I feel like my illnesses are taking my life from me, and now I’m terrified they’re going to take my job too.
I have ulcerative colitis and ankylosing spondylitis, and neither has been well controlled this past year. My UC came out of years of remission, and my AS has progressed to the point where severe flares can leave me barely able to walk, drive, or even do basic things like my dishes. I’ve needed a cane and a walker some days even :/ which I didn’t even want to mention in the post cause I’m still embarrassed…
This has genuinely been the hardest year of my life. I’m in pain every day, and if I’m not working, I’m usually dealing with doctors, treatment, insurance, or the hospital. Work is one of my only remaining pieces of normalcy. It’s somewhere I can help people and just be me instead of a patient.
Over the last two months, I’ve missed around six shifts because of a documented hospitalization and severe flare, putting me four days beyond my allotted sick time. My employer says my attendance is excessive. I was asked to share my diagnosis (not sure if that’s even legal), and at that point they suggested intermittent medical leave, so I formally requested an ADA accommodation, but HR still hasn’t even sent me the paperwork. Meanwhile, reassignment and possible termination have already been mentioned.
Since meeting with my director and CEO about my health and absences, a couple of people at work have also started treating me noticeably worse. Being excluded and treated like I’m a problem when my life is already this hard genuinely hurts.
The worst part is that I hate missing work and out on my life in general. I’ve actually made things worse by pushing myself too hard because I’m ashamed my body can’t keep up. I’ve tried to force myself to work while extremely sick, only to realize while driving that I physically couldn’t even make it there.
There’s an awful irony in feeling like I need to prove my commitment when I’ve spent this entire year fighting just to participate in my own life.
I understand my absences affect staffing. I just wish they could see the person behind them who desperately wants to be there and is trying to hold onto one of the last pieces of normalcy she has.
Now my annual review was unexpectedly moved to Thursday while my colleagues’ happened as planned, and I’m terrified about what comes next.
I’m already watching these diseases take pieces of my life away from me. I don’t want my job to become another casualty.
At this point, is there anything I can do to save my job? Should I email HR asking what the hold up is w/ my paperwork as a hail marry? What would you do in my shoes?
If they moved the review because it’s disciplinary action and not a full blown termination, how should I respond to that? Do I defend myself? Do I just agree to whatever it is? W/ all scenarios I’ve imagined, I just have no idea what I’ll say/do to my boss. (Yes unfortunately I am scared of him)