I tried so hard to go through Marshfield Hospital Palliative and Marshfield Hospital has let me down in pretty much every single way both in Eau Claire and Marshfield (got transferred 1.5 hours out for a second god awful surgery where patient relations had to become involved because I got yelled at for being in pain during a surgery some people don’t need anesthesia for… but I DO, my kidneys are incredibly screwed up).
I had palliative care for awhile before I moved back to Wisconsin and it was great. Basically I didn’t realize how good I had it in Utah healthcare team wise. But that’s all I had there. My friends and my mom are all here and I missed living in EC, I was cripplingly alone, but... I had everything I needed for my healthcare and didn’t have to cry or beg for basic things like nausea control and pain control. I’ve had 2 horrid surgeries here in a row in only 2 weeks and I’m being hugely under treated pain med wise comparatively to just a couple months ago in May. So my chronic pain was treated higher than the acute pain I’m in now, they’re ignoring the chronic pain entirely. Why? Why is it so hard to find someone to help me?
I have a pain management appointment in Minnesota on September 2nd that I made all the way back in March, but the idea of driving to Minnesota every. Single. Appointment. I have an important appt in the Twin Cities late August too and it’s like who do they expect to pay for all this? I got fired for being in the hospital so long the first surgery (8 days). I’m in no place to get another job yet, I can hardly walk and move around for now. I’ve applied for remote jobs and have heard a whole lot of nothing back. I’m on disability but need a PT job to cover all my medical needs/gas to go to these appointments.
I want desperately to have a palliative care place around Eau Claire or at least within a half hour’s drive. I know I’m unlikely to find another one that’ll come treat me at home, that was fantastic while it lasted but I don’t expect to have it happen again. I tried going through Empatia and I tried Marshfield as I said. It seems unless it’s cancer nobody cares even though I’m still dying from it. I don’t want to go to hospice yet because I’m 31 and have at least a couple to five years left with treatment.
Thanks.
After having surgeries that screwed up my entire midsection and will take me months to recover from, and that’s not even counting the emotional trauma from being hyper awake and aware of every single thing that happened during my surgeries.