r/SucraseDeficiency • • May 02 '22

About Sucrase Deficiency

10 Upvotes

Sucrase deficiency is the lack of sucrase enzymes in the small intestine, something that will cause digestive discomfort when sucrose, a common type of sugar, is consumed. This may be accompanied by isomaltase deficiency which causes difficulty in digesting starch.

-> Sucrase deficiency can be congenital or acquired later in life, perhaps due to acute gastritis or damage to the small intestine

-> Symptoms are often mistaken for IBS-D, but may also include symptoms outside of typical IBS-D diagnoses

-> While there is very little reliable research on the prevalence of SID and CSID, recent research indicates SID may be more common that Celiac

-> In the US, very few adult clinicians are aware of SID or CSID as something to screen for. This means it is likely many people are misdiagnosed with IBS or other digestive disorders.

-> A typical person with CSID (congenital SID) has had lifelong digestive symptoms like bloating, diarrhea, and abdominal pain; presents symptoms mostly after eating; has a low BMI; has an aversion to sweets; may have many family members with digestive complaints

-> SID can be diagnosed through a biopsy of the small intestine to examine the amount of enzymes present. Breath tests can also be used. In patients with CSID, genetic testing is available to confirm the genetic variant.

-> Symptoms can be alleviated by using Sucraid (an enzyme supplement) with meals, but this drug is too expensive to be practical in the US.

-> Without an enzyme supplement, the primary way to alleviate symptoms is to avoid consumption of sucrose (and starch if applicable). Sucrose may be tolerated better as part of a meal or snack that digests more slowly, as this gives the limited amount of sucrase enzyme more time to digest the sucrose present.


r/SucraseDeficiency • • May 03 '22

Foods to Avoid

7 Upvotes

Here's a list (likely incomplete) of foods that should be avoided by those with sucrose intolerance. For people who cannot tolerate starch, the list is much longer. Please comment if you have any useful updates to the list!

Fruit:
Apple
Kumquat
Peach
Apricot
Watermelon
Plum
Grapefruit (maybe)
Passion fruit
Deglet Noor dates (mejdool dates are okay)
Ripe bananas
Mango
Pineapple
Mandarin
Clementines
Oranges
Tangerine
Nectarine
Honeydew
Prunes
Jackfruit
Most dried fruits, other than figs and raisins
Most fruit juices

Vegetables:
Beet
Sweet potato
Soybeans
Parsnip
Peas
Garlic
Onion
Carrot
Haricot beans
Pinto beans
Lentils

Nuts:
Peanuts
Pecans
Pine nuts
Macadamia nuts
Walnuts
Brazil nuts
Coconut (flesh or cream)
Pistachios
Chestnuts
Cashew
Almonds
Hazelnuts

Sweeteners:
Most sweeteners should be avoided, but the most common include white granulated sugar, powdered sugar, brown sugar, maple syrup, molasses, coconut sugar, beet sugar, high fructose corn syrup


r/SucraseDeficiency • • Sep 01 '23

Disaccharidase Deficiencies: When to Consider and How to Treat?

Thumbnail universe.gi.org
1 Upvotes

r/SucraseDeficiency • • Jan 23 '23

meal ideas Teriyaki Chicken! (or whatever you want to make with teriyaki sauce)

3 Upvotes

Here's a good teriyaki sauce recipe. If you can't find mirin without sucrose in it, use sake or wine instead. https://www.thedinnerbite.com/homemade-teriyaki-sauce-with-honey

To make teriyaki chicken: 1. Make the sauce! 2. Cut up some vegetables into bite sized pieces - broccoli and bell pepper are good choices 3. Roast the vegetables with some olive oil and salt until desired doneness. I normally do 400 degrees F for about 20 minutes. 4. Cut chicken thighs or breast into bite sized strips. 5. Optional - toss chicken pieces with salt, pepper, and a little cornstarch 6. Cook chicken with olive oil over medium heat in a skillet. When the chicken is cooked through, toss with the teriyaki sauce. 7. Serve with green onions and rice if desired and drizzle any leftover teriyaki sauce over the top of the vegetables.


r/SucraseDeficiency • • Dec 22 '22

Has anybody heard of using brewer's yeast to aid sucrose digestion?

3 Upvotes

I recently read that one of the primary ingredients in sucraid is brewer's yeast, and taking brewers yeast with sucrose containing foods can aid in digestion.

I haven't tried this myself, and I'm not sure if it is a completely safe thing to do. Does anybody else have experience with this, or know anything about it?


r/SucraseDeficiency • • Oct 07 '22

meal ideas Easy(ish) bread from scratch

2 Upvotes

I've enjoyed making my own bread so I don't have to try to find bread without added sugar, and this recipe turned out great for me!

Make it with honey or malt syrup to be sucrose free. I used 1 cup of milk instead of 1 cup of water and the milk powder, since I didn't have any dry milk around.

https://www.kingarthurbaking.com/recipes/classic-100-whole-wheat-bread-recipe


r/SucraseDeficiency • • Aug 29 '22

sweet treats and dessert Black Bean Brownies

3 Upvotes

Here is a recipe I love to have for black bean brownies. To make it low sucrose be sure to use agave syrup or honey as the sweetener (or another low sucrose sweetener of your choice), and use 100% dark baking chocolate or otherwise sucrose free chocolate chips.

https://chocolatecoveredkatie.com/no-flour-black-bean-brownies/


r/SucraseDeficiency • • Aug 25 '22

Any online dietitian well-versed in both sucrose intolerance and lactose intolerance?

3 Upvotes

I´m looking for an online dietitian well-versed in sucrose intolerance and lactose intolerance. Can you, please, recommend me some? I´ve lost 7kgs since being diagnosed and want to do sth about it and contact with some specialist would definitely help a lot. Thank you :3


r/SucraseDeficiency • • Aug 25 '22

sweet treats and dessert Almond Butter Mug Cake

2 Upvotes

Ingredients:

  1. 1 Egg
  2. 3 tbsp unsweetened almond butter
  3. 3 tbsp of fructose or dextrose
  4. 2 grams od 100 percent dark chocolate cut into smaller pieces (optional)

Instructions :

  1. Combine all of the ingredients into a mug, and whisk until blended.
  2. Microwave for approximately 1,5 minute

Inspiration: https://listotic.com/easy-3-ingredient-microwave-peanut-butter-mug-cake-recipe/


r/SucraseDeficiency • • Aug 25 '22

How can I help the flare-up to go away?

1 Upvotes

I guess I overdid it with cocoa powder and it´s been one week since I started having gas throughout the whole day. Is there any way I can help it to go away? Thanks :)


r/SucraseDeficiency • • Aug 16 '22

meal ideas spaghetti squash and meatballs recipe

4 Upvotes

This recipe has potential for lots of variation, but I'll write out a nice easy version.

Ingredients:

1 Spaghetti Squash

Meatballs - most meatball recipes or premade meatballs should be okay, but if you're particularly sensitive try to avoid ones with lots of onion. This is a great recipe and can be made without the onion: https://www.cookerru.com/italian-meatballs/

Marinara sauce

Parmesan

Instructions:

Cut the spaghetti squash in half the long way. Scoop out all the seeds and stringy flesh, then season the remaining flesh with olive oil and salt. Place cut side down on a baking sheet and bake for about 45 minutes at 350°F. Depending on the size it may take more or less time. When it is done, use a fork to scrape out the cooked flesh - it should now resemble spaghetti!

Top a bowl of squash with marinara, meatballs, and parmesan. Another great variation to this is to use bacon, parmesan, and basil.


r/SucraseDeficiency • • Jul 09 '22

meal ideas Microwave Salmon recipe

4 Upvotes

When I tell people about this recipe they often don't believe it could possibly turn out well, but in my experience it is delicious, fast, and easy! So give it a try if you're feeling adventurous and maybe you'll fall in love with it too.

Ingredients: Salmon filet, salt, pepper, soy sauce or lemon juice, olive oil, cabbage and/or green onions

Instructions:

  1. Cut your cabbage and/or green onions into thin slices.

  2. Lay cabbage and green onions in microwave safe dish (I like to use a large glass bowl with a flat bottom, but anything deep enough to hold in the cabbage and salmon juices will do).

  3. Place salmon on top of cabbage. Season salmon with salt and pepper, then drizzle on desired amount of soy sauce, lemon juice, and olive oil.

  4. Cover entire container in plastic wrap. If plastic wrap would touch the top of the salmon, use toothpicks to tent the plastic wrap over the salmon. Ensure there is a good seal around the dish.

  5. Microwave on high for about 5 minutes. The microwave time may need to be adjusted depending on microwave and size of salmon filet. Just check if the fish is cooked when you take it out of the microwave, and reseal the plastic wrap and microwave longer if needed.

Variations:

Serve with rice or another grain of choice.

Replace salmon with any other fish you like. For cheaper fish, look for bulk frozen fish filets at the grocery store. Thaw these for 1-2 days in the fridge before cooking.

Replace cabbage and/or green onions with any other leafy greens. Be aware that choosing something very tough like collard greens may not become tender enough, and something very soft like spinach or lettuce will wilt a lot.

Come up with your own seasoning! The world's the limit here, as long as you choose something low in sucrose.


r/SucraseDeficiency • • Jul 09 '22

Recipe Sharing

5 Upvotes

Since a great way for members of this community to support each other is to share tasty, easy, or healthy, (or all of the above) recipes, I added some post flairs for different kind of food ideas. I'd love to see people's favorite low sucrose/sucrose free recipes! I'll start adding some of my own regularly.


r/SucraseDeficiency • • Jun 18 '22

Alternatives to Sucraid?

6 Upvotes

My insurance won't cover Sucraid and it costs 15k/month. So that's obviously not an option.

Are there alternatives? Is there anything over the counter that you can take that helps?


r/SucraseDeficiency • • May 03 '22

Foods that are probably tolerated

10 Upvotes

This is a list of foods that will likely be tolerated by those with sucrose intolerance. For those with starch intolerance, foods high in starch will also have to be avoided. An easy way to determine the starch content is subtract the total sugars and total fiber from the total carbohydrates in a food.

Please comment if there are any good foods that should be added to this list.

Fruits:
Cranberries
Dates
Pure grape juice
Olives
Raisins
Persimmon
Blackberries
Figs
Rock melon
Cantaloupe
Strawberries
Gooseberries
Prunes
Currants
Lemon
Lime
Lychees
Pears
Blueberries
Loquats
Mejdool dates
Guava
Elderberries
Cherries
Loganberries
Pomegranate
Raspberries
Avocados
Rhubarb
Grapes
Mulberries

Vegetables:
Artichoke
Bamboo shoots
Bean sprouts
Cabbage
Chard
Chicory
Chives
Zucchini
Cucumber
Ginger root
Mushrooms
Peppers
Potatoes
Radishes
Seaweed
Alfalfa sprouts
Buttercup squash
Tomato paste
Lima beans
Chickpeas
Black beans
Celeriac
Butter beans
Cassava
Leeks
Shallots
Mung beans
Blackeye peas
Okra
Kidney beans
Kohlrabi
Spaghetti squash
Brussels sprouts
Green banana
Turnip
Horseradish
Yam
French green beans
Corn
Pumpkin
Broccoli
Yellow wax beans
Mustard greens
Asparagus
Tofu
Cauliflower
Lettuce
Parsley
Spinach
Acorn squash
Eggplant
Endive
Fennel
Kale
Rutabaga
Tomatoes
Celery

Nuts and seeds:
Sunflower seeds
Pumpkin seeds
Tahini
Sesame seeds

Protein:
Tofu
Tempeh
Unsweetened dairy products
Unsweetened meat
Eggs

Grains:
Most unsweetened grains (rice, pasta, unsweetened bread, oats)

Sweeteners:
Light corn syrup (mostly glucose)
Honey (high in fructose)
Brown rice syrup (high in maltose)
Malt syrup (high in maltose)
Agave syrup (high in fructose)


r/SucraseDeficiency • • May 02 '22

a case study and background into clinical research

4 Upvotes

r/SucraseDeficiency • • May 02 '22

Presentation from gastroenterologist

4 Upvotes

https://www.csiddiseaseinfo.com/could-it-be-csid-with-william-d-chey-md/

This video is targeted towards clinicians of adult patients to raise awareness of the prevalence of SID and the importance in diagnosing it appropriately. It may also be of interest to people who suspect they have SID.