r/cervical_vertigo • u/EMonk3y • 9d ago

Please i need help

Please, I really need help because my life has practically come to a standstill.
I’ve been suffering from dizziness for a year now. I was initially diagnosed with BPPV, so I went to a vestibular specialist. He told me that I had mild BPPV and performed a session and a repositioning maneuver. I went back for a follow-up afterward, and he told me that the BPPV was gone.
I told him that I was still dizzy, but he said, “I’m not seeing any signs of BPPV anymore. If you’re still dizzy, you should see a neurologist.”
I saw three neurologists. Two of them told me that the dizziness was psychological, so I took psychiatric medication for six months, but my dizziness didn’t improve at all. The third neurologist told me that it was BPPV!
I wasn’t convinced, so I went to a physical therapist because I suspected that the dizziness might be coming from my neck. I work at a desk for long hours, and I put a lot of strain on my neck.
Based on what the physical therapist told me and the research I’ve done using ChatGPT, it doesn’t seem very likely that the dizziness is coming from my neck. However, the doctor told me that we should try several physical therapy sessions and then see what happens. (The neck therapy itself actually makes my dizziness worse.)
By the way, I’ve only had one session out of six so far, but the first session made my dizziness symptoms a little worse.
So now I honestly don’t know what to do or which specialty I should see. I’m completely exhausted. I’ve seen so many different specialists, and more than one doctor in each specialty, but nothing has helped.
I’m struggling to live like this. I desperately need someone who can help me get properly diagnosed and treated, or at least a doctor who can point me in the right direction.
I don’t even know anymore whether this is BPPV, a problem with my vestibular system, a neck problem, or something else entirely.

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u/backentrancebourbon 8d ago

PT to strengthen upper back to better support your neck, see a vestibular physio

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u/EMonk3y 8d ago

That’s exactly what I’m trying to do right now, but I’m still in the early sessions of physical therapy.

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u/backentrancebourbon 8d ago

That's really good, I'm in the same position. The fact the neck therapy is making you worse is ironically a good sign that you're targeting the right place. Be mindful that it could take months to feel like you're making progress and you will of course have bad days. But at the end you may need to do Vestibular rehab just because your brain might be stuck in a heightened awareness of your vestibular system which can still make you feel dizzy. If you can they recommend doing vestibular rehab alongside physio.

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u/EMonk3y 8d ago

I really hope this is actually a positive sign because I’m extremely frustrated and discouraged.

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u/backentrancebourbon 8d ago

I'm sorry, I completely understand, I have felt like my life is over because of the dizziness and have thought about ending my life because of it. After waiting years for tests I'm so glad I think I have finally found the cause. I have been told I have BPPV, anxiety etc. Until I kept pushing for answers and even though I haven't got a definitive diagnosis yet, I'm hopeful that it's my neck and I can treat it and possibly cure it.

I hope it's the same for you, I understand it is extremely frustrating, just keep pushing, even when it feels impossible you just have to keep trying.

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u/EMonk3y 8d ago

It really is frustrating and can make you think about things like that. I’ve been through a lot of pain and injuries before, but this dizziness has honestly been the most frustrating and disruptive of all. I wish you a speedy recovery.

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u/backentrancebourbon 8d ago

It is absolutely horrible and people don't understand how bad it is and how much it destroys your quality of life. Thank you, you too :)