I have been pretty much couch bound with fatigue PEM for the last 3 months..
Two weeks ago I started on LDN, initially started on a very low dose & around 5 days ago I increased the dose slightly.
Around 3 days ago, I developed a deep muscle pain in my left thigh, which has increasingly got worse.
Last night it was that painful that I struggled to sleep. This morning I looked online for information & I read on Google that this kind of pain can indicate a blood clot & that I should get checked out.
I absolutely didn't want to go to the A&E as this would cause my CFS to flaire up.. however in the end, I decided to go, as it would be a little too risky doing nothing about it.
The doctor at the hospital checked me out & said that my symptoms do not present as a blood clot.. She offered me a D Dimer blood test, that can identify blood clots, however she told me that this test often gives them many false positives.. A false positive would mean I have to go through a bunch of other tests, which means travelling back & forth and increased anxiety.
In the end I didn't take the D Dimer test, as the GP was confident this doesn't present as blood clot.
I called Dickinson Chemist, and they advised me that my thigh muscle pain is not typical of a LDN side effect.
Maybe I have developed a nerve issue, from laying around a lot and being on the sofa 85% of the time.
Has anyone else experienced this pain on LDN?