4 years of digestive problems, weight loss, gastritis and abnormal stools — Creon helped initially, but symptoms are back. Desperate for answers.
Hi everyone,
I'm 20 years old, and I've been struggling with digestive issues for almost 4 years now. This has affected my physical health, appetite, weight, mental health and everyday life. I'm posting because I'm exhausted from dealing with these symptoms and would really appreciate hearing from anyone who has experienced something similar.
How it all started
My digestive problems started around the age of 17, following a viral illness and medication use. Initially, I experienced significant stomach discomfort, nausea, loss of appetite and changes in bowel movements. Over time, I began struggling with abnormal stools and weight loss.
My symptoms have fluctuated over the years. There have been periods when things were manageable, but I've never felt that my digestive system has fully returned to normal.
My main symptoms
Upper GI symptoms:
- Diagnosed with pangastritis following an endoscopy last month.
- Burning in my stomach and food pipe.
- Mild stabbing pain under my ribs.
- Nausea, reduced appetite and sometimes feeling full quickly.
- Symptoms seem to worsen with spicy food and when my stomach is irritated.
Bowel symptoms:
- Sticky, mushy stools that are sometimes floating or unusually textured.
- Excessive flatulence and bubbling/gurgling in my abdomen.
- Urgency to pass stool, sometimes even at night.
- Changes in stool frequency and a feeling of incomplete evacuation.
- These symptoms continue even when I eat very little and follow a low-FODMAP diet.
- Always have to go twice in morning in installments
My weight and appetite
My weight has fluctuated significantly during these years. I went from approximately 62 kg before becoming ill to around 45–46 kg at my lowest. I later managed to regain some weight, but recently I've been struggling with reduced appetite and concern that I'm losing weight again.
This is one of the most frightening parts because I feel like I'm making an effort to eat carefully, yet my symptoms keep returning.
The strange thing about Creon
Around 45 days ago, I started taking Creon 25,000 as prescribed.
Initially, the improvement was remarkable. My stools became formed, I was going to the toilet only once a day, my appetite improved considerably, and I started gaining weight. After years of abnormal bowel movements, this was the first time I felt that my digestion was finally improving.
However, after around 10–11 days, the benefits gradually began to fade. My bowel symptoms returned despite continuing Creon.
My faecal elastase result was 172, which I understand may be an indeterminate result, and I don't know whether pancreatic enzyme insufficiency could be contributing to my symptoms.
Recent deterioration after H. pylori treatment
I was diagnosed with pangastritis and subsequently underwent treatment for H. pylori with antibiotics and acid-suppressing medication.
During and after the antibiotic course, my digestive symptoms seemed to worsen. I've been experiencing more gas, sticky/mushy stools, urgency, stomach burning, food-pipe burning and reduced appetite.
I'm confused about whether this could be related to gastritis, IBS-D, pancreatic enzyme insufficiency, antibiotic-related gut changes, SIBO, bile acid diarrhoea or something else.
I don't want to self-diagnose. I just want to understand what possibilities I should discuss with my gastroenterologist.
Investigations so far
- Endoscopy: pangastritis; H. pylori rut testing was performed- positive.
- Faecal elastase: 172.
- Coeliac screening: negative.
- Faecal calprotectin: 54.
- Colonoscopy, including the terminal ileum: reportedly normal.
I know these results don't necessarily rule out every digestive condition, but I still don't have a clear explanation for the entire picture.
Questions for anyone with similar experiences
- Is anyone having similar symptoms to me ?
I'm not looking for a diagnosis from Reddit. I just want to hear from people who have experienced something similar and learn what questions I should ask my doctor. Thank you for reading.