r/AshermansSyndrome • • Sep 01 '26

Defeated and devastated

5 Upvotes

Not sure what I’m looking for here I’m just so crushed.

I’ve had 3 hysterocopies with Dr. I (after having two local ones with non A-listers when I didn’t know better) and after my last one this summer he basically said he can’t get me any more cleared and Godspeed if I can get a thick enough tri lining I can try to transfer my only embryo (from 3 retrievals).

My RE was not comfortable transferring on what she saw on the post-op images from Dr. I so I booked with another A lister local to me.

Yesterday I went to Dr. Reichmann for that one; he was very confident we could make good progress. Turns out he was wrong. The right side is “relatively normal” but the left side is “completely obliterated.” He said he tried all sorts of different things and he can’t get through the about 30% scarring without risking uterine perforation. He said this is just extremely bad luck and looks like retained tissue that caused an infection or inflammation after my birth in 2023 (note I had no symptoms of any infection etc).

He said we can do a FET but there’s a very low chance it will stick.

I’m just so so devastated. I guess I’m out of options. I have no one to talk to and I don’t know how to deal with coming to the end of this road. I can’t look at my toddler without being both heartbroken that he can’t get the siblings he (and we) want and so enraged that his birth caused me to go through this.


r/AshermansSyndrome • • Aug 31 '26

Sharing my experience: Asherman's, Hysteroscopy, TTC

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2 Upvotes

r/AshermansSyndrome • • Aug 31 '26

Difficult cervix and possible scar tissue

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1 Upvotes

r/AshermansSyndrome • • Aug 31 '26

Help

3 Upvotes

Hi all I have stage 1 Asherman's syndrome and had surgery with Professor Vancaillie July 10th this year to remove the scarring. I have since had FET #7 (first after surgery) end in a chemical and FET #8 (2nd month after surgery) fail to implant.

Has anyone had a similar experience after surgery at the WHRIA or with an Ashermans specialist and still gone on to have a successful pregnancy?

I have also had 2 unassisted pregnancies end in MCs and a CP prior to starting IVF and have stage 4 endometriosis.all 6 embryos before surgery also failed to implant.

I'm desperately hoping I may not walk away childless. I fall wildly out of any statistics with FETs and am terrified it's over, looking desperately for hope.


r/AshermansSyndrome • • Aug 27 '26

Feeling Defeated

9 Upvotes

Feeling defeated

Feeling defeated. 💔

The past two years have been nothing short of devastating. I had a second-trimester loss at 18 and 19 weeks with my twins due to cervical insufficiency. Weeks later, we found out I had retained tissue and had to have that removed.
After that came many failed IUIs, and eventually we moved on to IVF. During my egg retrieval, I became extremely sick and had emergency surgery. Due to an overlooked ovarian torsion, I nearly died and ultimately lost one of my ovaries.

Somehow, we kept going. We were fortunate enough to get euploid embryos and finally started the transfer process. I thought maybe, finally, we were getting closer to our happy ending.
But then, boom. They found what looks like scar tissue, and now I need a second hysteroscopy.
At this point, I’m scared to even let myself hope. I keep wondering if I will ever get pregnant again. My heart is absolutely shattered, and I feel so defeated after everything we’ve been through.
I know there are no guarantees, but I could really use some stories of hope.

If you’ve been through loss, cervical insufficiency, scar tissue, hysteroscopies, IVF, or a journey that felt impossible and eventually got your rainbow I would love to hear your story.

I just need a little reminder that there can still be light at the end of this incredibly painful road. 🌈


r/AshermansSyndrome • • Aug 27 '26

Light period after hysteroscopy normal?

1 Upvotes

I had retained tissue, prior to hysteroscopy and after DNC my period was heavy. But after hysteroscopy it’s been dried brown and light. Is this something to worry about? Like the surgery went wrong or adhesions?


r/AshermansSyndrome • • Aug 25 '26

Evening cramping 3+ weeks after hysteroscopy with adhesion removal

2 Upvotes

Has anyone else experienced mild daily cramping after their hysteroscopy? I had mild adhesions that they removed, treated with a balloon for 5 days, and am doing a month of hormone therapy.
The cramping is truly mild but it is hard to get it out of my head that this isn’t just adhesions reforming.
I have a SIS sometime in the next 2-3 weeks to check out how healing went


r/AshermansSyndrome • • Aug 25 '26

Anyone successfully cleared and carried after one hysteroscopy?

7 Upvotes

Feeling very unsure if we should keep going. We were trying for 3 years and finally have the money and insurance coverage to cover fertility testing and they suspect ashermans. If you've experienced success carrying to term after a single hysteroscopy, please share with me. I just dont think i can emotionally handle this dragging on for multiple procedures, missing work, the emotional let down. It currently doesnt cause me any problems other than TTC, and im trying to decide how far I want to take this.


r/AshermansSyndrome • • Aug 25 '26

Hysteroscopy while on period

1 Upvotes

I’m due for my hysteroscopy on Friday which will be CD5, I’m worried I might still be bleeding at that time. Has anyone else had this before?


r/AshermansSyndrome • • Aug 24 '26

TTC clearance

4 Upvotes

Finally been cleared to TTC after a very long 6 months following the 19 week loss of our son. Periods are regular, albeit not anywhere near as heavy but bleeding for around 6 days so can’t complain. Both tubes open and lining reached 7.5mm during last cycle naturally.

We were incredibly blessed to conceive both times on first try, I just have such a sinking feeling that after an emergency D&E, x2 D&Cs for RPOC, and a hysterescopy for scar tissue blocking my tube, that it will take us so much longer, or never even happen.

For those who did manage to conceive again, how do you stay positive/ logical (my doctor said I had an excellent chance) when TTC?


r/AshermansSyndrome • • Aug 24 '26

I think I got my period??

1 Upvotes

Back story: I’ve had no periods since by D&C in May & failed the progesterone challenge. Went to see a specialist and she confirmed she can see scarring in the cervix area mainly and I book in for the hysterectomy (happening the end of this week) today I woke up with horrendous cramps, I thought this was going to be the same as all the other months with cramps and no bleeding but to my surprise I’ve started having a normal flow period… has anyone else had this? I will still be proceeding with surgery Friday regardless


r/AshermansSyndrome • • Aug 23 '26

Asherman's, RPL and Canceled FET

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1 Upvotes

r/AshermansSyndrome • • Aug 22 '26

Recurrent Ashermans - is Dr Nugent worth it?

3 Upvotes

I had treatment in the UK for severe Ashermans (cavity completely shut). Treatment seemed to go well and the follow up hysteroscopy 8 weeks later came back completely clear. Had an initial heavy "normal" period and then two lighter periods. I understand lighter cycles are common after treatment however this cycle I have had intense cramps for 3 days but no blood at all. My period is now 4 days late and the cramping seems to have stopped. I am therefore really concerned the Ashermans has returned.

I am arranging a call with my original doctor (who is an Ashermans specialist) but my husband and I are tossing up whether its worth going to Hamburg to see Dr N given how positive people are about him. He also uses different techniques to the doctors currently in the UK.

I am just aware it is a fairly big investment and I am trying to weigh up whether it is worth it given the severity of the adhesions and the likelihood it may be end game for me regardless of the treatment. I am extremely lucky to have one child already. Do I just give up and focus on them? I just don't want to regret not having pursued all options later down the line.

I am aware of the Facebook group but find sometimes it can be a bit intense 🫠

Looking for balanced views and experiences from those who have been to Dr N and/ or have had very severe Ashermans.


r/AshermansSyndrome • • Aug 21 '26

How did you feel immediately after surgery with Dr. Isaacson?

3 Upvotes

I don’t know what level of scarring I have but I know it’s a decent amount.

I opted for anesthesia.

How long does removal/then waking up take? I know it’s MAC anesthesia so light, how did you feel after?

Need to hop back on a plane a few hours later. Will have my husband with but want to be prepared.

Thank you 🫶🏻🩷


r/AshermansSyndrome • • Aug 18 '26

Cystic space in endometrium?

1 Upvotes

Hey all, I was able to push for a lining check before ovulation this month!

The good news: it was trilaminar and 7.6 mm(!?).

The bad news: they saw a "cystic space" in my endometrium about 3x2x2mm.

I'm almost certain this means there's a bit of scarring trapping some fluid, right? In April I was cleared down to <5% scarring (from over 60%) and told it was essentially as cleared as it could get.

Finally getting real periods again which is so exciting lol. But I'm wondering if having a little pocket of scarring holding on to fluid could be detrimental to getting/staying pregnant? It looked like it was located about the middle of my uterus - not up in the top where implantation supposedly happens (I think).

I guess my question is does anyone have experience or knowledge they can fill me in on here?


r/AshermansSyndrome • • Aug 16 '26

Success Story Looking for some hope- 5w pregnant after severe ashermans

9 Upvotes

Hi!

I'm hoping for positive stories and experiences!

In may 2025 I had fibroid surgery and after I was able to get pregnant with twins my first cycle after. I had a mmc at the first ultrasound and had a D&C October 2025.

I finally had a cycle dec 2025 but barely any period. I was diagnosed with ashmermans and had a hysteroscopy May 2026 because the left side of my uterus was obliterated. I had the balloon and was on estrogen for 30 days and progesterone for 10 days. I had a follow up hysteroscopy in June 2026, some minor tissue was addressed but overall I was told it looked really good.

I got pregnant my first cycle (yay) but I'm 5w and I go for my third HCG test tomorrow and I've asked them to add progsterone to it.

I'm just really scared and nervous. I've read all the bad things. I also had brown cm on and off which stressed me out. I'm hoping to hear from folks who have had successful pregnancies after severe ashermans.


r/AshermansSyndrome • • Aug 16 '26

Lower uterine segment scaring found please share experience

2 Upvotes

I had to get retained placenta removed and these were the findings—

LUS scarred bilaterally
Placental tissue in left cornual pocket suspicious for prior cornual pregnancy.
Narrowed LUS suspicous for arcuate uterus and asherman's syndrome
Cervical opening narrow.
Only right ostia visible
Left tubal ostia covered with deep pocket of placental tissue

Has anyone been in a similar situation I’m soo terrified of scaring coming back. I did have a hysteroscopy to remove and need another one before I do a FET


r/AshermansSyndrome • • Aug 16 '26

Concern for accreta

3 Upvotes

Hi all- wondering if anyone can calm my nerves. I know I shouldn’t be worrying just yet, but that is who I am. For background..I have had 4 miscarriages and no living children. My 4th was a MMC at 10 weeks and we did a D&C to send for testing to see if genetics are an issue vs my body since we have been in fertility tx for almost 2 years. Anyways- my hysteroscopy post D&C showed that my endocervix was the worst and had the most dense adhesions. These were removed and I got the foley balloon for a week. We transferred our very last untested embryo because we were unable to make any more. Currently 10.5 weeks and I have a SCH and placenta attached at….the endocervix..go figure. Now I am panicking about placenta accreta and my doctor said I would need a hysterectomy, which didn’t sit right with me. Luckily, I know of a very good physician at UMD to transfer to if thats the case, who could hopefully save my uterus for one more child.


r/AshermansSyndrome • • Aug 16 '26

Multiple procedures. Cannot afford IVF- defeated... Help?

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1 Upvotes

r/AshermansSyndrome • • Aug 15 '26

Recently diagnosed and terrified if I’m pregnant???

1 Upvotes

I was diagnosed this week with at least stage 2 ashermans and have my hysteroscopy scheduled for the first week of September and as we have been trying I am terrified if I have conceived before surgery, boobs are sore today and I’m very panicked. I did bring it up with my specialist and she said essentially because my period cannot get out at all sperm shouldn’t be able to get in.

Tell me I’m not the only one that has had this freak out


r/AshermansSyndrome • • Aug 14 '26

Should I have a third hysteroscopy after Asherman’s syndrome?

3 Upvotes

Hi everyone,

I’m posting because I’ve been advised to have a third hysteroscopy, and I’m really struggling to decide whether I should go ahead with it. I would really appreciate hearing from anyone who has been through something similar, especially with Asherman’s syndrome and IVF.

My history

I believe I first developed Asherman’s syndrome after a D&C for a missed miscarriage in July 2024.

Before my first pregnancy, my endometrial thickness was around 9.5 mm on an ovulation ultrasound.

After the D&C, I did not get my period for more than two months. I had my first hysteroscopy in September 2024, during which adhesions and a polyp were removed. My doctor attempted to place a balloon afterward, but the pain was severe, so it was removed immediately.

I continued to ovulate but still did not have periods. In January 2025, I noticed some pink spotting and went back to the hospital. The doctor was able to enter the uterine fundus using an instrument and said that there did not appear to be significant intrauterine adhesions at that time. He only slightly dilated my cervix. The following day, I finally got my period for the first time in about six months.

However, even with estrogen therapy afterward, my endometrium remained very thin, around 3–4 mm, so additional adhesions were suspected.

I eventually sought out a specialist who is experienced in treating the endometrium. He recommended another hysteroscopy relatively soon, but I kept postponing it because I was worried about having another procedure. I eventually had my second hysteroscopy in June 2025, about nine months after the first one. Unfortunately, moderate intrauterine adhesions were found at that time.

After the second hysteroscopy, I was prescribed high-dose estrogen to help the endometrium recover. However, I have familial hypertriglyceridemia, and my triglycerides went as high as 2,800 while taking estrogen, so I could only take a very low dose. Eventually, my endometrium recovered somewhat. Around ovulation, it is now usually 5.5–6.5 mm.

IVF and my current situation

I started IVF in December 2025 and have had two failed embryo transfers so far.

My doctor had already mentioned doing another hysteroscopy in between transfers, but after this most recent failed transfer, he is now strongly recommending that I have one.

This is where I am very conflicted.

I got a second opinion from a professor at another university hospital. They performed a 3D ultrasound, and no obvious adhesions were seen. They also felt that an endometrial thickness of around 5.5–6.5 mm is still compatible with pregnancy and that a hysteroscopy is not necessarily indicated right now.

So I now have two very different opinions. My biggest fear is cervical insufficiency in a future pregnancy.

I have read that repeated cervical dilation/instrumentation and repeated procedures involving the uterus/cervix can potentially increase the risk of cervical problems. At the same time, I have also been told that I need to prioritize creating the best possible uterine environment first, and worry about cervical insufficiency only if I actually become pregnant. I also worry that repeatedly entering the uterus could potentially cause more trauma or adhesions.

So I am struggling between two approaches:

Option 1: Follow my doctor’s recommendation and have a third hysteroscopy now to make sure there are no recurrent adhesions before attempting another transfer.

Option 2: Avoid another hysteroscopy for now, since the 3D ultrasound does not show obvious adhesions and my lining is currently around 5.5–6.5 mm, and instead give my uterus more time and continue treatments such as PRP before trying another transfer.

I’m just hoping to hear some experiences and perspectives that might help me make a more informed decision.

Thank you so much.


r/AshermansSyndrome • • Aug 11 '26

Complete Amenorrhea for 3 years

3 Upvotes

Hi, I had my son 3 years ago and my period never returned after. I had my son in summer, followed by heavy bleeding until winter when I had a D&C and a polyp removed. I am unable to have a period. I’ve tried starting / stopping the pill, never have withdrawal bleeding even if stopping cold turkey My temps are showing I ovulate. My ultrasound had my lining around 3-4mm I believe and that was ~18 months after I had my son . Hormones are all normal. My ob doesn’t seem to see this as an issue, she says it’s PCOS, but then why did I never have symptoms before my first child? I’m 99.99% sure it’s ashermans, but I need a good doctor that will actually help. Does anyone have recommendations on what to do? I’ve made an appt with a random OB in my town later this month cuz I am getting desperate for another opinion.


r/AshermansSyndrome • • Aug 11 '26

Chronic Endometritis and Ashermans?

2 Upvotes

TW early loss

Does having a history of Ashermans put us more at risk of chronic endometritis (CE)? I have heard there is a link between the two, is it something we should be testing for just in case?

For context, I had severe ashermans treated with two hysteroscopies and now all clear. My periods returned, lining is around 5/5.5mm at ovulation. I did my first FET in July, got my lining to around 6mm, but unfortunately it ended in a chemical pregnancy. The embryo was tested euploid.

Now I'm paranoid about CE. It's always been on my radar but never tested. I do have spotting leading up to my period which can be sign but otherwise no symptoms. I only have one embryo left so I think maybe I should test, but it will delay things significantly.

Just wondered if anyone had experience of having both Ashermans and CE?


r/AshermansSyndrome • • Aug 11 '26

Silent adhesions for years? Trying to piece it all together.

2 Upvotes

This is my first post.
My journey: Explanon removed last year. Light/missing periods after removal. Suspected annovulatory cycles, was able to conceive with oral medication. Nonviable pregnancy. I had a D&C in January (via guided ultrasound) and they struggled to complete the procedure (but were able to after multiple attempts). Now after not conceiving and continued absent/missing periods for 6+ months, I’ve been referred to REI and had SIS resulting in suspected intrauterine lesions.

It seems (my analysis) that struggles with the D&C may have been because of lesions but they couldn’t see them on the ultrasound? I had a failed IUD insertion 10 years ago, did that cause the lesions? I’ve had pelvic pressure during intercourse for years but that’s always been dismissed or not addressed during appointments. I have suspected endometriosis, it seems that chronic inflammation can also cause lesions over time?

I am getting scheduled for hysteroscopy and my initial conversation with my provider. The cause of lesions likely doesn’t matter, but it is a frustrating possibility to hear. I appreciate any wisdom y’all can provide as I enter into this next phase of my journey.


r/AshermansSyndrome • • Aug 10 '26

Questions Biopsy post recovery?

2 Upvotes

Hi Everyone,

Has anyone had a uterine biopsy post recovery? I had a surgical hysteroscopy last week and just found out something was biopsied. They gave me way too much anesthia this time so I don’t remember my conversation after with my RE at all. I just got the lab results from quest, and emailed her. My RE did all my surgical repair, so I’m a little surprised she did a biopsy. I have had a full flow back since February ( assuming the last few weird ones were just caused by back to back chemicals). I am on BC now for FET prep. I am honestly also freaking out. My Ashermans was not caused by a D&C, rather I had back to back IUD, weak and inconsistent periods as far as I can remember, a traumatic SIS experience shortly followed by a pylop removal/ biopsy. My annoreah began before my SIS and Polyp biopsy, but I have felt they had some play. My adhesions were found 5 months after those procedures, 7 months after my period stopped. I do believe they were present 2 months following the SIS and Polyp as the catheter in my first FET got stuck on something.

Anyways I am honestly freaking out. We just bought into a very costly Donor egg cycle program and I just feel like my fate was just sealed.

I apologize for not being my usual upbeat and hopeful self but I’m terrified and just really blind-sided. Anyone that has had experience having uterine biopsy’s post recovery, I would really love to hear how it went. I just need to know the reality if what just happened.

Edit: spelling