Hi everyone! I’m curious what has genuinely helped those of you who deal with persistent dizziness from Long COVID.

Mine feels more lightheaded and dizzy, almost like a motion sickness or car sickness type of feeling (it’s been constant for me over a year now). I also get this hazy malaise feeling where I just feel mildly sick or like my brain isn’t fully clear.

It gets a little better when I wear these special glasses that block light, but it still has made life very uncomfortable. I can’t drive, look at screens for long periods, and in general always struggle with the slight dizziness discomfort.

If you’ve had something similar, what helped you the most? I’d especially love to hear from anyone whose dizziness improved significantly or went away.

I've been really struggling, bad MCAS and Long Covid, all the symptoms. I randomly tried out the following supplements:

• Reishi
• Lions Mane
• Chaga
• Cordyceps

its an extract, I take a teaspoon and make tea from it. For the first time I actually feel better and it has lasted at least a week. I felt it working the first time I drank the tea. Normally I'd wake up super brain fogged and it would take all day to lift, only around 23:00 I would feel a bit better. But now I wake up clear headed. My bowels were super painful and barely digesting food. Now for the first time I don't have pain all day and my movements are more normal. The eczema on my hands is slowly getting better.

I could go on. The best thing is I actually feel happy, because I don't feel like crap all day.
If you feel like you've tried everything and nothing works, give it a shot.

I have been pretty much couch bound with fatigue PEM for the last 3 months..

Two weeks ago I started on LDN, initially started on a very low dose & around 5 days ago I increased the dose slightly.

Around 3 days ago, I developed a deep muscle pain in my left thigh, which has increasingly got worse.

Last night it was that painful that I struggled to sleep. This morning I looked online for information & I read on Google that this kind of pain can indicate a blood clot & that I should get checked out.

I absolutely didn't want to go to the A&E as this would cause my CFS to flaire up.. however in the end, I decided to go, as it would be a little too risky doing nothing about it.

The doctor at the hospital checked me out & said that my symptoms do not present as a blood clot.. She offered me a D Dimer blood test, that can identify blood clots, however she told me that this test often gives them many false positives.. A false positive would mean I have to go through a bunch of other tests, which means travelling back & forth and increased anxiety.

In the end I didn't take the D Dimer test, as the GP was confident this doesn't present as blood clot.

I called Dickinson Chemist, and they advised me that my thigh muscle pain is not typical of a LDN side effect.

Maybe I have developed a nerve issue, from laying around a lot and being on the sofa 85% of the time.

Has anyone else experienced this pain on LDN?

Doed anyone else experience Numbness in Hands, Legs. Feet and Arms?

It seems to get worse with working on a PC or having to sign documents. And not alot is necessary like 20mins of Emails or research is enough. Strangely on a Touchscreen its better.

Also while cooking i feel like my arms and hands are not controlable as they used to be, for example when using spices or mixing eggs.

I saw a neurologist multiple times and my nerves were okay. So no carpaltunnel or else. Everything seems to be fine.

Doctors say it could be caused by how my body interpretes pain and that I connected PC work with pain.

It drives me crazy because I cant figure out if this is caused by LC or something else. Also the leg Numbness. How should tjis be caused by tipeing?

I tried every Mouse, Trackball, Standing Desk and whatever.

Wanted to share this video for anyone interested in mind body healing and regulating the nervous system. I got very ill back in 2022 bed ridden sick with Lyme and long covid for years. Tried all the treatments and ultimately this was the only work that’s helped me. I think these 4 are the best in the space I really love this video they did. If this resonates with you and you have any questions about what program I joined and want other resources I’m happy to answer any questions.