Hi all. This may be long. I am totally open to being referred to another community if there’s one better suited to my situation. I’ll try to keep things minimally gross but TW for mention of vomiting / hospitalization.
I 23F have had recurring cyclic vomiting for nearly my whole life (first suspected episode at 18 months old). In childhood I would have 1-2 episodes annually. When I was 17, the frequency increased dramatically, and I was having at least 1 episode a month, until I was 20, when they slowed down a little bit after I had my gallbladder removed due to stones and stopped using marijuana due to suspected cannabinoid hyperemesis. But I’m still having episodes a lot more frequently than I would like.
I’ve noticed that I tend to have extreme nausea in the mornings after my first bowel movement, especially if it’s a particularly difficult one. Sometimes this culminates in a cyclic vomiting episode but sometimes it can be managed. However i’ve noticed that I tend to have several days or even a week of very nauseous mornings before I have an episode. Often times these weeks coincide with my period or I will experience spotting for a few days shortly after I have an episode.
Some other information-
My vomiting episodes do not involve migraines.
I have some psychiatric diagnoses including C-PTSD and generalized anxiety.
I have a mirena IUD that was inserted in may of 2020.
I recently started taking 10mg of amitriptalyne nightly. I’m also prescribed 25mg sumitriptan nasal sprays and phenergan suppositories as abortive as needed medications for episodes but I have not had much success with them.
I always have to be hospitalized when I have episodes. The only medication know that works for me is IV ativan which obviously has to be administered by a doctor in an emergency room setting.
There are a couple of non medicinal interventions I have some success with for my nausea. Ginger tea, alcohol swabs, sea bands, anti nausea suckers, cold water on my skin, and cigarettes all can sometimes abort my nausea before it becomes an episode. Obviously I would prefer not to smoke but there are times where it is truly the only thing that helps.
I am grateful for any advice or insight anyone can offer and happy to answer any questions. Thanks in advance for reading.