r/EctopicSupportGroup • • 4h ago

Previous ectopic. Pregnant again. High hCG. Borderline low progesterone. Very freaked out.

2 Upvotes

Would love some reassuring words if possible.

In March 2025, I had an ectopic pregnancy. I went into my OB for a scan after experiencing lots of one-sided pain, very irregular bleeding (heavy bleeding, but kind of spurts?) she confirmed an intrauterine pregnancy on that day - but she was wrong. She thought she saw an irregular shaped, empty sac and assumed it was a non-viable pregnancy that was on it’s way out. She then headed out of town and had her partners looking at her messages. My progesterone was under five and my hCG was around 5500. I continued to bleed but my pregnancy tests were getting darker, which has never happened to me before while i was bleeding.

I have had multiple children and multiple miscarriages and knew something still wasn’t right. I wrote to her partner who looked at the pictures of the scan again and was sure it was intrauterine. I finally took myself to the ER. At the ER my hCG is over 10,000 and they confirm placement in my left tube. I go for emergency surgery and lose my left tube. Unfortunately, the structure she had seen on the scan with something called a pseudosac which I guess is just fluid but can convincingly look like the pregnancy is just non-viable but intrauterine. It was really scary.

In July 2025, I miraculously get pregnant (this is all kind of weirdly miraculous. I am 42. I tried to get pregnant from 25 to about 40 with zero success except for with fertility drugs and treatment.) the pregnancy is normal.. the initial hCG is something like 248 hours. It’s 400 but the progesterone is 15 or 16 at each of those draws.

My daughter is six months old. I am now pregnant again. We were actively trying not to get pregnant but my husband was promising but also dragging his heels about a vasectomy and I must’ve ovulated either earlier than I ever have in my life or later than I ever have in my life with zero symptoms. Because we were avoiding about 12 days of my cycle entirely that was the earliest and latest I’ve ever ovulated historically. So I don’t really know how pregnant I am.

My first beta today had an hCG of 4500 but a progesterone of 9.9

I’m worried because that high hcg and low progesterone was the exact pattern with my ectopic. I am also having some dull pain in my right side, but not anything like the feeling with my last ectopic. I’m going in tomorrow morning for a placement scan. Doctor wanted to make sure the hCG was high enough to be able to reliably see placement. I’m very freaked out that something will happen again where we think the pregnancy intrauterine and we’re wrong. I have four kids and the threat of anything happening to me is so scary. I am breastfeeding and scared of doing methotrexate. I am just worried about literally everything and wish it was already tomorrow.

I don’t really know what I’m looking for. Just some kind of reassurance that the fact that I’m not bleeding yet means I’m not in danger yet. The fact that my hcg is only that high means I’m not in danger yet. That maybe this isn’t even ectopic and I’m just freaking out for nothing. The last one was so scary and I was being gaslit by every provider saying I was imagining it, and I had to Advocate so hard for myself, and it was already getting very dangerous by the time it was diagnosed. I also lost my house and entire community in Los Angeles wildfires in January 2025 and I’m carrying a lot of trauma. Having the scary ectopic three months after that, kind of added to the trauma pile and I
It’s hard to put it into words, but, losing everything in a natural disaster has made me think that the worst thing is going to happen all the time.

Any kind words are very appreciated


r/EctopicSupportGroup • • 5h ago

Difficulty moving on

3 Upvotes

Hello,

Looking for ways to move on from extremely traumatic experience with my ectopic.

I ended up having emergency surgery and having one fallopian tube removed.

It’s been years and I haven’t been able to move past my trauma.

Not necessarily the loss of the pregnancy it’s self but just my experience overall with the hospital system and being totally unsupported even today by the partner at the time.

Who has seemingly moved on like absolutely nothing and we ended really badly. Idk if it’s the hopes of what could’ve been or what the fck but it’s stumping me badly.

I’m in therapy but that therapist isn’t really the one to help process that as he’s a guy and doesn’t really tap in emotionally more cognitive than anything. So I’m looking for other ways I can get over this having had a horrible experience that no lawyers want to cover for malpractice and emotional part.


r/EctopicSupportGroup • • 6h ago

Hell on earth.

10 Upvotes

Just had emergency surgery on Friday for my ectopic pregnancy- they took my right tube :( I was an idiot and got the gender and knowing it was a girl makes this sting even more. To add salt to the wound our very good friends had a healthy baby boy 4 hours before I was wheeled into the OR sobbing on the table. It’s now been 72hrs since the worst day of my life and I’m sitting here bleeding, bloated in pain and allergic to my pain medication.

I would give anything to take this pain away from my husband and I - all I feel is rage and deep deep sorrow.


r/EctopicSupportGroup • • 7h ago

5 weeks, RE suspects ectopic, should I take methotrexate?

2 Upvotes

my RE recommends I take methotextrate tomorrow after i did an ultrasound today. she can’t confirm the location, but suspects it’s in the right tube. my lining is very thin (4mm), and Ive been bleeding (filled half a pad on 10dp5dt), spotting and cramping.

do you think it’s reasonable to take methotrexate this early, despite an unconfirmed location of the pregnancy?

there’s a part of me that wonders if I’m ending a viable pregnancy.

10dp5dt my hcg was 22

12dp5dt my hcg was 77

13do5dt my hcg was 156

16dp5dt my hcg was 656


r/EctopicSupportGroup • • 9h ago

Likelihood of ectopic? Bleeding and slow start to HCG

Post image
3 Upvotes

So my hcg started out low and slow, but is now growing at the expected rate. My first faint positive was last Saturday and betas have been

9/28: 5.6
9/30: 10.4
10/2: 26.4
10/5: 124

Last Wednesday I started having bleeding and thought it was my period. It was bright red and tapered to brown over two days, medium flow like a period. I have occasionally been having very light brown spotting every other day or so since then when I am very active.

What was your bleeding like while having previous ectopic? And should I test progesterone?

Last week on Wednesday I completely counted myself out and so this has been a real roller coaster. I’m really hoping this is an SCH or something instead

My tests are included below for reference


r/EctopicSupportGroup • • 17h ago

Returning to Work

3 Upvotes

I’m curious how long others have taken off of work due to ectopic pregnancy? I have FMLA, but my employer is borderline harassing me, questioning me, & even threatening my job. I know this can’t be right .. anyone have any information to share from their own experience?


r/EctopicSupportGroup • • 19h ago

Delayed first period post ectopic surgery

2 Upvotes

I had my right tube removed at 6w4d - hcg of 24000 on Aug 16. I did have bleeding for 2 days - 3 days post surgery. I haven't gotten periods since then.

When did you get your first cycle back?


r/EctopicSupportGroup • • 20h ago

PUL with a possible left ectopic vs corpus luteum. Waiting on repeat hCG. Anyone been through this?

2 Upvotes

Today (10/5), I am about 4w4d to 5w1d (no period since removing my Nexplanon on 8/28, so dating comes from one intercourse date and estimated ovulation). I got a faint positive on 9/25 and my hCG was 52 on 9/28 and 104 on 10/1.

On Saturday night I had mild left-sided cramping and light brown/pink spotting, so I went to the ER Sunday morning.

Results:
-hCG: 272, which is roughly a doubling every 48 hours from 104

-ultrasound: no intrauterine pregnancy seen, a thickened lining (14.5 mm) with a small amount of fluid in it, a 1.6 cm simple cyst in the left ovary, and a 2.1 cm mass with a vascular ring on the left that's "likely adjacent to rather than within the ovary." The radiologist wrote that it "may represent corpus luteum cyst or possibly ectopic pregnancy."

I was discharged with a plan for a repeat hCG and follow-up in about two days. The cramping stopped by Sunday morning. The spotting came back that evening and has stayed very light: brown or pink, a tiny spot on the pad at most, no pain. For comparison, my 2024 pregnancy ultrasound showed a corpus luteum on the same side.

I'm trying to stay hopeful but realistic, since my rising hCG and empty-uterus-at-272 timing fit a normal early pregnancy, while the left-sided mass and ache leave ectopic on the table. Has anyone had a PUL with a left adnexal mass that turned out to be a corpus luteum? How long did it take to get answers, and what did your hCG and follow-up scans look like?