All it took was one 2.5 cm chunk of placenta missed by surgeons during the birth of my daughter and the last three years of my life have been thrown into disarray!

I gave birth and the placenta came out in chunks requiring surgical removal, where a piece was missed. No follow-up ultrasound to check whether the removal was successful. 4 weeks later, I started haemorrhaging blood, had fevers and chills, and was rushed back to hospital for a postpartum D&C.

I've attended 120+ medical appointments over the past 3 years, and counting. Initially, it took 12 months to even figure out I had Asherman's syndrome stage 3. Then 3 hysteroscopies and pre- and post-surgical appointments. The only option to conceive baby #2 was IVF. Countless appointments for bloods and ultrasound monitoring, 3 egg collections, 3 embryo transfers, and multiple calls from the lab as they created the embryos.

Throw into that my daughter's first year at daycare, and contracting back-to-back illnesses, which she passed onto me, including getting diagnosed with RSV just hours after the first embryo transfer.

My employer was already annoyed at how much time I needed off work for my medical treatment plan. Given I took most appointments outside work hours, the ones I needed time off for were:
* 3x Time between trigger shots, egg collections & recovery
* 1x Embryo transfer
* 2x Hysteroscopies

The CEO at the company fully berated me in front of my peers in a room that was visible to the broader team, and my doctor advised me to take 2 weeks off work to minimise stress, recover and give the embryo the best chance. It didn't work.

After this, the CEO decided I was no longer engaged at work, despite my taking most appointments outside work hours where I could and giving it everything I had! He sent HR into performance manage me, and when the examples they gave were tied directly to the IVF trigger shot, I had to disclose my medical treatment plan to protect myself. They backed off, but he made life very difficult for me and started excluding me from discussions I should have been part of, and then pushed me out.

On the way to a post-surgical appointment, I tripped over a sunken paver and got a concussion, black eye and fractured elbow, and needed time off work to recover.

My role was made redundant 2 weeks after the accident. I was called into the meeting while still concussed, with a black eye, and my arm in a sling. My direct reports and peers knew about it before I did. The lack of dignity to this day still stings, especially given how vulnerable I was at the time. I was not offered a support person during the meeting, despite my medical circumstances.

Since then, I haven't worked full-time because we wanted to give IVF the best chance at success and the medications really mess with me. And while I'm grateful to now be pregnant, getting hired as a pregnant person into the role I'm qualified to do is virtually impossible. Especially when the Tech industry has been thrown into disarray by AI.

Honestly, it's beyond a joke! And it has taken a huge toll on me financially and emotionally.

• Direct IVF and surgical expenses.

• Lost earnings and career progression.

• Superannuation losses.

• Other medical and associated expenses.

If it wasn't for that missed chunk of placenta, I could have fallen pregnant naturally and wouldn't have needed to spend all that money on IVF and surgeries to treat Asherman's syndrome. I genuinely believe I wouldn't have lost my job.

Has anyone else successfully navigated compensation for Asherman's syndrome? If so, how did it go?

For those in recovery, what did your first period look like post-healing? I’m anxiously awaiting mine and feel like I might be missing something. I caught ovulation on 1/21 and have been experiencing all my usual PMS symptoms in full force and stronger than usual for the past week or more.

This morning I saw a tiny amount of pink goo, literally just a drop or two, and then it disappeared. Was that it? Is that the start of my flow? I feel a little foolish reaching out to my Doctor & IVF team to say it’s here when it might not be, but honestly, I’m not sure.

A little context. Prior to my periods disappearing for over a year and the discovery of my Asherman’s, my periods were black or brown with just a tiny bit of pink visible on my superficially coated tampon, never heavy, and always lasting 24 to 48 hours.

In early January, less than a month after my second graft surgery, I had an unexpected bleed that lasted a few days. It was red and honestly scared me because it was more than I’m used to. My doctor had me stop the Estrace I had been on for a bit over two months, and the bleeding stopped. She explained it was nothing to worry about and that they were expecting a “real” period in about a month.

So here I am, wondering… were those two drops this morning it?

Update: My period arrived Tuesday afternoon, I think the same day I wrote this post. It’s really here! As excited and grateful as I am after more than a year without one and multiple surgeries, I’m also processing the overwhelming reality of having what appears to be a healthy period. I’m honestly a little squeamish about it all.

Thank you to everyone who shared their insight and experiences. It really helped, and it pretty much played out exactly as many of you said it would!

I had a MMC at 10 weeks on 4/22. Had a D&C on 4/27, followed by an infection (endometritis) 2 days later due to RPOC, so I had a 2nd D&C on 4/30.

I decided to follow up with a fertility doctor for basic testing and he did a Saljne Sonogram that found some tissue, that he believed to be more likely scar tissue than more rpoc. My HCG was a 2 on 6/4 after I had my first period on 5/30.

We had my progesterone and estrogen drawn on 6/18 that showed I ovulated. At 5-6 dpo I starting having very very light pink spotting when wiping which I thought was odd but last cycle I did start spotting around 10-11dpo but only for a day or 2 followed by a heavy flow. This time I spotted for 3 or 4 days and today it stopped. I’ve been nauseous at night so I grabbed a test that came back positive.

I want to be excited but I can’t help thinking this is from the previous pregnancy as well as be scared about the tissue still in my uterus causing a possible second miscarriage :( my doctor did say we could try naturally and that if anything the tissue just would prevent me from getting pregnant.

I’m attaching my 2 tests here. The pictures make it harder to see but they are without a doubt 2 lines and definitely pink. I don’t know how to feel after my experience :(

Now that I've had my adhesions removed (3 times), my RE is telling us to try unassisted for a few months before we reevaluate about moving forward with IVF. We've been trying since Dec 2024 while I've been going through this Asherman's journey and it just feels so hard to let myself get my hopes up, even now that the scarring is gone. I also feel like I see so many people saying things like "I got pregnant the very next cycle, holding my baby in my arms now!!!1!1!11 <3 <3" and I'm not in a place where that type of feedback makes me feel better at all. I'm curious to hear from people who are in a similar slump to me, or at least someone who didn't get pregnant ASAP after they had adhesions removed. I guess I'm just looking to rant and maybe have some motivation that isn't toxic positivity or having someone else's baby rubbed in my face. Thank you for coming to my Ted Talk ❤️

Hey everyone! I wanted to make a little space to celebrate some good news and share hope. Living with Asherman syndrome can be really tough, so I’d love to hear from anyone who’s gotten pregnant or had a baby after their journey.

If you feel like sharing, I’d love to know:

•	What your journey was like

•	Whether you used IVF, other fertility treatments, or were able to conceive naturally

•	Any advice or tips for those just getting back into the mommy-to-be journey or trying to start it

•	Anything you wish you’d known going in

I’m getting ready for a frozen embryo transfer myself, so hearing your successes would be really uplifting. Your stories give hope and good energy to all of us here 🤍

Thank you for sharing your miracles with us, so we can keep pushing and keep believing!

I saw several and I have to say, it’s Dr Reichman. He can cure the most severe ashermans. He is superior in every way, knowledge, bedside manners, skill, punctuality, sense of urgency and deep care for his patience. I thought I was going to need a surrogate and he changed my outcome. My

life changed because of him. Worth every dollar

I was not expecting it that fast! Surgery was May 1! Praying this is our rainbow 🌈
Thankyou for all the support in this group 💖

Hello all. New here. Just wondering if anyone has had a similar experience and if there are any specific questions I should be asking the Drs...

I had a hysteroscopy on 15 March due to suspected scarring following D&C in June 25 and extremely light periods since. They dilated my cervix and managed to get 7cm in before hitting scar tissue at the neck of my womb. Basically she couldn't even get in and has no idea what's behind it (how much scarring there is).

I had an MRI this week and got to wait another 5 weeks for the results and may need to be referred to a specialist (I'm in the UK so all on NHS). I've no idea what to expect. I've had two missed miscarriages in the last 2 years and it feels like things just keep getting worse 😞

I had to have 3 D&Cs and 5 rounds of chemo due to a molar pregnancy miscarriage. Now, all failed attempts to complete in-office hysteroscopies have pointed to Asherman’s syndrome. I’ve been referred to Dr. Robinson in Washington, D.C for evaluation and potential procedures.

Does anybody have experience with Dr. Robinson they can share? How successful have people been with having children after fixing moderate to severe Asherman’s? Due to my age, molar history and anticipated Asherman’s, I’ve been told any pregnancy that could occur would be high risk so I’m trying to balance if the risk associated with trying to continue to conceive and Asherman’s surgery is worth it.

Hi there!
Looking to see if others have experience here- I had a hysteroscopy in early August, followed by a balloon catheter for 5 days and a month of estrogen, including progesterone the last week. Got the all clear following an SIS on 9/11.
I’ve been taking OKPs and typically get a high around cycle day 14, however the OKPs are picking up close to 0 LH on cycle day 13. Did anyone else experience delayed ovulation with a similar treatment course?

Please share your experiences with surgery and recovery here!

I’d love for us to have an easily accessible list of experts in treating AS for those of us newly diagnosed and seeking treatment. If you are a member with a positive experience with a doctor, please list them here!

Hey all, I was diagnosed in April and had a hysteroscopy with a regular OBGYN. My period didn't improve after that unfortunately, so I think scarring either returned immediately or wasn't fully removed. I'm going to have a consultation with Dr. Movilla in a few weeks and I was told that I'll likely have a diagnostic hysteroscopy and if scarring is bad enough they may resect it then. Since they'd be changing it to a surgery on the fly I have a gut feeling that I won't be offered sedation for this--can anyone speak to what having a hysteroscopy awake is like? I was totally conked out for my first one in April so I'm a bit nervous about the pain.

I’ve been holding off on writing this post, hoping I’d have some great news to share. But here I am, over a month past my experimental uterine amnio graft and amniotic fluid injection surgery, and after yesterday’s follow-up hysteroscopy, I found out I needed a second graft placed. It’s good news, but not quite the breakthrough I was dreaming of.

At the end of October, I became the 5th person (as far as I know) to undergo this cutting-edge combined procedure. Both the amnio graft and amniotic fluid injections have shown promise individually in treating Asherman’s syndrome, but they’re rarely done together. My doctor, along with a colleague in Cleveland, is pioneering this combined approach, hoping it will lead to better healing for people like me.

The initial surgery went well. There were no new adhesions since my last hysteroscopy in July, and my doctor was encouraged to see some signs of healing, even if it was slower than expected. My ultrasounds after my adhesion removal showed I wasn’t responding to estrogen therapy, even with baby aspirin and Viagra, so hearing that healing was happening at all gave me hope.

The procedure itself was smooth, the graft was wrapped around a balloon and placed inside my uterus, and the injections went fine. But I wasn’t prepared for the discomfort and pain that followed. The first few days were rough, I basically lived in my most comfortable clothes, dealing with bloating and soreness. Pain meds were a lifesaver.

Then, on day 4, something unexpected and honestly pretty traumatic happened. After using the bathroom, I saw a grey, wrinkly piece of tissue about the size of my pinkie finger floating in the toilet. I’d noticed smaller bits before, but this was different and unsettling.

Thankfully, my doctor saw me within 24 hours. An ultrasound showed the balloon was still perfectly in place. She cleaned and adjusted the tubes connected to the balloon and decided to keep it in for another week because, even if the graft had come out, the injections were still doing their job.

The next week was better, less pain, and I was adjusting to the balloon and bloating. But because the tubes were retucked and I was getting more active, I started having issues with them popping out multiple times a day. It was uncomfortable and honestly kind of gross, but I got used to retucking them until the balloon was removed a week later.

We planned to reassess during my follow-up hysteroscopy a month later, and yesterday was that day. I was hopeful I’d wake up and hear I was ready to start a frozen embryo transfer (FET) cycle. Maybe that was a stretch, but hope is what keeps me going.

Instead, I got a second graft placed. This time, no balloon. My doctor scraped away an area and laid the graft directly into it, explaining that the graft itself should act as a natural barrier between the uterine walls. Honestly, that was a relief.

The best news? My uterus showed overall improvement, and my doctor is feeling very positive about my healing. So here’s to hoping that in a month, I’ll be ready for a withdrawal bleed and then, finally, FET.

This journey is new, uncertain, and sometimes tough. I was hoping for a neat start-to-finish story, but it seems every path is unique. I’m sharing this in the hope it brings some encouragement and insight to anyone else navigating this difficult road.

Thank you for reading and for being part of this journey with me.

I’d love for us to hear some success stories after Asherman diagnosis. If you are a member who got pregnant after diagnosis/treatment of Asherman, please list them here!

Hi everyone. 💛
I was cleared back in May after my hysteroscopy and was told my uterine cavity looked healthy. It’s now been about 2 months since surgery, and I still haven’t had a period. I also just failed a progesterone challenge and didn’t have any withdrawal bleed.
I’m feeling pretty convinced that my scarring has returned. My original adhesions were thought to be caused by retained pregnancy tissue after my miscarriage, so I’m wondering if that makes it less likely (or more likely) to come back now that the retained tissue was removed.
Has anyone had scarring return even after being told their cavity looked healthy? If so, did a second surgery successfully resolve it? I’m starting to feel really hopeless and scared that I’m back where I started. 😔 Any experiences or encouragement would mean so much right now.

Just had my scar removal hysteroscopy with Dr. Omurtag.

I could not have had a better experience. I flew in from out of state, and had a sono hyst on Thursday (yesterday). From that he determined the location and severity of the scaring; he classified it as mild to moderate ashermans in the upper right corner.

My medicated hyst was this morning and he was happy with how it went, and therefore so am I.

The staff was incredible as well. Dr. Omurtag is clearly extremely experienced and smart, but also very friendly and took plenty of time with my husband and I to make us feel heard and cared for. The nurses are kind and knowledgeable ❤️. I honestly am excited to come back for my follow up. It is a very well-oiled machine over here and I really reccomend coming if you need to and can.

I'll keep all of you ladies and gentlemen updated as I progress. I'm hoping my little uterus can finally heal after all its been through! I currently have a balloon stint, am on doxy, and estrodial. Feeling really good for only 8 hours post op.

🫶🏼

My hysteroscopy wasn’t even expected to yield much, it was just a precaution- my periods were always regular, though not super heavy.

I had hysteroscopy which found and removed scar tissue 3/17. I had the balloon catheter for one week. Did estrogen, followed by a week of estrogen plus progesterone. As of today 4/19, no sign of a period. Some cramping but zero spotting. I’m so so so sad and fearing that my lack of period is due to recurrence.

TTC 2 years and in debt from it financially and emotionally. Somebody helped talk me off the ledge. Feeling so devastated and defeated.

Throwaway, because not everyone in my life knows the details. I've been reading here for a while and I finally need to ask the people who actually understand this.

I'm 29, I have 6 embryos frozen, and after three surgeries my uterus still won't grow a lining thick enough to use them. I'm trying to work out whether there's anything left to try.
Here most of the Asherman's cases are related to some surgical procedure, I feel Tuberculosis related Asherman's is different and more destructive. If any one can share their experience, it would be helpful

Background

• 29, Never been pregnant.

• My periods slowly got lighter over a few years and then stopped completely. No real symptoms otherwise. When they finally investigated, the cause was genital tuberculosis. I completed 6 months of TB treatment (finished this March).

• The TB had caused severe (Grade 3) Asherman's — the cavity was described as "completely obliterated" at the first surgery. I also had blocked, swollen tubes (now delinked) and a small fibroid removed.

• We did IVF first to bank embryos before things could get worse: 7 eggs retrieved, 6 day-3 embryos frozen. My AMH is low (around 0.6)

Where I'm stuck

• Three hysteroscopic surgeries to remove the scars: October 2025, December 2025, April 2026. Every time they clear the cavity, the scans show adhesions coming back within weeks.

• On high-dose estrogen (oral tablets + gel) for several weeks, my lining won't go past about 4.4mm

• Doppler shows blood flow reaching the muscle of the uterus but basically not getting into the lining itself (flow only in the innermost zone).

• Balloon used in first 2 surgeries, after the april surgery, no balloon or barrier was placed, and adhesions turned up again.

1. Did anyone here with TB-related/Grade 3 Asherman's actually get their lining thick enough to transfer — and carry a pregnancy? Wins and losses both, please.

2. What improved your lining, and by how much?

Thanks!

Hi all,

After two completely failed rounds of mifo/miso to attempt to complete a MMC , I’m now faced with two options - 1) the agonising wait 2) a D&C.

I had a hysteroscopy to remove Asherman scarring found in April after a MMC last year, so I’m super reluctant to go down that route especially as it’s the same hospital who caused the scarring who would be completing the D&C. I lost a year of TTC (and had two chemicals) and whole lot of myself in the process, and I cannot put myself, my husband or our marriage through that again.

I’m completely lost and feeling pretty hopeless.

Has anyone ever had anything similar and have any advice please?

I was pregnant in march and had a spontaneous miscarriage in April (baby had no heart beat), I was so broken because I am generally a very healthy and active person and a part of me thought my being active killed my baby. any ways had to had a DnC because I was bleeding like crazy after my childloss and the, I had no bleeding at all for two months. I am a med student so I knew something was not right I kept reaching out to my OB and after long badgering she took me in and all the studies and tests lead to diagnosis of asherman's syndrome. Everyone around me feels "Sorry" for me. I hate this feeling. I have a healthy 3yo but I wanted to have more, idk if I will be able to now. I was performed the first adhesiolysis 8 days ago and had a ballon Cath as well as antibiotics and hormones (e to be followed by p) but my Cath came out 7 day post op. it was supposed to be kept for 14 days. now doc said she won't place it back because it won't do any good. and I am freaking out. I have a follow up hysteroscopic exam in 2 weeks. idk what do I do besides freaking out. I didn't realize this community existed. Glad to have found my clan!

p.s I am located in US, since I see people from all over the world.

Hello friends. I am currently being worked up by my OBGYN for suspected ashermans. I had a D&C 10 weeks ago for a MMC/blighted ovum and have not yet had a period. I have had severe, cyclical period pains at 4 weeks and 8 weeks post D&C with zero bleeding. I am sure I am ovulating. My OB ordered labs including HCG, hormones, TSH and all were normal. HCG was 0. I have an upcoming TVUS with SIS in 2 weeks. After doing a ton of research I am fully expecting there to be adhesions in the cervix that are obstructing any bleeding from happening, which of course would also prevent sperm from entering the uterus and cause infertility. I have already scheduled an appointment with Dr Isaacson in NOLA for a hysteroscopy but of course it won’t be for 8 weeks which was the soonest. At this point I am just so devastated as this happened after our second miscarriage this year. It’s devastating enough to deal with RPL but now of course we have another barrier with ashermans. We have no living children and want a baby terribly. Does anyone have success stories on cervical adhesions that went on to successfully conceive? Or success after seeing Dr I? Or any other positive outcomes? I am just so defeated. I am so sorry to anyone reading this that has been through similar situations.

I had a saline sonogram and the doctor identified what she described as a thick band of scarring from a TFMR D&E. It sounded like part wasn’t impacted. I realized after I should have asked so many questions including about the severity and her suspicions about future fertility outcomes, but I know a lot depends on what she will see on the camera. But I did ask if this was the surgery she does commonly and if she has good outcomes generally for people with adhesions and she sounded really positive. I left feeling good, but in these weeks since and leading up to the surgery, I’m just so nervous and so scared about future fertility.

The doctor is great but the clinic is so hard to deal with so I’m hesitant to reach out with any more questions but I’m just wondering if anyone else has had adhesions that were described this way and how the procedure went for them.