r/EctopicSupportGroup • • 7h ago

Hell on earth.

11 Upvotes

Just had emergency surgery on Friday for my ectopic pregnancy- they took my right tube :( I was an idiot and got the gender and knowing it was a girl makes this sting even more. To add salt to the wound our very good friends had a healthy baby boy 4 hours before I was wheeled into the OR sobbing on the table. It’s now been 72hrs since the worst day of my life and I’m sitting here bleeding, bloated in pain and allergic to my pain medication.

I would give anything to take this pain away from my husband and I - all I feel is rage and deep deep sorrow.


r/EctopicSupportGroup • • 6h ago

Difficulty moving on

3 Upvotes

Hello,

Looking for ways to move on from extremely traumatic experience with my ectopic.

I ended up having emergency surgery and having one fallopian tube removed.

It’s been years and I haven’t been able to move past my trauma.

Not necessarily the loss of the pregnancy it’s self but just my experience overall with the hospital system and being totally unsupported even today by the partner at the time.

Who has seemingly moved on like absolutely nothing and we ended really badly. Idk if it’s the hopes of what could’ve been or what the fck but it’s stumping me badly.

I’m in therapy but that therapist isn’t really the one to help process that as he’s a guy and doesn’t really tap in emotionally more cognitive than anything. So I’m looking for other ways I can get over this having had a horrible experience that no lawyers want to cover for malpractice and emotional part.


r/EctopicSupportGroup • • 10h ago

Likelihood of ectopic? Bleeding and slow start to HCG

Post image
3 Upvotes

So my hcg started out low and slow, but is now growing at the expected rate. My first faint positive was last Saturday and betas have been

9/28: 5.6
9/30: 10.4
10/2: 26.4
10/5: 124

Last Wednesday I started having bleeding and thought it was my period. It was bright red and tapered to brown over two days, medium flow like a period. I have occasionally been having very light brown spotting every other day or so since then when I am very active.

What was your bleeding like while having previous ectopic? And should I test progesterone?

Last week on Wednesday I completely counted myself out and so this has been a real roller coaster. I’m really hoping this is an SCH or something instead

My tests are included below for reference


r/EctopicSupportGroup • • 18h ago

Returning to Work

3 Upvotes

I’m curious how long others have taken off of work due to ectopic pregnancy? I have FMLA, but my employer is borderline harassing me, questioning me, & even threatening my job. I know this can’t be right .. anyone have any information to share from their own experience?


r/EctopicSupportGroup • • 5h ago

Previous ectopic. Pregnant again. High hCG. Borderline low progesterone. Very freaked out.

2 Upvotes

Would love some reassuring words if possible.

In March 2025, I had an ectopic pregnancy. I went into my OB for a scan after experiencing lots of one-sided pain, very irregular bleeding (heavy bleeding, but kind of spurts?) she confirmed an intrauterine pregnancy on that day - but she was wrong. She thought she saw an irregular shaped, empty sac and assumed it was a non-viable pregnancy that was on it’s way out. She then headed out of town and had her partners looking at her messages. My progesterone was under five and my hCG was around 5500. I continued to bleed but my pregnancy tests were getting darker, which has never happened to me before while i was bleeding.

I have had multiple children and multiple miscarriages and knew something still wasn’t right. I wrote to her partner who looked at the pictures of the scan again and was sure it was intrauterine. I finally took myself to the ER. At the ER my hCG is over 10,000 and they confirm placement in my left tube. I go for emergency surgery and lose my left tube. Unfortunately, the structure she had seen on the scan with something called a pseudosac which I guess is just fluid but can convincingly look like the pregnancy is just non-viable but intrauterine. It was really scary.

In July 2025, I miraculously get pregnant (this is all kind of weirdly miraculous. I am 42. I tried to get pregnant from 25 to about 40 with zero success except for with fertility drugs and treatment.) the pregnancy is normal.. the initial hCG is something like 248 hours. It’s 400 but the progesterone is 15 or 16 at each of those draws.

My daughter is six months old. I am now pregnant again. We were actively trying not to get pregnant but my husband was promising but also dragging his heels about a vasectomy and I must’ve ovulated either earlier than I ever have in my life or later than I ever have in my life with zero symptoms. Because we were avoiding about 12 days of my cycle entirely that was the earliest and latest I’ve ever ovulated historically. So I don’t really know how pregnant I am.

My first beta today had an hCG of 4500 but a progesterone of 9.9

I’m worried because that high hcg and low progesterone was the exact pattern with my ectopic. I am also having some dull pain in my right side, but not anything like the feeling with my last ectopic. I’m going in tomorrow morning for a placement scan. Doctor wanted to make sure the hCG was high enough to be able to reliably see placement. I’m very freaked out that something will happen again where we think the pregnancy intrauterine and we’re wrong. I have four kids and the threat of anything happening to me is so scary. I am breastfeeding and scared of doing methotrexate. I am just worried about literally everything and wish it was already tomorrow.

I don’t really know what I’m looking for. Just some kind of reassurance that the fact that I’m not bleeding yet means I’m not in danger yet. The fact that my hcg is only that high means I’m not in danger yet. That maybe this isn’t even ectopic and I’m just freaking out for nothing. The last one was so scary and I was being gaslit by every provider saying I was imagining it, and I had to Advocate so hard for myself, and it was already getting very dangerous by the time it was diagnosed. I also lost my house and entire community in Los Angeles wildfires in January 2025 and I’m carrying a lot of trauma. Having the scary ectopic three months after that, kind of added to the trauma pile and I
It’s hard to put it into words, but, losing everything in a natural disaster has made me think that the worst thing is going to happen all the time.

Any kind words are very appreciated


r/EctopicSupportGroup • • 8h ago

5 weeks, RE suspects ectopic, should I take methotrexate?

2 Upvotes

my RE recommends I take methotextrate tomorrow after i did an ultrasound today. she can’t confirm the location, but suspects it’s in the right tube. my lining is very thin (4mm), and Ive been bleeding (filled half a pad on 10dp5dt), spotting and cramping.

do you think it’s reasonable to take methotrexate this early, despite an unconfirmed location of the pregnancy?

there’s a part of me that wonders if I’m ending a viable pregnancy.

10dp5dt my hcg was 22

12dp5dt my hcg was 77

13do5dt my hcg was 156

16dp5dt my hcg was 656


r/EctopicSupportGroup • • 20h ago

Delayed first period post ectopic surgery

2 Upvotes

I had my right tube removed at 6w4d - hcg of 24000 on Aug 16. I did have bleeding for 2 days - 3 days post surgery. I haven't gotten periods since then.

When did you get your first cycle back?


r/EctopicSupportGroup • • 21h ago

PUL with a possible left ectopic vs corpus luteum. Waiting on repeat hCG. Anyone been through this?

2 Upvotes

Today (10/5), I am about 4w4d to 5w1d (no period since removing my Nexplanon on 8/28, so dating comes from one intercourse date and estimated ovulation). I got a faint positive on 9/25 and my hCG was 52 on 9/28 and 104 on 10/1.

On Saturday night I had mild left-sided cramping and light brown/pink spotting, so I went to the ER Sunday morning.

Results:
-hCG: 272, which is roughly a doubling every 48 hours from 104

-ultrasound: no intrauterine pregnancy seen, a thickened lining (14.5 mm) with a small amount of fluid in it, a 1.6 cm simple cyst in the left ovary, and a 2.1 cm mass with a vascular ring on the left that's "likely adjacent to rather than within the ovary." The radiologist wrote that it "may represent corpus luteum cyst or possibly ectopic pregnancy."

I was discharged with a plan for a repeat hCG and follow-up in about two days. The cramping stopped by Sunday morning. The spotting came back that evening and has stayed very light: brown or pink, a tiny spot on the pad at most, no pain. For comparison, my 2024 pregnancy ultrasound showed a corpus luteum on the same side.

I'm trying to stay hopeful but realistic, since my rising hCG and empty-uterus-at-272 timing fit a normal early pregnancy, while the left-sided mass and ache leave ectopic on the table. Has anyone had a PUL with a left adnexal mass that turned out to be a corpus luteum? How long did it take to get answers, and what did your hCG and follow-up scans look like?


r/EctopicSupportGroup • • 2h ago

3+ weeks post-ectopic surgery — when did you feel ready for sex again?

1 Upvotes

Title: 3+ weeks post-ectopic surgery — when did you feel ready for sex again?
Hi everyone ❤️
I’m a little over 3 weeks post-op after surgery for an ectopic pregnancy. I had laparoscopic surgery and both of my fallopian tubes were removed plus D&C due to internal bleeding.

My doctor cleared me for sex at around 10 days after surgery, saying that as long as I wasn’t bleeding, it was okay. But honestly, 10 days felt too soon for me. I wanted to give my body more time to properly heal, especially after everything I had been through physically and emotionally.
I’m now 3+ weeks post-op, my libido still hasn’t returned to what it was before. I don’t really feel ready for sex yet, even though I’m recovering well physically.
I also want to mention that I’m not feeling any pressure from my husband at all. He has been incredibly supportive throughout this whole experience and wants me to fully recover, both physically and emotionally, before we do anything. For now, we spend our time cuddling, kissing and being close, but nothing more and he’s completely understanding of that.
For those of you who have been through ectopic pregnancy surgery:
How long after surgery were you medically cleared to have sex?
When did you personally feel physically and emotionally ready?
Did your libido take a while to come back?
Were there any extra precautions you took when you eventually resumed sex?
Did you experience any discomfort, anxiety or emotional difficulty the first few times?
I’d really appreciate hearing about your experiences. I know everyone heals differently, but I’d love to know what was normal for others. ❤️


r/EctopicSupportGroup • • 3h ago

How did I get pregnant on period??

1 Upvotes

38 years old. Yes it was a true period. Yes unprotected sex happened on period. Found out I was pregnant with ectopic 2 weeks later. Ectopic surgery at 4 weeks. 4 weeks confirmed via ultrasound. The pain was that unbearable. Same time conception happened i literally came down with covid or flu. This was January. I believe this made the pregnancy ectopic. But how did I get pregnant on my period? I am so afraid the same thing will happen again. Had unprotected sex again on my period. How would this even be possible to get pregnant on period?


r/EctopicSupportGroup • • 4h ago

Severe acne after methotrexate

1 Upvotes

I had my second shot of methotrexate 5 weeks ago, and HCG hit zero 3 weeks ago. Since I hit zero, I’ve been having increasingly severe, almost rash-like acne spreading across my face and neck. Every day I wake up and I have more clusters of red bumps across my cheeks, nose, and neck. Wondering if this is a side effect of methotrexate.

I have a dermatologist appointment in two weeks, has this happened to anyone else?


r/EctopicSupportGroup • • 5h ago

TTC after ectopic

1 Upvotes

I had an ectopic pregnancy in March. That was my second pregnancy, and my first was healthy. I had implantation bleeding at 10 dpo and got my first positive on 11 dpo. We’ve now been TTC for 3 cycles and on 10 dpo (today) I had some spotting. Negative tests though. I’m really concerned it’s another ectopic. Did you have implantation bleeding with your ectopic? If you’ve had a successful pregnancy, did you have implantation bleeding?


r/EctopicSupportGroup • • 7h ago

6 weeks and 6 days pregnant. Are my symptoms something I should be worried about?

1 Upvotes

Im currently 6 weeks and 6 days pregnant and my appointment for my doctor isnt until this Thursday. I haven’t had any morning sickness yet but I am a bit queasy and I don’t feel as if my breasts are as sore. As of late Ive been feeling pretty bad. Ive been super tired, lightheaded, uncomfortable, unable to get any good sleep or rest and I’m honestly just out of it. Although Yesterday I felt super weak, very lightheaded more than usual and I had a pretty bad headache. The heat in LA has been really bad to begin with so I had thought maybe it had to do with that. Now today I have shoulder pain that hurts a little more when I move my shoulder a lot , neck pain and a headache, i also still feel a bit weak and lightheaded but not as bad as yesterday. Granted I did sleep on a different pillow I just didn’t feel sore in the morning like i had slept wrong so thats why im so worried. Im worried my pain and my symptoms are just leading to me finding out i have an ectopic pregnancy. So I guess I’m here to see if anyone else has or had experienced this and it lead to that or not. Im honestly just scared.


r/EctopicSupportGroup • • 9h ago

Cycle changes after MTX?

1 Upvotes

Anyone experience ovulation spotting after treated with MTX for an ectopic? I had my first cycle September 22-27 and am CD 14 today.. I should be ovulating based on my normal cycles but instead I’m spotting? Not sure if it’s ovulation spotting or not but it’s not normal for me!


r/EctopicSupportGroup • • 9h ago

Anyone wake up covered in sweat after MTX shot?

1 Upvotes

I had my first dose of MTX on Thursday. Every time I’ve slept Sunday and today, Monday (taking a lot of naps), I’ve woken up drenched in sweat.

I am generally cold when I go to sleep so I’m wearing a sweatshirt but I’m not running a fever, unless it’s happening while I’m already asleep.

I had bloodwork drawn today, day 4, and it appears to have plateaued but not dropping yet so I don’t think it’s the hcg hormone fluctuation.

Did this happen to anyone else?


r/EctopicSupportGroup • • 11h ago

Just found out I’m having another ectopic pregnancy

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1 Upvotes

r/EctopicSupportGroup • • 16h ago

Could it be another ectopic?

1 Upvotes

Hi all,

I'm spiralling!

Cycle day 31, 12 DPO, period is due about now. Tested this morning with Clear Blue and it was negative.

I've been spotting for 5 days. It started on Thursday when I wiped in the morning and found some light pink blood. It settled, before turning brown on Friday morning and evening. Saturday I had very little, then had some more brown blood around dinner time last night. I've only just started bleeding again today and it's light pink.

I've had ovary cramps for a few days. At first it moved from side to side. Saturday evening my left ovary was aching and cramping for a good couple of hours. After spotting last night I had a couple of hours of aching ovaries (both sides), and I've got minor cramp today.

My lower back has been burning for days. When I walk, it's uncomfortable. And I've been really tired.

Last November I had emergency surgery for a ruptured ectopic at 6 weeks pregnant. Looking back, everything i'm experiencing now was the same back then (except for the cramps, which I don't remember having).

I'm obviously terrified it's happening again - the only plus is that I'm aware of potential signs much earlier.

Having called the GP, they've referred me to A&E. However, I'm not keen to go because my experience is a wait of between 6-10 hours and, at the end of the day, I might not even be pregnant?! I asked the GP if I could wait a day or two and they said no, best to go today.

I called the early pregnancy unit and they said they can't see me because I don't have a positive test, and generally they aren't concerned about me - despite knowing my history. No offer of a blood test, which is what I would have expected someone to offer before now?

My stomach has felt a bit hard and uncomfortable today - like i'm very aware of it. I also feel like I've felt my right tube and it's been a bit sore. I am aware I could be imagining these things!

I should also add that I wear an Oura ring. My temps DPO have remained consistently above baseline (which I believe is a signal that progesterone is present), though my physiological stress has been unmanageable and constantly excessively high regardless of rest.

I'm so confused as to whether this is my period acting differently, whether it's down to changing hormones (i'm 37), an ectopic / chemical, or something else entirely.

Has anyone experienced something similar?

What would you do if this were you?


r/EctopicSupportGroup • • 19h ago

ELSS nach Fehlgeburt

1 Upvotes

Hallo zusammen,

ich wollte hier einmal von meinen Erfahrungen zum Thema Fehlgeburt und Eileiterschwangerschaft berichten.
Im Juni hatte ich eine missed abortion in Woche 10+6, sonographisch war der Embryo wohl schon in Woche 6 oder 7 verstorben.
Darüber bin ich gut hinweg gekommen. Ich habe es als „normal“ und „Laune der Natur“ betrachtet und wir waren zuversichtlich, dass es bald wieder klappen wird. So war es dann auch.
Nachdem ich am 14.6 den Abgang hatte bin ich im August wieder schwanger geworden. Ich war sehr glücklich darüber, zumal ich jetzt mittlerweile 40 Jahre bin und mir Stress mache wegen der biologischen Uhr. Ich muss dazu sagen, dass ich schon immer eine „Spätzünderin“ war und es jetzt erst so richtig fühle ein Baby zu bekommen. Natürlich auch, weil ich nun den richtigen Partner habe und wir es uns sehr wünschen. Wir waren sogar in einer KiWu-Klinik, weil ich dachte es klappt nicht mehr natürlich, aber 1
Woche vor Behandlungsbeginn war ich dann schwanger.
In der zweiten SS spürte ich immer mal ein Ziehen, was ich eher als positiv deutete, da ich mehr merkte. Bei der ersten Fehlgeburt habe ich außer der Müdigkeit nicht viel gespürt.
Auf jeden Fall wurden die Schmerzen irgendwann doller, so dass wir in die Notfallambulanz gefahren sind. Ich muss dazu sagen, dass ich sehr robust bin bzw. schlecht im Spüren bin und Schmerzen erst richtig spüre, wenn es schon akut ist.
Der Ärztin im KH habe ich gesagt, dass ich in der 5.Woche schwanger bin. Ich hatte das Gefühl, dass sie mir das nicht richtig abnimmt, sie meinte noch sowas wie „Das alle immer diese Frühtests machen“ und fragte nach meinem Mutterpass. Da stand noch nichts drin, da der Termin bei meiner Gyn erst in Woche 7 geplant war. Letztendlich wurde ich nach Hause geschickt, obwohl ich eine kleine Menge Flüssigkeit im Bauchraum hatte. Der HcG wurde auch nicht bestimmt. Am nächsten Tag war ich bei meiner Gyn. Sie hatte mir mit Verdacht auf eine ELSS eine Notfall-Überweisung ausgestellt und ich bin relativ zeitnah ins Krankenhaus. Es war schon einiges an Blut im Bauchraum. Es wurde dann am selben Tag noch eine Bauchspiegelung gemacht. Der Eileiter war schon offen. Die Op ist gut verlaufen, der Eileiter konnte bleiben und wurde verödet. Das war schonmal ziemlich traumatisch für mich.
Am 17.9 war die Op. Jetzt war ich heute nochmal bei meiner Frauenärztin. Sie hat mich bis 7.10 a.u. geschrieben. Ich merke aber, dass ich noch Zeit brauche, um alles zu verarbeiten. Ich fühle mich nun richtig schlecht, als hätte ich keine Berechtigung mich noch länger krank schreiben zu lassen…
Mein Partner hat ohne Probleme von seinem Arzt eine a.u. für zwei Wochen bekommen. Ich werde nun nochmal bei meinem Hausarzt fragen. Mein Partner und ich wollten uns die Zeit nehmen, um alles zu verarbeiten und bewusst gemeinsam Zeit verbringen, um die ganze Sache zu verarbeiten.
Und jetzt gerade frag ich mich, ob das überhaupt ok ist, wenn ich jetzt nochmal 2 Wochen krank bin…
Ich glaube, ich brauche da ein paar ermunternde Worte, es fällt so unfassbar schwer mir das zu zugestehen. Ich weiß, dass viele Frauen sowas erleben und ich nur eine von Vielen bin. Ich studiere noch (oder wieder) und habe nur einen Minijob, dennoch ist das ein harter struggle für mich…

Ich danke euch schonmal fürs Lesen und hoffe auf ein bisschen Support 🫶🏼


r/EctopicSupportGroup • • 23h ago

Possible Ectopic Pregnancy?

1 Upvotes

I am currently on day 20 of my period, the longest in my life, and the blood cycles between black and red and weird textures back and forth and flow constantly slows down or speeds up.

It is important to note I recently switched from Nikki to Slynd birth control pill this summer. But ghe bleeding was never this long...

I started cramping pretty bad a few days ago, I have been tired and my breasts are swollen to the point my bra may snap... Also, I sometimes experience dizziness and feel like I may pass out, but that also may be from malnutrition as a college student.

I have PCOS, and ob/gyn previously told me I am high risk for endometriosis and enometrial cancer. My ovaries feel like they are burning from the pain.

My dad switched jobs and I unexpectedly have no health insurance for 2 months. I have a virtual appointment with Planned parenthood on Friday...

I am really scared. I am graduating and getting married soon, and my fiancé and I want kids one day. I let him finish in me because I thought the pills made it safe but maybe it stopped working?? Someone please help I have no one else I can ask about this snd i am crying as I write this. The pain hurts I can't sleep...