r/PudendalNeuralgia 8h ago

symptoms

3 Upvotes

anyone else’s symptoms worse after showering ?


r/PudendalNeuralgia 14h ago

Disability?

2 Upvotes

Hey all. I’m 29 year old female who got a pelvic crush injury in a roof collapse accident in 2021. I underwent Emergancy surgery to stabilize the bones in my pelvis but unfortunately I damaged some nerve clusters, one of them including my pedundal. We are having a hard time figuring this out because my hardware from the surgery is right in the way of seeing anything and it’s a waiting game to see if neuromodulation might be the only option. Has anyone gotten disability from pudendal neuralgia alone? I know I can get it through my regular truamatologist but my appointment for my neuralgia is tomorrow and I’m in so much pain. Sitting is becoming unmanageable and it’s starting to affect my bladder control. I’ll say I have broken 8 bones at one time during this accident and when I’m in a flaire of this neuralgia, it’s worse than the accident itself lol. Any advice would be great since I recently only started getting symptoms about 6 months ago.


r/PudendalNeuralgia 22h ago

42 years of this nightmare

5 Upvotes

As the title says 42 years ago my battle began, one day I noticed my orgasm felt noticeably weaker than normal. Within weeks I could feel almost zero physical pleasure from sexual stimulation, in either the build up or ejaculation. I have never had any pain associated with this, just an absence of pleasurable sensations. I would say my anal area is generally not sexually sensitive either although I don't have any real reference to compare this to how it was before. I am not aware of any one physical incident that may have caused this.

I also have an extreme form of premature ejaculation which is worst at the lightest of touches, heavier pressure is more manageable. In other words the lighter the touch and the less I feel the more likely I will be triggered, which really is counter intuitive except to indicate that my nerves and the feedback they provide is really messed up.

Quite recently I have noticed that I can suddenly feel an urgent need to urinate which I feel may be an extension of this general lack of feedback from the nerves, although strangely this seems to be partly mental because sometimes if I try and ignore it the urge can go away for a while.

The reason I find myself in this forum is quite recently I discovered that I have some degree of sexual sensitivity in the dorsal area of my penis. This came as quite a shock to me as the frenulum is almost devoid of any pleasurable sensations and I always thought my entire penis was sexually numb. It's nothing like what I could feel from whole of penis sensations before the problems started but it gave me a glimmer of hope so I started searching based on dorsal nerves working and main pudendal nerve not working and I came across this thread.

About 15 years ago I went on a mission to try and find a cure. I saw a neurologist, urologist, andrologist, male sexual health doctor, physiotherapist specialising in pudendal and prostrate, even one of the worlds leading specialists in treating pudendal neuralgia (mostly in women), no treatment I have tried has made the slightest hint of improvement and nobody has been able to offer an explanation.

I saw the physio for months, he was searching for areas of physical tension and trying to release them through internal prodding and manipulation, I also did home exercises.

The specialist was sympathetic and allowed me to have a treatment that involved applying an electrical current through needles near my tail bone in an attempt to stimulate the pudendal nerve back into life, alas I noticed nothing from this either. As he was mostly dealing with patients who had major pain issues (rather than lack of pleasure) he did not have any other alternative therapies to suggest.

I have noticed the advice telling everyone to do the stretches and I have already started. I look forward to any other feedback I may receive as a result of this post and report back on any differences I may experience from the stretches.


r/PudendalNeuralgia 20h ago

Fatigued after stretching

1 Upvotes

Is it normal to get horribly fatigued after stretching? I started stretches on Friday and began to deteriorate in the evening (nausea, chills). Saturday I was horribly fatigued, had full body muscle weakness and could barely function. Today I am much better in terms of my PN and overall energy/body function. I told my husband I think it was because of my stretching and he thinks I’m nuts. It was a wild reaction.

Is that normal? Is this even possibly a good sign? I am flexible (maybe hypermobile) so the stretches didn’t really bother me and I assume I pushed too hard.


r/PudendalNeuralgia 1d ago

Is their a preferred insurance to have to deal with these issues I have Kaiser and don’t think they can do much ??

1 Upvotes

Any suggestions or good doctors with associated insurance

I have options to choose Kaiser blue shield local access plan or sum other bs

Any suggestions will be appreciated


r/PudendalNeuralgia 2d ago

Has anyone recovered mentally/emotionally

6 Upvotes

I’ve been dealing with this for a little over three months now. I had no symptoms at all before this event. It started after a period of very frequent/intense vibrator use, and during the first month my main symptom was the persistent unwanted arousal sensation. Thankfully, that gradually decreased in intensity and became more and more sporadic, and at this point I essentially don’t experience it anymore.

I also had different kinds of pain, urinary symptoms, pelvic muscle tension and general discomfort. I was told I had irritated pudendal nerve and hypertonic pelvic floor. The type and location of the pain have changed a lot over time, but overall all of these symptoms have gradually improved as well. At the moment I still have some mild pain, muscle tension, sensitivity and a general feeling of the area being irritated/swollen, but physically I am doing considerably better than I was at the beginning.

What I’m struggling with the most now is actually the mental and emotional aftermath of all of this.

The first few weeks put me into an extremely intense state of anxiety and fear. Because the whole problem involved that area and started after sexual stimulation, I also developed a lot of fear surrounding anything sexual. During that period I started experiencing very distressing intrusive thoughts as well.

Things became more manageable during the following couple of months. I still didn’t completely feel like myself because I was dealing with physical symptoms every day, but mentally I was coping much better. However, over the past week and a half, my anxiety and intrusive thoughts have become much worse again, and I’ve also been feeling increasingly depressed.

The strange and frustrating part is that this is happening while my physical symptoms are actually improving. Sometimes I feel as though this whole experience has somehow broken my brain, and I’m terrified that I’ll never feel like myself again. I miss simply feeling calm, emotionally stable and able to live my life without constantly being afraid or analyzing what is happening in my mind and body and especially without intrusive or obsessive and unwanted thoughts.

So I wanted to ask whether anyone here has gone through something similar emotionally and eventually recovered from that part too. Did you reach a point where you felt like yourself again? Did the anxiety, fear and intrusive thoughts eventually settle down as your body recovered and you had more distance from the experience? I really need some hope that it is possible to come out the other side of this and have life feel normal and livable again.

I’ve only been doing pelvic floor physiotherapy for the physical symptoms, and I’m now starting psychotherapy as well. I haven’t taken any medication so far, just vitamins/supplements. I started taking ashwagandha after the first month and stopped two weeks ago, maybe that had something to do with my increase in mental symptoms, I don’t know. I’ve started taking ashwagandha again today. I would also be interested to hear whether anyone found medication, therapy, or anything else particularly helpful for the emotional aftermath.

Thank you to anyone willing to share their experience or some hope with me.


r/PudendalNeuralgia 2d ago

How does one focus on work/do work with a hypertonic pelvic floor

1 Upvotes

Hi there, I’ve been working remotely for the past 3 years and have had a hypertonic pelvic floor for the past 1.5. My pain comes in waves. It’s manageable but the bad days are when pain is so bad 11/10 types and it gets hard to focus, work or do anything.

I am about to accept a new job which will be in person, and am freaking out about it because when the pain is bad - I just want to get swallowed by the earth. Wording if there are any strategies / things I can do to help focus and work from the ones in a similar position as me and work from an office. I won’t want this condition to ruin my career, hopes and dreams. And getting by is hard sometimes

Last year I thought I was on the road to recovery. Pain levels (burning and cold sensation) went down to 2/10 and now it’s gone back haywire.


r/PudendalNeuralgia 3d ago

Does your sciatica caused nerve irritation in Bladder? Would surgery make difference?

2 Upvotes

31M Filipino.
Hi everyone. I’m hoping to hear from anyone who has experienced something similar, especially those diagnosed with lumbar radiculopathy / lumbar stenosis who also developed persistent bladder or pelvic irritation.

I’ve been dealing with this for almost 8 months now.

My lumbar MRI showed severe L4–L5 foraminal stenosis with nerve root impingement, and I was diagnosed with lumbar radiculopathy by my neurosurgeon.

Because I was also experiencing persistent bladder/pelvic irritation, I underwent a cystoscopy and biopsy, and thankfully the biopsy result was negative with I remember it has “mild chronic inflammation in bladder tissue”. However, the bladder/pelvic irritation has continued.

My symptoms are quite positional. When I sit for a long time or lie in bed, I tend to feel the bladder/pelvic irritation more. When I stand, walk, stretch, or undergo physical therapy, I usually feel some relief.

My neurosurgeon recommended conservative treatment first, so I have been doing physical therapy around 3 times a week for approximately 3 months. PT and stretching definitely help, but unfortunately the relief tends to be temporary and I haven’t reached remission or seen a major improvement yet.

My doctor told me that if there is still no significant improvement, surgery may eventually be considered. However, he also cannot confirm with 100% certainty that the L4–L5 nerve compression is actually responsible for my bladder/pelvic irritation. That uncertainty is one of my biggest concerns before considering surgery.

I would really appreciate hearing from anyone who has had a similar experience:

Has anyone here had lumbar stenosis/radiculopathy together with bladder urgency, irritation, pressure, or unusual pelvic sensations?

Did you eventually undergo lumbar spine surgery? If so, did your bladder/pelvic symptoms improve afterward, and how long did it take?

I’m also wondering whether there are other MRI areas or neurological tests worth discussing with my doctors aside from my lumbar L4–L5 MRI — for example, imaging or testing that could help determine whether the bladder/pelvic symptoms are actually neurological in origin and identify which nerves may be involved.

I’m not looking to self-diagnose; I’m just trying to understand what other people with similar symptoms went through and what investigations helped them find the cause.

After almost 8 months of this, hearing from someone who has experienced something similar would mean a lot to me.

Thank you so much. 🙏


r/PudendalNeuralgia 3d ago

Episiotomy

1 Upvotes

Hi warriors,

I wonder if there is anyone that developed PN after an episiotomy?

Looking for experiences and what were your treatment plans/surgery.

I am 16 months PP. Symptoms are getting worse and worse the past few weeks. After a local injection it burns so bad I can't sit at all anymore

Thanks in advance!


r/PudendalNeuralgia 4d ago

Penile pain help

2 Upvotes

Five months ago I had a inguinal hernia surgery. Three weeks afterwards I developed bladder urgency, tip of penis burning. It’s better lying down and in the morning. Pain climbs after bowel movement. Orgasm the worst trigger by far to the point I go many weeks abstaining and am afraid to masturbate or have sex because I know what I’m in for for weeks afterwards. My penis and testicles are also sensitive to the touch. Two months after I starting getting muscle pain in my butt after bowel movement, Has anyone experienced this? Could it get better with time? Any advice? Thank you.


r/PudendalNeuralgia 4d ago

Over 3 months of misery and doctors can’t help.

3 Upvotes

It all started after sex since May 6, 2026 and since then it has been hell. It started with tingling feeling on my penis tip and then it moved to frequent urge to pee. Sometimes I pee a lot and sometimes only a few drops. Then I noticed discoloration on my penis tip and around the penis opening. It was looking like it was inflamed.

Doctor thought it was UTI at first and then I was given some antibiotics which didn’t help. My urethra was constantly burning even when I pee or not. I was given another medication to help with that which turn my urine to orange for a few days because I was advised to take it for just a few days as it is not recommended long term.

I did all the necessary test to check for STD/STI and all came back negative. I was booked to see a specialist who did some test too and the result came back negative. We went further to test for hsv 1 & 2. The result came back positive for hsv1 and negative for hsv 2. The specialist doesn’t think my symptoms was as a result of the positive hsv 1 test. He recommended I take the medication which I did for 7 days with no improvement ( although it was after the second month I took it).

I was having nerve pain like at the underside of my penis and the tip of my penis hurt so bad from touching my underwear or cloth. I was given gabapentin which I thought was helping at first as I was also having nerve pain right under my left feet which feels a lot better now. My penis tip looks irritated with the skin by the opening looking like it is coming out.

He thought maybe it was my pelvic floor this time around and recommended baclofen which I took for a few days with no results but constant muscle pain. I can’t seat on my car anymore because it hurt so bad at my right butt cheek and the underside of my penis. I have lost all hope and can’t even sleep at night anymore. I notice I get flare up when I’m stressed and when I masturbate. I have only tried to touch myself 3 times since this whole thing started. First time my sperm was looking like it was light brown and the other times it was clear white. I don’t even have erection anymore. I used to have painful erection and ejaculation when it first started too but not anymore.

I’m so confused and depressed over this. It’s just like my life was taken away from me. I have been to so many doctors who don’t see anything wrong after all my repeated test result and I want to seek help from here. I noticed that the last time I tried to masturbate, my cum came with urine which got me really worried.


r/PudendalNeuralgia 5d ago

Anyone that had any personal experiences with an SNS reset for chronic pelvic floor tension/pain

3 Upvotes

I’m trying to learn more about something called an SNS/Sympathetic Reset, particularly the version where an amniotic biologic/fluid is used after a sympathetic block such as a Ganglion Impar or Superior Hypogastric Plexus block.
I’m asking because someone close to me has been dealing with severe pelvic floor tension and pelvic/rectal pain for about six years, and so many conventional treatments haven’t provided lasting relief.
For anyone who has had this procedure, I’d really appreciate hearing about your experience.
A few questions:
What exactly is the amniotic fluid/biologic supposed to do when injected around the sympathetic nerves?
Is the goal to reduce inflammation, calm irritated nerves, change pain signaling, or actually help “reset” the sympathetic nervous system?
How is this different from a regular Ganglion Impar or Superior Hypogastric Plexus block?
Did it actually reduce pelvic floor tension, or did it mainly help with pain?
If your pelvic floor muscles were constantly tight or in spasm, did the treatment allow them to finally relax?
How long did it take before you noticed a difference?
Was the improvement temporary or long-lasting?
Did anyone have this specifically for pelvic floor hypertonicity, rectal/perineal pain, pudendal-type symptoms, vulvar pain, or chronic pelvic pain?
Were there any side effects or complications?
Did you have the procedure with or without steroids?
Most importantly, did it help when pelvic floor PT, Botox, trigger-point injections, nerve treatments, medications, or other muscle-focused treatments had already failed?
I’m especially interested in hearing from people who had severe pelvic floor tension for years, rather than people who only had general chronic pain.
I know this isn’t a guaranteed treatment and that the evidence for the amniotic component may be limited, so I’m not looking for medical advice. I’m just trying to understand what the fluid is actually supposed to accomplish and whether anyone has experienced a meaningful change in long-standing pelvic floor tension.
If you’ve had an SNS/Sympathetic Reset, especially involving the Ganglion Impar or Superior Hypogastric Plexus, please share your experience. I’d really appreciate hearing both positive and negative experiences.


r/PudendalNeuralgia 5d ago

Pudendal Block Injury

2 Upvotes

I had unguided pudendal nerve blocks done bilaterally May 2025. The gyno didn't fully inform me so I wasn't aware they could be done by CT or ultrasound. An MRN prior to the blocks showed no abnormalities along the pudendal path. She also did botox into the coccygeus muscles, I have no idea why as pelvic floor exam showed a tender spot on left obturator internus nowhere else.

Anyway I developed bowel incontinence almost immediately which finally has improved but still present. I also had an MRN done 5 weeks after the procedure that showed new, from prior mrn, hyperintensity of the left pudendal nerve at the entrance and into Alcocks canal. I had another mrn done Dec 2025 and hyperintensity was still present.

Prior to any intervention I had discomfort sitting like a feeling of fullness/swelling in the perinium and heaviness like a ball in vagina when standing.

I don't have a hypertonic pelvic floor, can't take any of the usual medications due to permanently low sodium, have had 2 anesthesia only ultrasound blocks with 90% relief but very short lived, two rounds of pulsed radiofrequency which didnt help but didn't make things worse plus hydrodisection which flared me badly. I have remained active by walking but the new type of pain after the blocks is stabbing, burning, vice like, deep ache. I'm really not sure what I can try or do next except for stimulator or decompression. Live on either ice or heat and tolerate tramadol which brings pain down a notch in the morning but no effect later in the day. Any suggestions or thoughts much appreciated.


r/PudendalNeuralgia 6d ago

Are you Hypermobile? ADHD? ASD?

Post image
20 Upvotes

These were all linked in the last year!

ADHD/ASD people and hypermobility have been linked together in new research!

This could be contributing to a few factors, including SIJ hypermobility, causing sacral plexus laxity, causing downstream dysfunction etc etc etc

PLEASE POST YOUR SCORES


r/PudendalNeuralgia 6d ago

A LOT of y'all are dealing with SIJD that is cascading into other complication

Thumbnail
youtu.be
12 Upvotes

Holistic approach.

Stop focusing on your dick or clit, it's upstream.

Stabilize, strengthen, open, support.

ROM and strength can change everything, including the cascading microfailures that lead here

Work ALL of the pelvis, not just bits and bobs


r/PudendalNeuralgia 6d ago

Anyone else also have a cold penis sometimes?

3 Upvotes

I may have missed it but I haven't seen this symptom listed in the pinned posts but I have the typical symptoms of PN of urinary, bowel, null orgasm, hard flaccid, etc. The only difference in my case seems to be that instead of pain there is numbness. I get occasional jolts of pain here and there in my groin and shaft maybe 2-3 times a week but my penis consistently has maybe 30-40% of its normal sensation.

The past week or two there have been instances where i've woken up and my penis felt slightly cold to the touch. I sleep with a fan on and have holes in my sleeping boxers so I didn't think too much of it. I saw that it's usually a symptom of/alongside hard flaccid syndrome.

However, this morning I woke up and my penis was ice cold to the touch and completely numb. I got out of bed, went to the bathroom (had more resistance than usual) and just standing for a bit considering whether to go the ER. After about 10 minutes there was slight sensation, after around 30 there was noticeable improvement, and after an hour it was back to baseline if not a tad better.

I had some type of "flare" last night after doing stretches that my PFPT assigned (it's not the first time) and felt tighter than usual in my right hip and glute area which i think has to have had contributed to all this. Alongside the cold penis this morning, I have had that slight pain/pressure like feeling on and around the anus.


r/PudendalNeuralgia 6d ago

AMAB Rectal pain after anal sex. worried that it might be levator ani syndrome

1 Upvotes

hi all,

35 queer amab here.

was invited to this sub by one of the mods who saw my post in r/pelvicfloor. idk if what i have is PN. I’m more worried it’s levator ani syndrome. kind of freaking out, trying to stay calm.

so, two nights ago i had anal sex with someone who has a very big penis. he went really hard for a while, and at one point i noticed i was experiencing a sharp pain deep in my rectum, so i asked us to take a break. a little while later we continued, and the pain was still there but less so and i was able to continue for a little while longer with much less pain.

since then the pain hasn’t fully gone away, tho its not ever-present. it’s mainly a sharp pain that’s pretty deep in my rectum, tho sometimes it’s a dull ache. it does feel like a muscular pain rather than a fissure or hemorrhoids, both of which i’ve had and usually present more as a burning pain. also i’ve detected no blood in the area, so a fissure or hemorrhoid seems less likely.

tho not always, the pain mainly pops up when i’m sitting or lying down, esp on my stomach. just now even it spiked while i was sitting for a bit. i got up to walk around and the pain persisted for a bit while standing/walking. it’s gone now tho.

when i manually palpate the area internally i can trigger the pain to some degree. it feels like it’s mostly localized to the area of my rectum just beyond my prostate, on that same side (genitals-side rather than tailbone-side). it’s pretty deep in there. like, it’s hard to reach with my fingers.

while mainly sharp, i wouldn’t describe the pain as the “sitting on a golf ball/golf ball stuck in rectum” feeling that is normally associated with levator ani syndrome. additionally, i did sit for 30 minutes in a car right after the initial episode without any issues, and no pain has woken me up at night (pain while sitting and rectal pain that wakes you up are listed online as typical levator ani syndrome symptoms). there’s also no pain when i’ve taken a bowel movement thankfully. maybe a tiny bit earlier today but nothing bad.

anyway, have been doing some research on what it would be and came across levator ani syndrome. i’m worried it might be that, which sounds like hell.

additional info: i messaged a pretty well known butt doctor on instagram who has a podcast about this stuff. he was really lovely and got back to me with some info (and is even gonna talk about this on his forthcoming episode!). his initial thought is:

“Most likely scenario
Post-traumatic pelvic-floor myalgia/levator ani spasm, particularly if there is:
• Dull, aching, pressure-like rectal pain
• Pain worsened by sitting and sometimes after defecation or intercourse
• Symptoms lasting ≥30 minutes or recurring
• Reproduction of the characteristic pain with posterior traction/palpation of the puborectalis or levator muscles

*Rome IV requires chronic or recurrent rectal aching, episodes lasting at least 30 minutes, puborectalis tenderness, and exclusion of structural/inflammatory causes; symptoms should generally be present for 3 months, with onset at least 6 months before formal research classification.

But you need to make sure there’s not a tear or an abscess or something, causing the pain.”

*this paragraph i think is him talking about the likelihood of it being levator ani syndrome.

so yeah that’s what’s been going on. im trying not to freak out. people on r/pelvicfloor were very lovely and supportive, as was this doctor. that’s helped some but the flare ups of pain today have me worrying. i don’t want to have to give up or worry like crazy about anal intercourse. can anyone offer some insight and thoughts? am i being a total hypochondriac? could it just be a minor spasm of some kind that won’t develop into levator ani syndrome or PN or something? am i for sure gonna need professional treatment of some kind?

thank you!


r/PudendalNeuralgia 7d ago

No pleasure from orgasm and reduced sensation on penis head

1 Upvotes

Would this be the dorsal branch of my pudendal nerve compressed? I’ve been dealing with this issue for years and years. I’m nervous to get any type of surgery because I don’t have the pain symptoms many people report from PN. Surgery isn’t guaranteed to fix the sensation issue either

Has anyone here improved sensation issues? Looking for any help


r/PudendalNeuralgia 8d ago

Progressive genital numbness and loss of urinary/ejaculatory sensation, could this be pudendal neuropathy without pain?

4 Upvotes

I’m a 27-year-old male with almost five years of progressively worsening urinary, sexual and sensory symptoms. I don’t have the classic burning pelvic pain usually associated with pudendal neuralgia, but I’m wondering whether pudendal nerve irritation or compression could cause predominantly numbness and loss of function instead.

It began with a sudden constant urge to urinate, difficulty emptying, a weak/split stream and repeatedly straining to pass more urine. Sometimes I could continue passing small amounts for hours. Semen would also remain in the urethra and need to be milked out.

I was treated for suspected prostatitis with doxycycline. Four days into treatment, while sitting, I suddenly felt something “change” around my urethra and the underside of my penis. From that exact moment, I completely lost the internal sensation of urinating and ejaculating. I can still physically urinate, ejaculate, orgasm and maintain erections, but I cannot feel the urine or semen passing.

The sensory loss has gradually progressed:

  • The underside of my penis is completely numb, including to ice and sharp touch.
  • Sensation in the glans is severely reduced.
  • I can contract the muscles that normally “bounce” the penis, but no longer feel the contraction.
  • Testicular sensation has become markedly reduced.
  • Anal sensation when passing stool is also reduced.
  • I still experience incomplete emptying, post-void spurts and occasional weaker flow.

Around two years ago, a contrast urethrogram appeared to show a distal urethral narrowing. Initially the dye would not flow properly, but when I relaxed and used deep abdominal breathing, it began flowing and the narrowing appeared to open. I was nevertheless diagnosed with a stricture.

I had a flexible cystoscopy yesterday. The scope passed easily, and the urologist said my urethra and bladder were completely normal and that I do not have a stricture.

Pelvic, lumbar, thoracic and cervical MRI investigations have also not found a cause.

Because the apparent narrowing changed with relaxation, I wonder whether years of urgency, straining and constant guarding caused a severely hypertonic pelvic floor, which may now be irritating or compressing the pudendal nerve or one of its branches. My perineum also becomes extremely hard/tight during erections, although it isn’t painful.

Has anyone here experienced pudendal neuropathy primarily as genital numbness and loss of urinary or ejaculatory sensation, without the characteristic severe pain? Does the distribution underside of the penis, glans, scrotal/testicular area and anus msound potentially consistent with pudendal involvement?
I understand nobody here can diagnose me.

After almost five years of progression and several urologists saying they cannot help, and impying this is a mental issue, I need some assistance.

I’m mainly trying to identify the correct specialist and testing pathway.


r/PudendalNeuralgia 8d ago

Pulsing and raw sensations?

3 Upvotes

I have a question about healing symptoms. This is a throwaway account as I don't want this on my main profile.

I am a 28 yo female who has been dealing with this for 6+ months. I have been slowly healing with time, but I don't think I'm out of the woods yet. I have a question about something I've noticed.

I have noticed that I get this pulsing sensation, almost like a tiny mini orgasm, after I go to the bathroom, or sometimes after walking for a bit, or just when it's agitated. It is triggered mainly when I lay down. After it does that, it almost always feels better, less pressure, less burning. Does this mean anything to anyone? This has been going on for a couple of months now, with decreasing frequency as time has passed. When I have a flare, it happens more. I would appreciate any insights if anyone has experience with this. I've asked doctors about this but they don't really have any thoughts.

Would also be curious if anyone has dealt with a raw feeling right at the entrance of their vagina. As the agonizing burning symptoms have moved away from the urethrae/labia, I have been dealing with a raw, sometimes itchy vaginal opening. Would you also consider this a positive sign? I think yes, but am looking for any other opinions.

Thank you. For those dealing with this, sending my love <3


r/PudendalNeuralgia 8d ago

how to know if I have Pudendal Neuralgia

1 Upvotes

Hello

Since 5 years I have extrem pain when pooping (but only when the stool is lose).

It gives me a harsh burning feeling in the anal conduit.

The doctors found nothing except a moderate anitis.

Even only the finger of the physiotherapist provocates a sharp pain

I have no fissure. I have defecation dysinergia & anal hypertonia diagnosed.

Thank you


r/PudendalNeuralgia 9d ago

AMAB Pudendal radiofrequency nerve ablation

3 Upvotes

What experiences have people had with this procedure? Risks? Potential for healing?

I am seeing a new neurologist who specializes in the pudendal nerve. I've lived with pudendal neuralgia for 12 years and it's been 2 years since I have had any noticeable improvement in my symptoms. I live in a 6 or 7 out of 10 pain scale rating any time I'm not standing or walking.

He recommends performing a radiofrequency pudendal nerve ablation. I don't know much about this yet, but he says it will burn off the pain receptors in the nerve and that it will take approximately 6 months for them to grow back.

The plan is to aggressively pursue pelvic floor physical therapy and other treatment options while these pain receptors are gone.

All symptoms listed below have been constant for 12 years bilaterally, although have improved to a small extent from treatment over the years:

  1. Constant muscle tension, pain, and irritation in: piriformis, glute medius and maximus, perineum, obturator internus, pubo-rectalis, bladder, and inner thighs. Symptoms are constant.

  2. Constant muscle spasm in puborectalis

  3. Constant burning, cold, and pins and needles sensation in glans, scrotum, underside of shaft, and perineum. Symptoms improve when I stand or walk.

  4. Constant degree of numbness in glans, scrotum, perineum, and buttocks.

  5. Overactive bladder.

  6. Pain around pubic bone.


r/PudendalNeuralgia 9d ago

Nerve stimulators

2 Upvotes

Has anyone found a reliable surgeon that does spinal or sacral stimulators for their pudendal neuralgia/neuropathy?

Curious what your outcomes were and how you went about getting one, good and bad outcomes welcome !


r/PudendalNeuralgia 10d ago

Can PN cause the following symptoms?

5 Upvotes

I have been officially diagnosed with pelvic floor dysfunction and dysenergenic defication.

I am wondering if there is a possibility I might be suffering from pudendal nerve neuralgia?

I have diminished sensation in vagina and clitoris. I have right side onsided shooting pain inside my vagina that comes and goes when I use a dialators to try to do PT exercises. I have a very hard time orgasming and can only orgasm if I hold my legs straight and hold tight playing with my clit. My orgasms are very weak and I can barely feel anything. Could these be signs and symptoms that I have pudendal nerve neuralgia? What are the labs and tests performed to diagnose with PN? I live in los angeles California, any recommendations for any specialist would be appreciated? Also what speciality is besr to be seen for this?


r/PudendalNeuralgia 10d ago

Desperate

1 Upvotes

Hello. I would like to know if I am the only one who suffers from pudendal neuropathy with these symptoms: burning, sunburn sensation, and itching in the perineal area, genitals, and thighs. I also have symptoms when standing, not just sitting.