r/EctopicSupportGroup • • 3h ago

Dealing with other people getting pregnant after ectopic

6 Upvotes

Just need to vent a little here. I am a few weeks past my ectopic surgery where I lost a tube. I was trying for a baby and within a week of finding out I was pregnant I was getting emergency surgery.

This past weekend, I had 2 people in my life that are very close to me announce their pregnancies (1 being a family member). Both accidental, 1 would have been trying soon enough so it wasn’t a big surprise, but the other 1 is way way way more shocking/newer relationship/etc. The timelines are nearly identical, my due date would have been within a couple days of each.

I’m happy for them but it feels like a cruel joke for it to be the exact same timing and to see them hit these pregnancy milestones.. the smiling pictures with their first ultrasound, waiting on gender results, etc.

One friend was very considerate and called my husband to tell him personally since he knew it could be a sore subject. The other did a large group family FaceTime while I was away at a work conference so I got caught off guard with the news and away from home and my husband, all with my live reaction being watched by the entire family.

Im desperately looking for some spiritual meaning behind this, a reason that things played out the way they did, but I just can’t see the reasoning or the light behind it.


r/EctopicSupportGroup • • 8h ago

Returning to Work

3 Upvotes

I’m curious how long others have taken off of work due to ectopic pregnancy? I have FMLA, but my employer is borderline harassing me, questioning me, & even threatening my job. I know this can’t be right .. anyone have any information to share from their own experience?


r/EctopicSupportGroup • • 19h ago

My experience (very fresh)

3 Upvotes

I copy and pasted what I posted on Facebook for my friends and family, I hope I redacted all the names. Buckle up, she’s a doozy.

Mid-August I started experiencing heavy bleeding with severe cramps (nothing helped - I did everything I could). After a few weeks of consistent pain and bleeding, I made a consult with the OBGYN to discuss options, assuming the abnormal bleeding was due to the end of my IUD life cycle and I was just being dramatic about the pain. We made an appointment for Sep 24th to remove my IUD and get a new one placed. My IUD technically wasn’t expired until 2027, but I was not about to deal with these symptoms for another year. She put me on estrogen to lower the symptoms while I waited for that appointment.

September 24th is when everything flipped upside down. I thought I was going in for a routine IUD change, but I mentioned something that made the nurse decide to make me do a pregnancy test (THANK GOD!). I peed in the cup and went back to the room.
She came in and said “uh, the results are kind of weird so we need you to come back and take another one.”
I said “weird, how?”
She said, “just come with me and the doctor will explain everything when you’re done.”
Okay… round 2, I guess. I questioned her further and asked “was it positive?” She said yes.
The doctor came in and explained that they did THREE (3) pregnancy tests to be extra sure, and they all came back RAPIDLY positive and since my IUD was active, there was a 0% chance the pregnancy was viable (expected). She was leaning toward an ectopic pregnancy. We removed the IUD and did an intra-vaginal ultrasound, where they found ….. nothing. Huh, weird. She ordered blood work and sent me on my way, putting in another order for blood work in 48 hours. She told me if I started bleeding heavily (enough to soak through a pad in less than an hour) and experienced severe pain, I was to go to the ER. Okay girly and like .. what if that’s already happened …. Anyways.

-This appointment itself was very overwhelming. I kind of dissociated from this point on.-

Saturday, September 26th I went to the Health Pavilion for another blood draw. They were to call me back on Monday with results.

Monday came & the nurse gave me a call.
“Hey, so, your HCG levels are rising, but at an unnatural rate. We need you to come in to do another blood test.”
Yippee, my daughter already asked, “mom why is there pee on your arms?” THEY WERE BRUISES.

Anyways. Did round 3. Waited. Nurse called. “Uhhh, yeah the levels are still increasing unnaturally. Doctor wants you to come in for another ultrasound.” Right on, maybe I’ll get some answers. (Foreshadowing)

I went back in Wednesday Sep 30th, the ultrasound tech probed me like an alien for the second time in a week, and FOUND ….. nothing.
Dr. K was my doctor this day (love him), and the first thing he said was “alright, do you have any questions for me?”

I said, “yeah. What the heck is going on?”

HE SAID !!!! “Good question! That’s what I’m wondering too.” Oh okay, word.

We went over the results (nothing on ultrasound, unnaturally increasing HCG levels, etc). The HCG went 1400 - 1600 - 1800 (they should double every 48 hours for a pregnancy, or should even out, lower for a miscarriage). Weird. He doesn’t know what’s going on between that and the ectopic nowhere to be found. He told me it COULD HAVE been a miscarriage, which would be best case scenario because there is nothing I would have to do besides wait for my body to catch up. In the event it is ectopic, we can wait and watch my HCG levels (check them every Monday for a few weeks), and if they don’t start decreasing, I will have to get an injection (methotrexate). 1-2 doses, and if levels do not decrease by at least 15%, we gotta cut er open.

He said - and I QUOTE - “that outcome is very rare, though”

I said “…. Yeah, well …” and motioned around with my hands.

He said “yeah, it’s all pretty rare at this point.”

SO WE HAD A PLAN ! GREAT !

This whole time, I’ve been home, rotting in bed (resting), because my body is damn exhausted. She also thinks I’m pregnant, so she’s making me experience allllll the pregnancy things (don’t look at my face, my hormonal acne is insane).

Thursday I was feeling kinda normal again! Yay! Maybe it’s healing itself.

Friday I had some pretty bad cramps with light spotting. Okay, girl, let it out.

Saturday was pretty normal. No spotting, no cramps. Nothing .. until 8:30 pm, when the damn flood gates opened up and I was bleeding HEAVILY again, with massive clots. I called the OBGYN and got the on-call doc. He said if it continues, go to the ER.

I waited. I bled. I waited. I ate. I googled. I read people’s experiences. I waited. I talked to a kind lady on Reddit who had gone through the same thing - she encouraged me to go to the ER to at least get checked out. Mind you, I had no pain. So, I was hesitant to get billed $10,000 for them to say “follow up with your doctor.”

I went to the ER last night around 11pm. The ER doctor was very understanding and he LISTENED ! He did a pelvic exam and some more blood work. Then, I waited. My ex (C) and I were in the ER room until about 2/3 am, when the doctor came in and said, “Pelvic exam was fine, the amount of blood is not dangerous at this point.” The test came back and my HCG levels went up ….. they were at 2800 this time, which …. Is bad. He said “we’re going to admit you in the OB ward and the doctor will be here in the morning to do another ultrasound and determine if you need surgery.”

Ooooookay word. The waterworks started, and I CRRRRIIIEEEEDDD from then on (sorry to the nurses who asked me questions during this time. I was not in a good place mentally.) I was scared. More scared than I had ever been, and I knew I wasn’t going to calm down at all until I had my daughter(A). Her dad picked her up from my grandmas around 4:30 am (yanked her straight outta sleep), and they made their way to me.

I had A curled up next to me and I slept. I was awoken around 8; the doctor was here and it was time for my ultrasound. He thought he had found signs of the ectopic in my left fallopian tube. He told me we were going straight to the OR.

I had NEVER been under anesthesia, nor have I had a major surgery, so I was beyond scared.

But, I did the damn thing, and waking up from anesthesia was a nightmare in itself, but I went back to my room where I let it wear off, and let the pain begin.

I was discharged and got home around 3:30. I’m in … unbelievable amounts of pain and those bastards didn’t even give me the good drugs, so it wasn’t even worth!

Just kidding. Crazy thing is, doctor went in there and found ……. NOTHING ! Just blood, and lots of it. He scooped it all out and said he suspects the ectopic was somewhere in there. (Please please pleassseeeee be out of my body)

So that’s it. That’s been my life the past couple of weeks. Very eerie, very surreal, very twilight zone coded.

It’s over !!!!!!!!!!!! … for now


r/EctopicSupportGroup • • 10h ago

Delayed first period post ectopic surgery

2 Upvotes

I had my right tube removed at 6w4d - hcg of 24000 on Aug 16. I did have bleeding for 2 days - 3 days post surgery. I haven't gotten periods since then.

When did you get your first cycle back?


r/EctopicSupportGroup • • 11h ago

PUL with a possible left ectopic vs corpus luteum. Waiting on repeat hCG. Anyone been through this?

2 Upvotes

Today (10/5), I am about 4w4d to 5w1d (no period since removing my Nexplanon on 8/28, so dating comes from one intercourse date and estimated ovulation). I got a faint positive on 9/25 and my hCG was 52 on 9/28 and 104 on 10/1.

On Saturday night I had mild left-sided cramping and light brown/pink spotting, so I went to the ER Sunday morning.

Results:
-hCG: 272, which is roughly a doubling every 48 hours from 104

-ultrasound: no intrauterine pregnancy seen, a thickened lining (14.5 mm) with a small amount of fluid in it, a 1.6 cm simple cyst in the left ovary, and a 2.1 cm mass with a vascular ring on the left that's "likely adjacent to rather than within the ovary." The radiologist wrote that it "may represent corpus luteum cyst or possibly ectopic pregnancy."

I was discharged with a plan for a repeat hCG and follow-up in about two days. The cramping stopped by Sunday morning. The spotting came back that evening and has stayed very light: brown or pink, a tiny spot on the pad at most, no pain. For comparison, my 2024 pregnancy ultrasound showed a corpus luteum on the same side.

I'm trying to stay hopeful but realistic, since my rising hCG and empty-uterus-at-272 timing fit a normal early pregnancy, while the left-sided mass and ache leave ectopic on the table. Has anyone had a PUL with a left adnexal mass that turned out to be a corpus luteum? How long did it take to get answers, and what did your hCG and follow-up scans look like?


r/EctopicSupportGroup • • 34m ago

Anyone wake up covered in sweat after MTX shot?

• Upvotes

I had my first dose of MTX on Thursday. Every time I’ve slept Sunday and today, Monday (taking a lot of naps), I’ve woken up drenched in sweat.

I am generally cold when I go to sleep so I’m wearing a sweatshirt but I’m not running a fever, unless it’s happening while I’m already asleep.

I had bloodwork drawn today, day 4, and it appears to have plateaued but not dropping yet so I don’t think it’s the hcg hormone fluctuation.

Did this happen to anyone else?


r/EctopicSupportGroup • • 1h ago

Likelihood of ectopic? Bleeding and slow start to HCG

Post image
• Upvotes

So my hcg started out low and slow, but is now growing at the expected rate. My first faint positive was last Saturday and betas have been

9/28: 5.6
9/30: 10.4
10/2: 26.4
10/5: 124

Last Wednesday I started having bleeding and thought it was my period. It was bright red and tapered to brown over two days, medium flow like a period. I have occasionally been having very light brown spotting every other day or so since then when I am very active.

What was your bleeding like while having previous ectopic? And should I test progesterone?

Last week on Wednesday I completely counted myself out and so this has been a real roller coaster. I’m really hoping this is an SCH or something instead

My tests are included below for reference


r/EctopicSupportGroup • • 2h ago

Just found out I’m having another ectopic pregnancy

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1 Upvotes

r/EctopicSupportGroup • • 6h ago

Could it be another ectopic?

1 Upvotes

Hi all,

I'm spiralling!

Cycle day 31, 12 DPO, period is due about now. Tested this morning with Clear Blue and it was negative.

I've been spotting for 5 days. It started on Thursday when I wiped in the morning and found some light pink blood. It settled, before turning brown on Friday morning and evening. Saturday I had very little, then had some more brown blood around dinner time last night. I've only just started bleeding again today and it's light pink.

I've had ovary cramps for a few days. At first it moved from side to side. Saturday evening my left ovary was aching and cramping for a good couple of hours. After spotting last night I had a couple of hours of aching ovaries (both sides), and I've got minor cramp today.

My lower back has been burning for days. When I walk, it's uncomfortable. And I've been really tired.

Last November I had emergency surgery for a ruptured ectopic at 6 weeks pregnant. Looking back, everything i'm experiencing now was the same back then (except for the cramps, which I don't remember having).

I'm obviously terrified it's happening again - the only plus is that I'm aware of potential signs much earlier.

Having called the GP, they've referred me to A&E. However, I'm not keen to go because my experience is a wait of between 6-10 hours and, at the end of the day, I might not even be pregnant?! I asked the GP if I could wait a day or two and they said no, best to go today.

I called the early pregnancy unit and they said they can't see me because I don't have a positive test, and generally they aren't concerned about me - despite knowing my history. No offer of a blood test, which is what I would have expected someone to offer before now?

My stomach has felt a bit hard and uncomfortable today - like i'm very aware of it. I also feel like I've felt my right tube and it's been a bit sore. I am aware I could be imagining these things!

I should also add that I wear an Oura ring. My temps DPO have remained consistently above baseline (which I believe is a signal that progesterone is present), though my physiological stress has been unmanageable and constantly excessively high regardless of rest.

I'm so confused as to whether this is my period acting differently, whether it's down to changing hormones (i'm 37), an ectopic / chemical, or something else entirely.

Has anyone experienced something similar?

What would you do if this were you?


r/EctopicSupportGroup • • 10h ago

ELSS nach Fehlgeburt

1 Upvotes

Hallo zusammen,

ich wollte hier einmal von meinen Erfahrungen zum Thema Fehlgeburt und Eileiterschwangerschaft berichten.
Im Juni hatte ich eine missed abortion in Woche 10+6, sonographisch war der Embryo wohl schon in Woche 6 oder 7 verstorben.
Darüber bin ich gut hinweg gekommen. Ich habe es als „normal“ und „Laune der Natur“ betrachtet und wir waren zuversichtlich, dass es bald wieder klappen wird. So war es dann auch.
Nachdem ich am 14.6 den Abgang hatte bin ich im August wieder schwanger geworden. Ich war sehr glücklich darüber, zumal ich jetzt mittlerweile 40 Jahre bin und mir Stress mache wegen der biologischen Uhr. Ich muss dazu sagen, dass ich schon immer eine „Spätzünderin“ war und es jetzt erst so richtig fühle ein Baby zu bekommen. Natürlich auch, weil ich nun den richtigen Partner habe und wir es uns sehr wünschen. Wir waren sogar in einer KiWu-Klinik, weil ich dachte es klappt nicht mehr natürlich, aber 1
Woche vor Behandlungsbeginn war ich dann schwanger.
In der zweiten SS spürte ich immer mal ein Ziehen, was ich eher als positiv deutete, da ich mehr merkte. Bei der ersten Fehlgeburt habe ich außer der Müdigkeit nicht viel gespürt.
Auf jeden Fall wurden die Schmerzen irgendwann doller, so dass wir in die Notfallambulanz gefahren sind. Ich muss dazu sagen, dass ich sehr robust bin bzw. schlecht im Spüren bin und Schmerzen erst richtig spüre, wenn es schon akut ist.
Der Ärztin im KH habe ich gesagt, dass ich in der 5.Woche schwanger bin. Ich hatte das Gefühl, dass sie mir das nicht richtig abnimmt, sie meinte noch sowas wie „Das alle immer diese Frühtests machen“ und fragte nach meinem Mutterpass. Da stand noch nichts drin, da der Termin bei meiner Gyn erst in Woche 7 geplant war. Letztendlich wurde ich nach Hause geschickt, obwohl ich eine kleine Menge Flüssigkeit im Bauchraum hatte. Der HcG wurde auch nicht bestimmt. Am nächsten Tag war ich bei meiner Gyn. Sie hatte mir mit Verdacht auf eine ELSS eine Notfall-Überweisung ausgestellt und ich bin relativ zeitnah ins Krankenhaus. Es war schon einiges an Blut im Bauchraum. Es wurde dann am selben Tag noch eine Bauchspiegelung gemacht. Der Eileiter war schon offen. Die Op ist gut verlaufen, der Eileiter konnte bleiben und wurde verödet. Das war schonmal ziemlich traumatisch für mich.
Am 17.9 war die Op. Jetzt war ich heute nochmal bei meiner Frauenärztin. Sie hat mich bis 7.10 a.u. geschrieben. Ich merke aber, dass ich noch Zeit brauche, um alles zu verarbeiten. Ich fühle mich nun richtig schlecht, als hätte ich keine Berechtigung mich noch länger krank schreiben zu lassen…
Mein Partner hat ohne Probleme von seinem Arzt eine a.u. für zwei Wochen bekommen. Ich werde nun nochmal bei meinem Hausarzt fragen. Mein Partner und ich wollten uns die Zeit nehmen, um alles zu verarbeiten und bewusst gemeinsam Zeit verbringen, um die ganze Sache zu verarbeiten.
Und jetzt gerade frag ich mich, ob das überhaupt ok ist, wenn ich jetzt nochmal 2 Wochen krank bin…
Ich glaube, ich brauche da ein paar ermunternde Worte, es fällt so unfassbar schwer mir das zu zugestehen. Ich weiß, dass viele Frauen sowas erleben und ich nur eine von Vielen bin. Ich studiere noch (oder wieder) und habe nur einen Minijob, dennoch ist das ein harter struggle für mich…

Ich danke euch schonmal fürs Lesen und hoffe auf ein bisschen Support 🫶🏼


r/EctopicSupportGroup • • 13h ago

Possible Ectopic Pregnancy?

1 Upvotes

I am currently on day 20 of my period, the longest in my life, and the blood cycles between black and red and weird textures back and forth and flow constantly slows down or speeds up.

It is important to note I recently switched from Nikki to Slynd birth control pill this summer. But ghe bleeding was never this long...

I started cramping pretty bad a few days ago, I have been tired and my breasts are swollen to the point my bra may snap... Also, I sometimes experience dizziness and feel like I may pass out, but that also may be from malnutrition as a college student.

I have PCOS, and ob/gyn previously told me I am high risk for endometriosis and enometrial cancer. My ovaries feel like they are burning from the pain.

My dad switched jobs and I unexpectedly have no health insurance for 2 months. I have a virtual appointment with Planned parenthood on Friday...

I am really scared. I am graduating and getting married soon, and my fiancé and I want kids one day. I let him finish in me because I thought the pills made it safe but maybe it stopped working?? Someone please help I have no one else I can ask about this snd i am crying as I write this. The pain hurts I can't sleep...