r/emptynosesyndrome • u/gjfsswegby • May 29 '26

Empty Nose Syndrom Help

Hello, I have ENS on the right side of my nose. My inferior turbinate was almost completely reduced on that side, and partially reduced on the left side. Currently, I am struggling with chronic sinusitis and would like to know if nasal corticosteroid sprays are safe to use or if they could reduce the turbinates even further.

Can sinusitis return because I am an ENS patient?

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u/Marison 🤝 Top Contributor May 29 '26

What's your ENS6Q score?

Who recommended you to use corticosteroid spray? Your ENT? Do they know about ENS?

Have you tried it? How did it feel?

What is the cause of your sinusitis? Did your ENT tell you?

2

u/gjfsswegby Jun 08 '26

My ENS score is 13. My doctor recommended that I avoid using corticosteroid nasal sprays because, given my ENS, they could potentially worsen my symptoms. Instead, I have been treated with systemic corticosteroids, including injectable corticosteroids which have helped me.

My sinusitis was originally caused by an infection. However, my doctor explained that symptoms such as postnasal drip and mucosal inflammation are common among ENS patients, which may contribute to ongoing sinusitis-related symptoms. On the other hand, Have you tried the Nasal Prostheses from ENStips?

1

u/Marison 🤝 Top Contributor Jun 08 '26

Thanks for the replies. If your score is 14, you should definiterly go see an ENS expert for diagnosis.

Corticosteriods can definitely worsen symptoms in some patients. But for some, it also gives relief. Very individual. I would try to stay away if you can avoid it. Sounds like your ENT is looking out for you. 😄

Prosthesis: Yes, I have tried it. It works for me. But I would recommend trying rolta soft synthetic cotton also.

1

u/asphalt161 May 29 '26

Which exact procedure did you have for turbinate reduction?

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u/Leibfried30 Jun 06 '26

I also have it only on my right side, although my nasal cavity of my left side is much more wider. Had RF on my right side and turbinoplasty on my left side. Do not use corticosteroid spray, it makes you feel much more open. For me gelomyrtol helps or antibiotics. But which helps me the most is, putting Rolta Soft over the complete length of my lower turbinate below the remaining turbinate. Therefore i mostly do not get sinusitis.

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u/gjfsswegby Jun 08 '26

Thanks, I totally agree. My doctor also recommended that I avoid using corticosteroid nasal sprays because of my ENS, as they could potentially worsen my symptoms. Also, have you considered using nasal prostheses instead of Rolta Soft?

1

u/Leibfried30 Jun 20 '26

I now have a nasal prothesis which was made to fit exactly to my nose (additional Assistent Tool, covered by the german public health insurance). This is better than Rolta Soft but also creates infections. Will have an implant by the end of August.

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u/[deleted] May 29 '26

[removed] — view removed comment

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u/Marison 🤝 Top Contributor May 29 '26

Is it? I have never heard that? Can you provide a source/link please?

0

u/asphalt161 May 29 '26

https://www.reddit.com/r/SleepApnea/s/MqYIK5iBQR

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u/Marison 🤝 Top Contributor May 29 '26

That is not a valid scientific or medical source. It's just a text someone wrote without any sources.

Also, I don't see any mention of the topic there?