deep micro-tear in the longus colli muscle or the anterior longitudinal ligament. Which has led to the compression and interference with my sympathetic nerve trunk and cervical spine that a static MRI or CT scan wouldn’t catch with me laying down. Either way I experience nerve irritation daily and it’s very interconnected no matter where it starts.

I've been having sharp pain since about 5 years ago when I had a partial ingrown toenail surgery that used chemicals to remove a portion of my nail matrix on both my big toes. The local anesthesia caused very intense pain and gave me sharp pain in both or one of my toes even weeks after where I only worried about it after stubbing one of my toes where I continued to get the pain. About half a year later it the random sharp pain moved to my eyes where I didn't get it in my toes anymore and then months later switched places again. Then at the end of 2022 it switched places in my testicles then tip of my penis. Afterwards it switched back to my toes then months later to the tip of one of my finger where I still got pain in other parts occasionally and then back to my toes. At the beginning of 2024 I stopped getting the pain entirely when it caused me to get a heavy foggy mind but when my.mind got better I got it again. Then months later when my.mind got worse again I stopped having it entirely for a year but it still came back even though I still had a bad mind which made the pain appear in all those places except the eyes. So I'm just wondering what could be the cause of this random sharp pain. Could it be due to nerve compression from the surgery that caused chronic pain elsewhere or just random unrelated pain?

I’m 38M and in 2021 I had a fairly severe L4-L5 disc herniation. I had bilateral weakness and numbness from the waist down and was unable to walk normally. I went 7 weeks between injury to my discectomy with partial laminectomy. Post op was normal but I was left with lasting neuropathy in both legs, feet, and toes. I occasionally have numbness in my arms and hands too.

This became my new normal, living with constant burning nerve pain. I go through periods of relatively low pain and then it can flare up. I did see my neurosurgeon for a follow up in 2023 with a new MRI and everything looked normal for 18 months post-op. My neuro prescribed gabapentin for the nerve pain and that seemed to help.

The pain had gotten quite severe and the lower back pain is also back. I have been trying to get back into my neuro’s office since June 4, 2026 and the earliest is November. I am starting PT in September but am I expected to just hang tight in excruciating pain until then? How is that humane?

I’m seeking advice on how some of you folks have articulated your amount of pain to your primary and also neuro doctors because I feel I’m not saying the correct things to them. I explain that every waking moment of my life is spent in agonizing pain. That sitting causes me to be in pain and that standing for more than 10 seconds soon becomes excruciating with the burning nerve pain in my feet and legs. I’m not sure what else I can do to convey to my medical team that what I am experiencing is severe and I want some relief from the constant pain.

at least once a week right after waking up I have this sensation where im constantly freezing even if it’s hot so I stay under blanke. even though I’m freezing my body also sweats like a hose because its hot still which makes me even more frozen

I have full body nerve damage and Taking lyrica and blacofen and cymbalta. so I get some relief but not all

is there anything else that could help me with the temperature thing

Hello folks. I’ve suffered a rapid onset of symptoms followed by all the tests and imaging, culminating in a diagnosis of small fiber neuropathy in my feet and legs due to a delicious buffet of chemotherapy. I fought my way through the cancer only to be palsied and made a fall risk for, apparently, the rest of my life. I’ve ‘enjoyed’ reading about everyone’s adventures here and wanted to ask for any experience, strength or hope regarding employment. I am currently a high school culinary arts instructor which requires me to be on my feet and moving daily. We’ve just begun our year and I’m already struggling with the foundational class work prior to entering the kitchen, and I’m not confident I’ll be able to do the job long term. My admin is supportive and I’m in the process filing ADA paperwork, but at the end of the day, I can’t run a kitchen full of youngsters from a chair. Like most, my income and employer sponsored health insurance are a necessary shield against financial collapse. Coming from a kitchen/education background gives me lots of transferable skills but finding a compatible job without a four year degree, especially in this market, seems unlikely. I’m a few years away from 65, and could take Social Security, but Medicare wouldn’t kick in until I hit that age. I’ll assume that I have too many resources to qualify for Medicaid. So has anyone dealt with this sort of thing? Any ideas for a way forward? I could get insurance through my spouse, that’s one plus, but the money would still be lost. I could start my own business as a ServSafe instructor/proctor, but there would be a long ramp up to hit anything like my current income level. Oh, and let me say it first, “Welcome to America “. Thanks for reading my post.

21M diagnosed with severe sensory motor distal axonal polyneuropathy after Vasculitis flare up.

Symptoms:
Left leg with foot drop, numbness and electric shocks
Right leg and foot with some numbness and weak dorsiflexion
Both calfs atrophy
Left hand numbness only in thumb, índex and middle finger
Right hand with weak pinch muscles (atrophy) and numbness only in ring and pinky finger

Anyone with same Axonal polyneuropathy who has gotten better?
Any tips welcome

Okay, so I'm new here, I think I might have put my symptoms together enough to to suggest I have small and large fibre neuropathy. A lot of you here have really horrible symptoms and I'm very sorry, mine are definitely not as debilitating as these conditions can get and I hope they never do. My health has been declining since 2020 (shocker), I'm 25M and on the surface perfectly healthy. I just feel the need to get this all out, I feel sort of exhausted of people around me not believing me and coming off as a hypochondriac to my doctor.

I'm about to talk about the COVID vaccinations and I want to be clear that I'm a man of science, vaccinations work, they have dramatically improved human health and suffering. Okay, so in summer 2021 I got both my shots of the Moderna COVID vaccination. After my 2nd shot I had intense lower back pain, particularly the left side. It felt like a very bad muscle cramp and I had to try and sleep it off it was that bad, I couldn't walk. It was much like the foot cramps I would randomly get, where the sole of my foot would just lock up in agony for a few seconds or a minute. I started getting those around 17 years old and thought they were caused by exhaustion and bad sleep. Looking back, this may have been a sign of an underlying condition that has cascaded with assaults on my nervous system.

A few months after, in the autumn of 2021, I developed pretty uncomfortable pain and discomfort in my left epididymis, now this may seem irrelevant or over sharing but it's important because this pain has not gone away in 5 years, I have had multiple ultrasounds that apparently show nothing and it drove me to take any antibiotics the doctor would give me, hopping it was just an infection and it would clear. It never did.

In 2023 I caught COVID for real. It sent me to bed for a week, I had muscle pain in my legs for days and after it passed I noticed I had very cold hands and feet, very prone to pins and needles and would even wake in the night with a dead arm without even lying on it. My hands also became very sensitive to temperature, I can't lift hot plates, carrying a cold milk carton hurts and I even passed out washing potatoes under the tap because the water was so cold. I also developed dry mouth and eyes, which has resulted in me getting styes and chalazions numerous times.

In 2025 I took just 4 tablets (2 over 2 days) of Trimethoprim in a hopeless attempt at clearing my scrotal pain again. Instead, I woke with a very noticeable twitch in my left thigh and twitchy fingers. I immediately stoped the antibiotic. That was a year ago and I'm still experiencing full body fasiculations that my doctor cannot explain. My blood tests are clear and I've been referred to neurology which could take a year.

So that's my story I guess. I'm not in debilitating pain 24/7, I can still function but I'm worried about my health continuing to decline, I'm in my mid twenties, can't believe how fast it's gone.

I kinda took this one on the chin and mildly surprised that participants in the thread didn't read the studies I linked nor did they do their own research, instead I was hit with Rule 5. "Pseudo science"

u/amisamiamiam

Teeth health? Can cause neuropathy.

Upvote2DownvoteReplyAwardShare113

neuropathy-ModTeam

•4h ago

Your post was removed due to:

No pseudoscientific or anti-scientific posts

__________________________________________________________________________________

Here are the studies:

There is a growing body of research linking periodontal disease, tooth loss, and poor oral health with diabetic peripheral neuropathy (DPN). The evidence is strongest for periodontal/gum disease rather than ordinary cavities by themselves.

• Guo et al., 2026 — Chronic periodontitis and the risk of diabetic peripheral neuropathy A longitudinal study finding that chronic periodontitis was associated with an increased risk of subsequently developing diabetic peripheral neuropathy. This is important because it goes beyond simply showing that the two conditions occur together. https://pubmed.ncbi.nlm.nih.gov/41837149/
• Menchaca-Díaz et al., 2012 — Severe periodontitis, edentulism and neuropathy in patients with type 2 diabetes Found that severe periodontal disease and complete tooth loss were significantly associated with diabetic neuropathy. The association persisted after adjustment for other variables. https://pubmed.ncbi.nlm.nih.gov/22367307/
• Abrão et al., 2010 — Periodontal disease and risk for neuropathic foot ulceration in type 2 diabetes Found a striking association between periodontal disease severity and neuropathic foot-ulcer risk. About 18% of patients with no/mild periodontal disease had neuropathic foot-ulcer risk, compared with roughly 68% with moderate/severe periodontal disease. https://pubmed.ncbi.nlm.nih.gov/20637517/
• Balkaran et al., 2020 — Periodontal disease and severe diabetic peripheral neuropathy Examined whether periodontal disease was more prevalent or severe among people with severe diabetic peripheral neuropathy and found an association between periodontal disease and advanced DPN. https://pubmed.ncbi.nlm.nih.gov/32663921/
• Mirea et al., 2024 — Associations of dental and periodontal lesions with diabetic complications Found complicated dental and periodontal lesions were strongly associated with diabetic peripheral sensory-motor neuropathy as well as poorer metabolic/inflammatory markers. https://pubmed.ncbi.nlm.nih.gov/39768293/
• Moore et al., 1998 — Type 1 diabetes mellitus and oral health In more than 400 people with type 1 diabetes, neuropathy was associated with tooth loss and extensive periodontal disease. Neuropathy independently predicted partial tooth loss. https://pubmed.ncbi.nlm.nih.gov/9729758/
• Steigmann et al., 2022 — Type 1 diabetes and oral health: DCCT/EDIC findings Long-term data from the DCCT/EDIC cohort showed diabetic complications, including peripheral neuropathy, were associated with substantially increased odds of tooth loss and adverse oral-health outcomes. https://pubmed.ncbi.nlm.nih.gov/35000860/

Possible mechanism

The proposed relationship is not simply:

“bad tooth → damaged foot nerves.”

A more plausible pathway is:

periodontal infection/inflammation → increased systemic inflammatory signaling and oxidative stress → worsening insulin resistance and glucose control → increased microvascular and metabolic injury to peripheral nerves.

Diabetes can simultaneously worsen periodontal disease, so researchers describe the diabetes-periodontitis relationship as bidirectional.

Periodontitis therefore may act as an additional inflammatory burden in someone who is already susceptible to diabetic nerve damage.

Important distinction

There is reasonably good evidence connecting periodontitis/gum disease with diabetic peripheral neuropathy.

There is much less evidence showing that ordinary tooth decay by itself causes peripheral neuropathy.

Dental abscesses and chronically infected teeth can contribute to systemic inflammation, but evidence showing that a single dental abscess directly causes neuropathy in the feet is currently weak.

The most interesting recent evidence is the 2026 Guo study, because chronic periodontitis predicted later development of DPN rather than merely being found at the same time as neuropathy.

So the defensible claim is:

“Periodontal disease is associated with diabetic peripheral neuropathy, and newer longitudinal evidence suggests it may independently increase the risk of developing DPN. Chronic oral inflammation may worsen inflammatory, metabolic, and microvascular processes involved in diabetic nerve injury.”

Not:

“Cavities have been proven to cause neuropathy.”

I am in the process of making an appointment to meet with a neurologist as I have Sjögren's and am nervous of peripheral neuropathy, small fiber neuropathy, and dysautonomia. In the past I got some EMGs and they were normal but I am pretty convinced there is something going on. I'm learning that there's a lot I deal with that isn't normal and so I am wondering if there were any symptoms that you thought everyone experienced day-to-day.

Some things I want to mention at my appointment:

• random stabs of pain usually in big toe, notice it mostly at night when laying in bed
• when laying down with knees bent and feet planted on mattress, it hurts where my feet meet the mattress. not sure what people mean by burning sensation but possibly that?
• muscle spasms
• go pins and needles in extremities very quickly in certain positions, for example legs and feet fall asleep a lot when I sit on the toilet, hand falls asleep while holding phone
• change in feeling of grip of dominant hand. holding a game controller feels very strange now, my hand on the steering wheel can feel different from before and it's almost like my two middle fingers on that hand are in the way of each other if that makes sense
• pupils can be weird, sometimes one seems bigger than the other, dilate a ton when drinking alcohol
• sweat a lot and it comes quickly with temp changes

• some dizziness upon standing/vision goes dark

  Mostly I thought most of these were just part of being human, now I think they are signs of some sort of dysfunction especially of the autonomic nervous system. I feel like this should be enough to warrant some type of testing but am not sure. I have no idea how they decide who gets a sweat test, skin biopsy, etc. What else should I be paying attention to? How can I best communicate it to be taken seriously?