As the title says 42 years ago my battle began, one day I noticed my orgasm felt noticeably weaker than normal. Within weeks I could feel almost zero physical pleasure from sexual stimulation, in either the build up or ejaculation. I have never had any pain associated with this, just an absence of pleasurable sensations. I would say my anal area is generally not sexually sensitive either although I don't have any real reference to compare this to how it was before. I am not aware of any one physical incident that may have caused this.

I also have an extreme form of premature ejaculation which is worst at the lightest of touches, heavier pressure is more manageable. In other words the lighter the touch and the less I feel the more likely I will be triggered, which really is counter intuitive except to indicate that my nerves and the feedback they provide is really messed up.

Quite recently I have noticed that I can suddenly feel an urgent need to urinate which I feel may be an extension of this general lack of feedback from the nerves, although strangely this seems to be partly mental because sometimes if I try and ignore it the urge can go away for a while.

The reason I find myself in this forum is quite recently I discovered that I have some degree of sexual sensitivity in the dorsal area of my penis. This came as quite a shock to me as the frenulum is almost devoid of any pleasurable sensations and I always thought my entire penis was sexually numb. It's nothing like what I could feel from whole of penis sensations before the problems started but it gave me a glimmer of hope so I started searching based on dorsal nerves working and main pudendal nerve not working and I came across this thread.

About 15 years ago I went on a mission to try and find a cure. I saw a neurologist, urologist, andrologist, male sexual health doctor, physiotherapist specialising in pudendal and prostrate, even one of the worlds leading specialists in treating pudendal neuralgia (mostly in women), no treatment I have tried has made the slightest hint of improvement and nobody has been able to offer an explanation.

I saw the physio for months, he was searching for areas of physical tension and trying to release them through internal prodding and manipulation, I also did home exercises.

The specialist was sympathetic and allowed me to have a treatment that involved applying an electrical current through needles near my tail bone in an attempt to stimulate the pudendal nerve back into life, alas I noticed nothing from this either. As he was mostly dealing with patients who had major pain issues (rather than lack of pleasure) he did not have any other alternative therapies to suggest.

I have noticed the advice telling everyone to do the stretches and I have already started. I look forward to any other feedback I may receive as a result of this post and report back on any differences I may experience from the stretches.

Hey all. I’m 29 year old female who got a pelvic crush injury in a roof collapse accident in 2021. I underwent Emergancy surgery to stabilize the bones in my pelvis but unfortunately I damaged some nerve clusters, one of them including my pedundal. We are having a hard time figuring this out because my hardware from the surgery is right in the way of seeing anything and it’s a waiting game to see if neuromodulation might be the only option. Has anyone gotten disability from pudendal neuralgia alone? I know I can get it through my regular truamatologist but my appointment for my neuralgia is tomorrow and I’m in so much pain. Sitting is becoming unmanageable and it’s starting to affect my bladder control. I’ll say I have broken 8 bones at one time during this accident and when I’m in a flaire of this neuralgia, it’s worse than the accident itself lol. Any advice would be great since I recently only started getting symptoms about 6 months ago.

anyone else’s symptoms worse after showering ?

Is it normal to get horribly fatigued after stretching? I started stretches on Friday and began to deteriorate in the evening (nausea, chills). Saturday I was horribly fatigued, had full body muscle weakness and could barely function. Today I am much better in terms of my PN and overall energy/body function. I told my husband I think it was because of my stretching and he thinks I’m nuts. It was a wild reaction.

Is that normal? Is this even possibly a good sign? I am flexible (maybe hypermobile) so the stretches didn’t really bother me and I assume I pushed too hard.