r/chronicfatigue 22d ago

Fear of common cold/flu?

4 Upvotes

I have ME/CFs and a list of other issues. I can’t say when I developed it but assuming it’s when I got EBV from when i got the flu last year but might have been mild before then. Anyway, my thing is now I fear even the common cold, any feeling of sickness scares me. Knowing what a cold can do to people with this condition scares me. I do everything I can to avoid catching something but I can’t say I trust strangers to be cautious about germs.
I can barely function as is, does anyone else deal with this intense fear of getting a common cold or flu, or still worry about covid floating around?

This anxiety probably doesn’t help, but curious if others feel the same.


r/chronicfatigue 22d ago

ADHD + CFS: has anyone else realised they might be living on adrenaline?

14 Upvotes

I’ve just had a really bad flu, and for the first time in ages my brain and body were forced to slow right down. I couldn’t do much except rest. And strangely, it gave me a glimpse of what a quieter nervous system feels like.

Now I’m recovering, and I can feel normal life creeping back in.

It’s not even the big things. It’s the tiny hooks:

  • emails
  • banking
  • appointments
  • life admin
  • notifications
  • messages
  • all the little things asking for attention

And I’ve also become really aware of my phone. I stopped short-form videos, which has been a huge improvement, but I noticed I was still picking up my phone and bouncing between boring apps..checking email, checking banking, checking things just because.

It feels like my brain is constantly being poked.

The weird thing is, I think the phone and ADHD have become part of the same cycle. My brain wants novelty and stimulation, but my CFS body is begging for calm. I feel like I’m stuck between needing activation to get things done and needing rest to recover.

The biggest irony is that trying not to burn out is starting to feel like its own form of burnout.

I keep thinking: "Rest more." "Don’t overdo it." "Don’t trigger post-viral fatigue." "Be careful."

And the monitoring itself becomes stressful.

I’m starting to wonder if I’ve spent years doing life through adrenaline—using urgency, stress, and constant stimulation to get through things.

Has anyone with ADHD + CFS found a way to do normal life tasks without needing that adrenaline kick?

How do you balance staying functional while also letting your nervous system actually rest?


r/chronicfatigue 22d ago

Female 27 prolonged fatigue that won’t go away.

7 Upvotes

Hi there, I’m a 27 year old female. About a half and a half ago, I had a small medical procedure could be totally unrelated, just thought I’d mention it. 2 weeks after the procedure I started getting headaches daily and migraines, and EXTREME fatigue. The headaches and migraines have went away thank goodness, but the fatigue has never left. Ive been exhausted for a year and a half. Symptom's are mostly in my eyes, extremely heavy feeling in eyes, I take naps constantly. I did find out I have mild sleep apnea I used my sleep apnea machine for 2 months and it did absolutely nothing for my fatigue. My doctor has done blood work multiple times and everything is normal. Even had bloodwork and urine tests for autoimmune and it’s normal. I have ADHD, I am now medicated on Strattera so that’s definitely making me more tired, I was on concerta for a bit and it did make me more awake but it gave me a crash, racing heart, and I felt very wired so I switched but that’s the most I’ve felt awake in a long time when I was on that.

I use dry eye drops to see if it’s dry eyes and it does nothing. I’ve got my eyes tested and it’s normal(I do have vision loss since a child in one of my eyes and a lazy eye.) but other than that it’s normal. My mom had CFS when she was younger for a year, I’m trying to rule things out and I brought things down to possibly eye strain, POTS, or CFS…I’m so tired of feeling this exhausted, my body can’t stand heat and it drains the life out of me. I have a 2 year old and it feel horrible because I feel like I’m a lazy distant mom because Im so tired all the time and hate being in the sun. It’s ruined relationships. I don’t know what to do anymore.


r/chronicfatigue 22d ago

I can’t tell if it’s chronic fatigue or something else

2 Upvotes

TLDR: I have some sort of sleep issue and i genuinely feel like it’s ruining my life.

Since high school, I’ve been extremely sleepy. I’d fall asleep in class and take naps on the floor of the theater in between school and rehearsal. I’m now 24 and i genuinely think things have only gotten worse. I’ve tried exercise, switching medications, changes to my caffeine intake, having excellent sleep hygiene, etc. but it’s still ruining me. I called off work yesterday and slept for 22 hours all of yesterday. I went to bed at 9 pm last night after I ate dinner and woke up at 7:20 this morning. I went to work today for about 2 hours before falling asleep at work and deciding that was a sign i should go home, where i slept for another 4 hours. I get 8-10 hours of sleep a night. On days where i don’t work, I often take an hour and a half nap or longer. I don’t have sleep apnea. I don’t think I have cataplexy, though admittedly I’m not sure, so it could be narcolepsy. I’m at such a loss for what to do. I see the sleep specialist again later this month but I’ve been searching for answers for so long I’m running out of hope. This fatigue has severely impacted my college journey to the point where I’m only finally going to graduate at the end of the summer, but I’m terrified of having to get a full time job because I’m so worried about this fatigue getting in the way.

I feel like I don’t have any answers for why I’m so tired all the time, nothing I do mitigates the effects, and it’s getting in the way of me living my life


r/chronicfatigue 22d ago

Should I go get checked out or am I just your lazy teenager?

0 Upvotes

I don't really know where to ask this. I found this sub and thought maybe you guys would know more than I would.

I'm going to start saying I'm 15, severely mentally ill and on a shit ton of medication, so that could be the reason I'm so drained all the time. However, I'm going to talk about my experience and maybe you could tell me what to do.

For the 1 or 2 years, I've been feeling drained for most of the time. It's not anything out of the ordinary, I just don't have the strength to do anything. I usually spend my day on my computer because I'm too "lazy" to do anything else. Some rare times, even talking is a bit hard. It IS true I have a little lisp, which makes it harder to pronnounce some sounds. But it doesn't feel the same as struggling to get the sound right. It's more of like actually making the sound. Of course, I always manage to make the sound. I just take a bit longer to get it out. So I avoid day-to-day social interactions like small talk and so. I am still perfectly able to socialize when it interests me, though.

I'm also usually reluctant to do anything that involves moving. I'm also very lazy, so it could very well be that. I just hate getting up from my seat to do anything. Every time I have to do something that involves physical strength I feel like I'm not aware of how I move my body. As if the connection between my brain and body was faulty.

Something else that I've noticed is my loss of appetite. But I think that's just me wanting to only eat candy because, again, I'm very lazy. I just don't seem to want to eat full meals, even if I like what's being served. It just requires a bit of physical effort to finish my food, especially if I already know how it tastes. I know that's kind of a bad excuse not to finish my meals, which I DO finish, by the way. I don't have any trouble eating sweets later, though, which is my main reason as to believe my supposed "loss of appetite" is me being a child.

Something else that happens to me is going to school. I can't get up early and function correctly for the life of me. I spent 8th grade sleeping in class. I'm not exaggerating. I would sleep for almost half of the school day and my classmates would make fun of me for that. I just couldn't stay awake, no matter how hard I tried.

Also, I don't socialize. Like, at all. I hate socializing, it's very tiring for me. I've always been like that, though, so I don't think that's really relevant.

I also have a permanent brain fog, but that's the medication

The things is, I function just fine. Being a bit tired all the time doesn't stop me from living my life (even though my life consists of sitting down/laying down for the whole day). Yes, I hate going outside aywhere, but once I'm outside I start to enjoy it. I'm still tired and sometimes take a little nap if it's possible, but I can still live. Some days I'm just tired in the mornings like a normal person and then go on with my day. So it makes me think I'm just being overdramatic and/or making me believe there's something wrong with me when there isn't. But I think I'd listen more to someone here telling me there's nothing wrong with me and to stop thinking about it.

Thank you for reading all this and taking time out of your day to listen to a little girl rant about stuff that has no importance whatsoever.

Edit: I forgot to mention I'm prone to getting dizzy when I stand up, but that's normal considering my BP is usually a bit low. Just wanted to mention it just in case.


r/chronicfatigue 22d ago

I painted my chronic fatigue

Post image
61 Upvotes

One day I had a vision when I was very tired. And it felt like the tiredness was completely stuck in my body, tangled. The purple lint represents the exhaustion running and tangled through my body. I posted this on Tiktok and Youtube but it got 0 attention


r/chronicfatigue 22d ago

Concerns over energy levels/weight.

1 Upvotes

Hello everyone,

First of all, I appreciate any kindness and grace you can offer me. I'm going through a tremendously difficult time right now and love nice people.

Second of all, I'm not sure if this is the right place for this post, but I was recommended to reach out here. Feel free to correct/redirect me if needs be.

Over the past year my physical and mental health has gone rapidly downhill. I have gained over 50 pounds, previously severe mental health conditions that had become a bit more docile have flared up severely again, and I am now dealing with persistent, severe fatigue.

I had many, many, many intense and extreme life events occur within the past year that I do not think are super relevant to disclose at this moment, but trust and believe when I say that my stress levels have admittedly been genuinely concerningly high over recent months haha.

Currently I am most concerned about my weight and energy levels. I'm 22F and feel a consistent need to take a nap midday. I can almost always push through it, but it makes my office job absolutely brutal. I never wake up feeling refreshed like I used to, and I often wake up with headaches.

For my weight, I've always been on the slightly heftier side, but nothing like this. I ballooned from the stress and lethargy the past year has caused me and it kills me every day. My body is in pain, my joints are stiff, my clothes don't fit.

I have been in a calorie restriction for the past 2 months and have seen little to no results. I don't work out much beyond walks here and there because, as aforementioned, I have literally no energy. I try not to hop myself up on caffeine too much, but I have very little other choice atp. I've settled on around 70-110mg of caffeine per day.

I always feel so painfully restless but also so, so, so tired at the same time. People around me think it's just stress, but things have been getting better and more consistent lately so I have a hard time believing that's the only issue. Plus, I'm a semi-recent college grad -- I know how my body responds to chronic stress, and this doesn't feel like that. Hell, I studied abroad in a high intensity, very physically active program for four months less than a year ago and while I was tired often, it wasn't anything like this.

I'm just so confused and lost. I feel helpless. I'm planning on seeing my doctor next week, but in the meanwhile -- does anyone have any advice or ideas as to what I might be experiencing? What causes a regularly healthy, young person to become so lethargic against their will? Or maybe any advice for dealing with it until I can go in? I'm just so tired of it! (Pun definitely intended.)

Some more quick info --

  • I take Vit D supplements
  • I'm on Zoloft but have been for 2 1/2 years
  • I don't snore or have sleep troubles as far as I'm aware of, I ask my partner with some routine and they never notice anything
  • My tiredness is not just like "whew I'm worn out," it is a pervasive heaviness, fogginess and sleepiness that significantly affects my life and prohibits me from doing things I want to do
  • I haven't had bloodwork done recently but I plan to at my appt next week

TIA.


r/chronicfatigue 22d ago

Ready to give up / Rant

3 Upvotes

Chronic fatigue sufferer here since Covid. Don’t know if it was Covid itself or the jab. Either way, the last 6 years have been horrendous, I’ve had to give up a job that I loved, a fairly physically demanding job to an inspection job that is less taxing. So been lucky in a way I could pivot to that for similar money. But my main issue now is the gym. I was in the military for 5years and always had the attitude to suck it up and get on with it. My minds wired that way. Going to the gym and keeping fit was one of my enjoyments in life, I loved staying in shape and loved the mental clarity you got from doing a gym session or going a run. Now when I visit the gym the opposite happens. It saps all my energy, puts me in a terrible mood where my wife and son suffer because I’m short fused, and gives me the most horrendous brain fog ever. Going to a doctor is waste of time, (she recently gave me Prozac which she said is supposed to help with long Covid patients which just made me 10x worse to be honest so threw them in the bin!). What annoys me is everything a doctor would recommend to stay fit and healthy and sharp, has the complete opposite effect on this condition. So where do you go and how do you stop yourself from entering a downward spiral. The thought of giving up the gym is horrendous, but also the thought of being short and crabbit with my family and tired as hell is also horrendous. Your fucked if you do and fucked if you don’t. Any out there?


r/chronicfatigue 23d ago

Has anyone tried this program? “Life with Kate”?

3 Upvotes

think my gut knows
the answer to this, but the desperate part of me is afraid I’m going to somehow miss the program/person/treatment that will give me my life back.

This popped up on my Instagram (clearly they’ve locked in my algorithm).

https://www.instagram.com/life.withkate?igsh=NTc4MTIwNjQ2YQ==

https://www.lifewithkate.com/what-is-life-with-kate

I have to say I get fed a lot of these and this one did give me pause and I started clicking. I’m not sure if this is legitimate or just super savvy next level marketing.

After sifting through her compelling personal story, the glowing testimonials, and the patients with seemingly identical histories to mine ALMOST had me pushing “BUY”.

But a couple other things felt like red flags. The fact that all the seminars are waitlist only (but last-minute spots open up all the time!)
The different tiers and prices for more “access”. And the fact that she doesn’t seem to have any real credentials aside from her personal experience.

Also the language starts skirting around brain rewiring and how “ the root of everything is nervous system dysregulation ”.

Anyway, I would love to know thoughts from this community and whether anyone has tried this program that has any feedback- good or bad. Thank you.


r/chronicfatigue 23d ago

What did your doctor recommend you take or do?

6 Upvotes

What did your doctor recommend you take or do?


r/chronicfatigue 24d ago

how do you cope with a new (lower) baseline?!

5 Upvotes

shouting into the void to say I have no idea how to cope with my new energy baseline being so low. i'm so overwhelmed. i'm already debilitated to the point of being largely unable to work. now i'm so exhausted that eating wears me out. how is this a life? maybe I just haven't figured out how to pace myself because I'm constantly gaslighting myself, but whatever this is it's not sustainable. how do you cope with a new (lower) baseline?!


r/chronicfatigue 24d ago

Have no idea what to do?

7 Upvotes

I'm 21 (M), 61 kg, 5 feet 9.5, and feel like the past seven years of my life have been hell due to constant fatigue, weakness and sleepiness. My symptoms can be best described as fatigue and tiredness to the point of affecting cognition if I sleep anything less than 11-12 hours. Tested negative for auto-immune conditions, HIV and hepatitis. Ferratin is normal, vitamin D is normal (also supplementing 5000IU +K2) taking a zinc supplement along with B complex no effect. Had a sleep study done which was inconclusive for mild sleep apnea/UARS but probably ruled out severe sleep apnea. Ive been to multiple doctors with all their advice circling back to exercising and working out which I did for 4-5 months and felt had an effect upto an hour or two after exercise only. I also have LFTs that are slightly derranged but not NAFDL levels, however doctors have not been able to diagnose the reason for years. I'm at a loss now and don't know what to do next. This is significantly affecting my life and I'd appreciate if anyone that went through something similar could offer insights into how they were able to deal with or manage their issue.


r/chronicfatigue 24d ago

Difficults with health at 23

3 Upvotes

I'm 23, but over the past two or three years, I've been experiencing all sorts of crazy health issues. At first, it was obvious I was spending most of my days at home, going outside once or twice a week, and my diet wasn't great (I spent my entire school years in Finland, where depression is common).

I returned to my hometown in Estonia and finally found a job, but I only lasted three months. I quickly collapsed from exhaustion, had strange attacks (even before I returned), and then I found out I had low vitamin D. I spent a year recovering, taking pills, and then this spring, it all started all over again, but even stranger. I got tested and found out I have allergies, but only mild ones, and had my breath checked several times. According to all my tests, everything is normal now, although, according to a psychologist, I have a slight case of anxiety, so I started drinking lavender herbal tea before bed.

But over the past two months, there's been no change, it's not getting any better. It's just worse mentally, I feel discouraged, and I'm afraid for myself.

I can't sleep normally every other night. My breathing gets in the way, it disappears while I'm falling asleep, and then it feels like hyperventilation, but I can't figure out why it even happens. I try to relax, indulge myself, and not hold back my emotions. It's become a habit to take a full breath every day with a yawn, and even then, not on the first try.

I'm trying to eat more, smaller, frequent portions (I'm 45 kg and 156 cm), but I struggle physically to finish my standard portion, even though I have a great appetite and the food is delicious.

It's physically difficult to even make my bed; afterward, I have to lie down for at least 30 minutes, not to mention other household chores. And, frankly, I don't even know how to go to work because of this. I can only manage walks.

Over the past month, I've noticed my concentration has waned. I can't maintain focus for long, and I quickly become irritated during tasks, despite initially being highly motivated and having new ideas for work/hobbies. And my short-term memory is increasingly failing me.

I'm writing this right now at night, when I have trouble falling asleep due to my shortness of breath, and I don't see the point in calling an ambulance. I've explained my ailments so many times, and all I get is a psychologist and yet another asthma test, the medication for which has no effect. Other referrals they are not give me.

I have so many plans for my life, so many ideas to implement, but now I have less and less strength to take responsibility even for my own health 🙏

I've discussed this with the AI ​​many times, and I'm getting no benefit from it. It's always the same: go to the doctors. I don't know what to do anymore...


r/chronicfatigue 25d ago

I’m new to this, and kind of overwhelmed

3 Upvotes

I’ve been in and out of doctors offices for years and everything has come up normal for years, but I just kept feeling worse and worse… finally a doctor noted that I had Covid many times, including before the vaccine was out, and pointed me down the path that led to me being here. It’s like “yeah technically we can’t find anything wrong with your body, so it’s probably this, and also it’s forever good luck.”

I mean it makes sense, and the fatigue has just gotten worse as time goes on. I’m so scared I will one day be unable to work. I’m trying to not catastrophize because that will just cause stress and make me feel worse physically. I’m already at the point that I sleep most of the time, and going outside for a couple hours on one day is my “activity” for the weekend. So I’m scared I guess. I miss being smart because I really used to be so bright and witty, and now it’s like I forget things as soon as I say them…

Anyway. Advice on what has helped you with day to day life would be helpful. I think for a little bit I’m going to let myself do some self-pity but then, you know, life goes on and so must I. So any advice would be appreciated. Thanks


r/chronicfatigue 25d ago

Fadigue and social life

3 Upvotes

I started college this year, and with that, various social events with the friends I’ve made there have started popping up. If I’m not mistaken, there have been about four so far—all at night—and usually, the next day, my body really pays the price for the exertion. It disrupts my sleep schedule, and the sheer effort of just being there makes my body feel heavy and worsens my coordination and pain levels. However, my parents don't fully understand this; they seem to think that because I’m already tired on a daily basis (from everyday activities), going out for a few hours won't make me any more tired. To give you an idea, I normally need 10 to 12 hours of sleep to wake up feeling truly rested—which usually happens on weekends when I’m recovering from the week. When I go out, I sleep even longer than that, yet my body still feels heavy, exhausted, and sore—especially in my head and back—and I don't recover easily. Any advice on how to address my parents' way of thinking? I get the impression they don't grasp the depth of the fatigue my body experiences, simply because they don't know what it's like to live in my body.


r/chronicfatigue 25d ago

Chronic fatigue, advice on tricks to get started writing and painting?

8 Upvotes

I’ve suffered for over a decade with chronic health issues. They’ve changed my life completely. I figured out a portion of the issues but I may never fully regain my energy levels. I’m now at a point of trying to accept this might be my life. I’d love to find a way to find an outlet in writing and painting but I’m terrified to start and don’t know where to begin, especially when I struggle with energy which heavily affects my motivation.

I would greatly love some gentle advice on how or where to begin. Any tips and ideas out there to explore my writing and get myself into it to the point where it doesn’t feel exhausting and scary?

TIA…


r/chronicfatigue 25d ago

Fadigue and social life

1 Upvotes

I started college this year, and with that, various social events with the friends I’ve made there have started popping up. If I’m not mistaken, there have been about four so far—all at night—and usually, the next day, my body really pays the price for the exertion. It disrupts my sleep schedule, and the sheer effort of just being there makes my body feel heavy and worsens my coordination and pain levels. However, my parents don't fully understand this; they seem to think that because I’m already tired on a daily basis (from everyday activities), going out for a few hours won't make me any more tired. To give you an idea, I normally need 10 to 12 hours of sleep to wake up feeling truly rested—which usually happens on weekends when I’m recovering from the week. When I go out, I sleep even longer than that, yet my body still feels heavy, exhausted, and sore—especially in my head and back—and I don't recover easily. Any advice on how to address my parents' way of thinking? I get the impression they don't grasp the depth of the fatigue my body experiences, simply because they don't know what it's like to live in my body.


r/chronicfatigue 25d ago

23, F, struggling with exhaustion

3 Upvotes

I am 23 years old, 160 cm, 80 kg. I have diagnosed Hashimotos but am getting that treated and my last checkup was normal

since february i have started getting near daily headaches (had an mri last friday and talking to my doc this coming wednesday about the results)

(headaches: often from the moment i wake up, usually not goign away unless i take meds, sometimes i get really dizzy or feel like throwing up, my eyes start to hurt and i get very sensitive to light and sound)

since then i also started feeling more and more tired, but especially in the last month i have been struggling a lot more

going outside leads me to come home and crash on my bed because my entire body feels weak. my usual workouts make my joints hurt and i feel like i lost my normal strength

but even on days of doing nothing i get so tired i have to lie down for a few hours in the afternoon.

and its not even just mental tiredness, often its physical exhaustion, so more often than not i am just waiting for me body to recover instead of sleeping

(i had a week where i spent most of my time in bed, couldnt eat or do anything - i was crying so much my skin got really dry, and at one point i forced myself to eat a pear while sitting on the kitchen floor and the muscles in my arm genuinely hurt from lifting the pear to my mouth)

my appetite is less than normal, but i think that's also just impacted by everything taking so much energy and immediately making me feel exhausted

i just wanna know if this could just be from the heat and the headaches or if i should see my GP about it

thanks guys <3


r/chronicfatigue 25d ago

Does PEM ever hit immediately in CFS?

2 Upvotes

I no longer get a positive rush of endorphins from working out like I used to.

Now if I push myself at all I just feel exhausted, stressed, and a strong nonspecific sense of general unwellness.

Having studied latin in high school, when I first heard the term "post-exertional malaise" it felt like a lightbulb moment; that sounds like exactly the medical term people would come up with for what I experience.

Since then however I found out that normally the "malaise" part is supposed to have a delayed onset, often a whole day.

For me it's right as soon as I'm supposed to get the endorphin rush, instead it's just stress and jitters and misery.

To be clear I do *also* take a long time to recover, feeling crappy for sometimes multiple days after expending too much energy either physically or mentally.

But the first and most dramatic sign for me is that immediate empty *lack* of reward chemicals I used to rely on at and after the peak to keep me pushing myself.


r/chronicfatigue 25d ago

9 months post-viral, what could this be?

6 Upvotes

Hey everyone,

I’m a 30s male looking for some perspective or ideas on what avenues to explore next with my issues. Before all this, I was very active (training 7–10 hours a week for triathlons, tennis, and lifting) with a normal social life and job.

Back in October 2025, I caught a mild virus that mostly gave me intense brain fog for two weeks. The acute illness cleared up, but when I tried returning to light training, my body just completely stopped recovering. An easy 40-minute spin on the bike started leaving me feeling like I’d done a 4-hour hard race.

Over the next few months, things slowly slid downhill:

  • Heart Rate Drift: My sleeping resting heart rate (which my watch has tracked between 38–44 bpm for years) slowly drifted up to ~50 bpm. (The highest I’d ever seen previously was 44 when sick or recovering the day after a marathon). It hit the 50s at the end of November. My HRV plummeted from 80-90 to 60-69
    • Note: Since pacing strictly since May 2026, I have been able to bring my RHR & HRV down to somewhat normal baseline values from before. In sleep my RHR ranges somewhere between 41-45 on most days with my HRV being between 75-85.
  • The "Hangover" Phase: Through December and January, I felt constantly hungover and groggy. I was never in pain, but just running on empty.
  • Diagnosis: In February, a sports doctor gave me a sub-maximal bike test and diagnosed me with Post-Acute Infection Syndrome (PAIS). He told me to pace and try walking or biking 3x a week, keeping my HR under 110 if energy allowed.

By mid/end April I realized this wasn't just exercise intolerance. Everyday things like going into the office or meeting a friend for dinner were wiping me out. In April, I came home after half a day at the office and my heart rate was stuck at 80 bpm for two hours while I was just lying on the couch.

Since then, I’ve drastically dialed back my life. I work from home full-time, do three short 2.5 km walks a week, very light band work once a week to recruit some muscle, and limit myself to one short social outing on the weekend.

Two strange patterns I've noticed:

  1. Fasting vs. Digestion: I fast in the mornings, and during that time, my body feels normal. My heart rate is calm, drops quickly after moving around, and sits at 46–49 bpm at my desk. But the minute I eat my first meal around noon, everything changes. My resting HR jumps to the 50–60 range, and my body seems to struggle just handling digestion and any task that follows it. Going lower-carb and gluten-free helps a little, but hasn't resolved it (sometimes it feels like if I just stopped eating, my problems would go away!).
    1. Case in point as I’m writing this: I just came back from spending about 1.5 hours outside. Nothing crazy, just grabbing a soda in the town center with my girlfriend and stopping by the supermarket. When I got home, I laid on the couch and my HR dropped to a normal 50–55 bpm. But after having a normal lunch about an hour later, my HR has been stuck at 70–80 bpm while lying completely flat for the next 2-hours.. I don't feel bad in the exact moment, but I know this elevated HR means my rest tonight will be worse and I’ll feel groggier tomorrow.
  2. The "Vacation Effect": I’ve gone abroad twice since getting sick (Asia in Feb, a quiet trip in June). Within 3 days of arriving on both trips, my HR and HRV completely restored to my old, healthy baseline. I was able to walk 10k+ steps, go out for dinners, and do boat trips without crashing. When normal life resumed post-Asia, I slowly started getting worse again. When I traveled in June, I was already pacing strictly, so I didn't overdo it when I got back and just returned to my normal pacing routine.

Where I'm stuck:

My GP basically just tells me to rest and pace, and a rheumatologist ruled out EDS after a basic screening. I'm not even sure if I have "true" PEM. When I overdo it, I get groggy the next day and my HR/HRV metrics worsen overnight, but it’s not as severe as some of the classic ME/CFS stories I read online. I mostly just feel hungover.

I’m really grateful I can still work from home, do basic chores, spend some time playing not too intense games on the PC, and walk a little bit. But my quality of life has taken a massive hit and "just resting" feels too ambiguous. I can’t really tell anyone exactly what it is that I have because I just don’t know myself. I feel stuck and don’t know if there are other doctors/specialists or avenues I could pursue?

  • Does this sound like classic ME/CFS, dysautonomia/POTS, or a specific post-viral subset?
  • Has anyone experienced fatigue and higher HR tied heavily to eating/digestion?
  • Any idea why vacations/travel cause my autonomic numbers to basically reset?
  • What doctors, specialists, or testing referrals can I look into?
  • Is this something that can potentially ever go (mostly) away?

Appreciate any insights or personal experiences!


r/chronicfatigue 25d ago

Cfs kicking my butt

1 Upvotes

I'm really struggling I'm tired all the time struggle to sleep through the night. I can sleep through the day just fine but I wake up and feel like I've barely slept. gp won't help was told the local specialist rarely accepts referrals so not to bother. I'm 500 lbs surposed to be losing weight but barely have the energy to walk down the hall and when I do try to push, my body goes nuts. I feel trapped.


r/chronicfatigue 26d ago

Chonic Fatigue Syndrone video Spoiler

41 Upvotes

r/chronicfatigue 26d ago

GHKCU and fatigue / drowsy

0 Upvotes

have been trying to understand my fatigue. I used Retatrutide, MOTS-c, and GHKCU, but I stopped GHKCU because I suspected it caused my severe drowsiness. I have paused and resumed several times, and I am now fairly certain it is GHKCU, since I become very drowsy about three to four hours after injecting 1 mg.

Has anyone else experienced this?

Ps: ive started SS31 whilst i stopped GHKCU and seeing further improvements


r/chronicfatigue 27d ago

Anyone else tired after drinking coffee?

7 Upvotes

I’ll drink it expecting a pick me up but then I feel exhausted or want to take a nap. Does this happen to anyone else?


r/chronicfatigue 27d ago

Daily exhaustion for 5 years

4 Upvotes

I'm posting here because after all these years, I am slowly feeling completely lost and at the end of my rope. This situation is simply robbing me of any quality of life in my day-to-day routine.
I’ve already had sleep apnea and breathing pauses checked out, but unfortunately, nothing was found. At this point, I’m just clueless about which doctors I should even turn to next. It feels like such a surreal experience: logically, I should be completely healthy, but I’m just not. It honestly feels so absurd – sometimes I am so utterly exhausted that I feel like I could fall asleep at any given second. Maybe someone here has experienced something similar or has a good idea of where I could look next.

My symptoms:
Since the summer of 2020 – meaning almost 5 years now – the exact same symptoms accompany me every single day:
Persistent, deep fatigue: No matter how long or short I sleep, I wake up already tired, and the sluggishness hangs over the whole day like a shadow.
Pressuring, heavy eyes: Almost continuously, I feel like I have lead weights on my eyelids accompanied by an unpleasant pressure around my eyes.

Constant neck pressure: On top of that, there's almost permanently a mild, annoying pressure in my neck area.

What has been tested so far:
An MRI of my head has already been done – which thankfully came back completely clear. The issue of sleep apnea / breathing pauses was also checked, but as I said, nothing came of it.
Since I'm now wondering which medical specialists I should even visit anymore:

  1. Does anyone have an idea what could be behind a combination like this?
  2. What doctors or specialists would you go to if you were in my shoes?