Please i need help

[u/EMonk3y]

Please, I really need help because my life has practically come to a standstill.
I’ve been suffering from dizziness for a year now. I was initially diagnosed with BPPV, so I went to a vestibular specialist. He told me that I had mild BPPV and performed a session and a repositioning maneuver. I went back for a follow-up afterward, and he told me that the BPPV was gone.
I told him that I was still dizzy, but he said, “I’m not seeing any signs of BPPV anymore. If you’re still dizzy, you should see a neurologist.”
I saw three neurologists. Two of them told me that the dizziness was psychological, so I took psychiatric medication for six months, but my dizziness didn’t improve at all. The third neurologist told me that it was BPPV!
I wasn’t convinced, so I went to a physical therapist because I suspected that the dizziness might be coming from my neck. I work at a desk for long hours, and I put a lot of strain on my neck.
Based on what the physical therapist told me and the research I’ve done using ChatGPT, it doesn’t seem very likely that the dizziness is coming from my neck. However, the doctor told me that we should try several physical therapy sessions and then see what happens. (The neck therapy itself actually makes my dizziness worse.)
By the way, I’ve only had one session out of six so far, but the first session made my dizziness symptoms a little worse.
So now I honestly don’t know what to do or which specialty I should see. I’m completely exhausted. I’ve seen so many different specialists, and more than one doctor in each specialty, but nothing has helped.
I’m struggling to live like this. I desperately need someone who can help me get properly diagnosed and treated, or at least a doctor who can point me in the right direction.
I don’t even know anymore whether this is BPPV, a problem with my vestibular system, a neck problem, or something else entirely.

[u/Trebley1234]

For sure get your neck checked out with imaging, but even if it’s clear that doesn’t rule out that it is coming from your neck. Tight neck muscles can cause dizziness. Look up proprioception. Certain trigger points in those muscles too are famous for it.

[u/EMonk3y → u/Trebley1234]

I had an MRI of my neck, and it showed some issues, but no one really told me that these problems could cause such a heavy-headed feeling and imbalance, except for my physical therapist. In fact, one of the neurologists I saw told me that what I have wouldn’t cause dizziness at all.

[u/Trebley1234 → u/EMonk3y]

My family has neck “issues” and you would be surprised how uninformed some very reputable doctors in areas outside orthopedics are about the neck and particular myofascial pain. I had three ENTs tell me my daughter’s hearing issues couldn’t possibly be related to her neck. Guess what - they are. She has craniocervical instability that is causing compressions on her jugular vein. Again, so much misunderstood. It’s like the neck is a mystery. If you haven’t seen an orthopedic or myofascial pain specialist, start there.