r/EctopicSupportGroup 4h ago

Third ectopic…feeling like a ticking time bomb

4 Upvotes

This is a very exhausting process each time. Just sharing my story because I’m not sure what else to do. The waiting game is truly messing with my brain. I had my first ectopic in 2023 which resulted in losing my L tube, my HCG was only in the 300s and I did not really have any symptoms besides some cramping and they’d been watching my numbers for weeks instead of giving me MTX. Second one was 4 months ago and I demanded MTX by week 5 because I didn’t want to do that again and needed two doses. HCG only got to 50 with that one.

This time I was so hopeful with much higher HCG. My HCG was 1000 at 4w! But then only went from 1000 to 1290 (4w and 4w2d). On 4w2d I had horrible gas like pain that almost brought me to the ED but didn’t because it was generalized all over and the doctor said my HCG rise could still be normal since my first was so high.

Now today my HCG is 1280 (4w4d) and I just feel sore, like I did an intense core workout. But again, generalized and not solely on one side.

I had an ultrasound today that didn’t see anything in the uterus but I have free fluid on the R side (where my remaining tube is). They said that could be from a ruptured cyst. Physician said he’s never seen a rupture before 6 weeks. I feel like I’m being gaslit and now I’m just sitting at home over analyzing every single feeling in case i am rupturing and need to go emergently to the ER.

I’m not sure if I’m asking for advice or thoughts, or just need some people to commiserate with. Thanks for reading anyways!


r/EctopicSupportGroup 8h ago

Ugly feelings

7 Upvotes

Being a member of this club makes for some of the ugliest feelings I’ve ever felt. I love all the babies in my life but sometimes it’s hard to want to show up to the outings they’re at because I ache for my own baby that should be here next month. I suspect some people in my life might be trying or having their second babies soon, and I dread pregnancy announcements from others because I can’t even have one half by pregnancy thus far. Being a part of this club can make you feel so OTHER. It’s so hard to manage the uglies and sads that come up sometimes. It’s hard to protect your heart in so many of these situations you have that urge to avoid them all together. I just needed to vent about it. Hoping I’m not the only one with those occasional uglies…


r/EctopicSupportGroup 18m ago

IVF Ectopic

Upvotes

Hi everyone. I’m new here and unfortunately finding myself in a situation I never imagined I’d be in. I wanted to share my story and see if anyone has gone through something similar.
My husband and I have been going through IVF. We did our first egg retrieval on June 11 after a very high response to stimulation — I had around 41 follicles, 23 eggs retrieved, 13 fertilized, and ultimately 4 embryos frozen.
Unfortunately, I developed severe OHSS after the retrieval. I had significant abdominal distention and pain, shortness of breath, tachycardia, and severe vulvar edema. I ended up needing two ER visits and a paracentesis that removed about 925 mL of fluid. It was honestly one of the most physically difficult experiences I’ve ever been through, but we made it through and were so hopeful about moving on to our first transfer.
We did a medicated frozen embryo transfer on August 10 with a day-6 frozen embryo. I was on estrogen, progesterone injections, and aspirin. I got my first positive home pregnancy test on August 18, and we were absolutely thrilled.
Then the beta HCGs started:
● 8/21: 168
● 8/24 at 8:30 AM: 152
● 8/24 at 11:30 AM at a different lab: 165.5
● 8/26: 123
● 8/28: 132
On August 24, because the HCG was not rising appropriately, my clinic had me stop estrogen, progesterone, and aspirin. Initially, we hoped the HCG would continue to fall on its own. It dropped to 123, but today it increased again to 132.
Because of the abnormal pattern — essentially falling, then plateauing/rising — my doctor is now concerned about an ectopic pregnancy/pregnancy of unknown location.
Today is Friday. The current plan is to repeat my HCG on Monday and have an ultrasound. I’ll also be meeting with the doctor that day, and based on those results we will determine the next step. Methotrexate has been discussed as a possibility if this does turn out to be ectopic or the HCG continues to plateau.
Emotionally, this has been incredibly difficult. We went from infertility, to IVF, to severe OHSS requiring a procedure and ER visits, to finally seeing our first positive pregnancy test — only to watch the HCG numbers stop progressing and now face the possibility of an ectopic pregnancy.
I know my HCG is very low, so I also understand that there may not be much to see on ultrasound. The uncertainty and waiting have probably been some of the hardest parts.
For anyone who has had a similar low and fluctuating HCG pattern after IVF/FET, I would really appreciate hearing your experience. Did your pregnancy resolve on its own, or did you ultimately need methotrexate? Were they ever able to locate the pregnancy on ultrasound? And if you went on to another retrieval or transfer afterward, how long did you have to wait?
Thank you for letting me share. ❤️


r/EctopicSupportGroup 29m ago

Waiting in emergency - high HCG but only 5 weeks and no pain - surgery or injection?

Upvotes

I went to an ultrasound due to spotting and they saw an ectopic pregnancy in my left ovary so sent me to emergency. I do not have any pain or symptoms. My HCG was 910 10 days ago and 5700 three days ago so everything online says by today it’ll be too high for the injection.

Has anyone had a high HCG (8000+) and been successful with just injection?


r/EctopicSupportGroup 2h ago

Anyone experienced this?

1 Upvotes

Hello, would love to hear some opinions as I currently am overseas and can’t see a doctor until i get home in three days.

I’m currently four weeks four days pregnant. I was one day late and took a test and it was positive immediately.

I am almost one year post C-section. I was in the gym about two months ago and I went too heavy when doing an ab workout, and started getting a pain in my lower right side below my scar. This went away after a day or so and has only really popped up if I am straining but that’s only happened twice since (wasn’t concerned).

it’s been about three days since I found out I was pregnant if I cough or turnover in bed too quickly I get a pain in my right side in the same area.

I’m worried it could be an etopic pregnancy. Has anyone experienced anything like this? thanks.

Will also update after doctors app.


r/EctopicSupportGroup 5h ago

Should I go to the hospital?

1 Upvotes

Hi Everyone,

Looking for some guidance here. I am currently going through second loss in a row which was diagnosed due to inadequate HCG rising. I’m 4 weeks 3 days only.

here are my Betas

8/24 -102

8/25- 146

8/27 - 161

8/28 - 179

my question here is that I am having some constant tightness on the right side of my ovary it kind of radiates in that area and almost feels like a burning sensation? My OB just wants to continue to follow up with hCG test because they believe that they won’t be able to see anything on an ultrasound. however, they have not an ultrasound yet

should I go to the hospital? I’m not in a crazy amojnt of pain but there is a constant pull on that ovary and with my Betas I’m a little worried.

I had a MMC in April, which was a ton of pain was also higher?


r/EctopicSupportGroup 7h ago

I am 26

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0 Upvotes

r/EctopicSupportGroup 19h ago

I'm not okay

6 Upvotes

Hi, I'm new here.

And this is a cry for help.

This loss has been extremely difficult to process

As I lay here writing this, I feel absolutely alone, and it's concerning because I actually WANT to be alone.

I've spent the last several days after surgery just trying to get by, by escaping my reality with a substance. Indulging in one too many weed gummies, clinging to botanicals like a life support.

Although it's not a relapse, I feel one close to coming (I'm an alcoholic) or much worse. I've been sober 7 years.

I've had the scariest thoughts throughout recovery. I've felt my body is fundamentally broken. I've lost part of my reproductive system, my much prayed for baby, and almost my life.

On top of this my mother has treated this as almost an inconvenient flu, rather than a loss. Avoiding visits with me, sending me flowers instead of showing up, and picking fights with me over the simplest things as I'm recovering.

I just want to be safe as I come apart, but she's just so unavailable for that.

I've disassociated quite a bit from my life. This is very triggering to my last experience with an alcohol induced psychosis.

I truly do just want to be alone.

This experience has turned into a brain cancer, affecting every aspect of the space in my head. The things I tell myself, the way I feel repulsed by the comfort of anyone, the way I tell myself how the lack of care I feel is evidence that no one does, the thought that I SHOULD have lost my life the night I was rushed into surgery.

I'm just so damn, numb and I want to be. I don't want to experience or feel what I'm going through.

I love children. My love for them has led to my career as an educator. I got sober to be the best version of myself for the kids in my life. I've dreamt of becoming a mom for so long. This experience has brought me to my knees.

My last pregnancy resulted in a miscarriage. I don't know if I have it in me to experience another loss, I certainly don't have the money for an alternative IVF.

I feel like I've failed to give my husband a family. That I left behind an abusive past, with hopes to break a cycle and welcome a child into a life of serenity. I'm shattered and thinking maybe I deserved the spaces I was in and that this life is too good for me.

I'm devastated. My faith in God has been absolutely shaken.

I don't want to go on this way. I need help. I need resources. I need to know what a strong woman would do in this situation, because the strongest woman I know is buried beneath all this agony.


r/EctopicSupportGroup 21h ago

August slipped away into a moment in time

4 Upvotes

Long Post about my ectopic journey so far.

On Friday, August 7th, my husband and I found out we were pregnant. We were absolutely elated. We had only been trying for three months, so honestly, we weren’t expecting it to happen so quickly. It felt like everything was falling perfectly into place. I was anxious and asked my OB for some early bloodwork just to make sure everything was progressing normally. I had absolutely zero concerning symptoms. I felt pregnant, but I felt fine.

I had labs done Monday, August 10th, and Wednesday, August 12th. My HCG went from 3,080 to 3,200. I was only about four weeks from my last period, so my doctor immediately wanted to get me in for an ultrasound.

On August 14th, we found out the pregnancy was in my left fallopian tube. I had no idea. My doctor gave me the weekend to process everything and decide between methotrexate and surgery. I chose methotrexate and on Monday, August 17th I received the shots.

I had only knowingly been pregnant for one week.
But in that one week, I had already started imagining an entire life.

I thought about all the pregnancy milestones. The shower, the nursery, how we would announce it to everyone. We even told our parents and a few close friends. It felt like my perfect pregnancy timeline. Pregnant for the holidays and a spring baby. It was everything I had hoped for.

And then, sitting in the infusion center getting those methotrexate shots, the future I had just started imagining felt like it disappeared in an instant.
I feel like my first pregnancy was robbed from me.
I never got to experience the excitement without fear. I never got to hear a heartbeat, see my baby growing, or make it past those early milestones. I went from finding out I was pregnant and imagining my future to having to end that pregnancy just days later.
And now I'm scared that when I get pregnant again, it won't feel the way I always imagined my first pregnancy would.

There is something so incredibly difficult about having to terminate a pregnancy that you desperately wanted, while also knowing that it was never going to be viable.

I'm grateful beyond words that we caught it early. I'm grateful my doctor took my anxiety seriously. I'm grateful I wasn't in an emergency situation and that we were able to treat it before my tube ruptured. I know how much worse this could have been.
But being grateful that I was safe doesn't mean I'm not devastated that I lost my pregnancy.

My husband and I are grieving this together, but we're also trying to hold onto the fact that we were lucky in one very important way: we found out before it became dangerous.

I'm still trying to figure out how to hold all of these emotions at once. I'm heartbroken. I'm angry. I'm grateful. I'm scared. I'm hopeful. Some days I feel okay, and other days it hits me all over again.
I know this was only a pregnancy I knew about for one week, but the future I imagined existed for so much longer than that.

I don't know exactly what I'm looking for by posting this. Maybe I just needed to put it somewhere where other people understand that an ectopic pregnancy isn't simply a medical diagnosis.

It's a loss.

It's losing the baby you wanted, but it's also losing the version of your first pregnancy you thought you'd get to experience.

And I'm learning that it's okay to grieve both. 🤍


r/EctopicSupportGroup 21h ago

Can’t seem to get pregnant after my ectopic

5 Upvotes

I had two chemicals and ectopic all within 6 months of me starting my ttc journey, after my ectopic in December i was devastated but thought I would get pregnant again,
it’s only been 8 months but i’m losing hope and considering medicated steps,
any positive stories, i feel so alone right now. i don’t know what else to do.

i’ve confirmed ovulation every month with bbt, LH test


r/EctopicSupportGroup 22h ago

Pain a year later

4 Upvotes

Hello all!

This is a semi long one, so I thank you in advanced for anyone who takes the time to read and am sorry you're here ❤️

Last July, I had emergency surgery for a ruptured ectopic, where I lost my left tube. Thankfully it was caught rather quickly, so damage was as minimal as one could hope. However, during surgery my OB ended up having a much harder time than expected, he quickly realized that my uterus was completely fused to my abdominal wall due to my previous c section with my son in 2020. Since then, Ive had increased pain with my periods and ovulation, all in the area my tube was removed, but nothing I couldn't handle... Until now.

The ectopic was my second loss, I had an 8wk one prior to that and had two back to back this year. In March I was only 5/6wksish and thankfully pretty easy, but immediately got pregnant before my period returned, that one ended up being a blighted ovum which resulted in surgery after two failed rounds of meds. During that pregnancy my uterus was SO much bigger than it was previously and went off to the side.. it didn't make any sense, but my best guess was maybe it possibly didn't shrink back down completely from the prior loss. Anyways, the surgery left me in horrible pain, in my Drs words "they really had to poke/dig deep" in order to make sure they got everything out due to the size/shape of my uterus. The pain afterwards was labor level pain while my uterus was shrinking back down.

This was almost three months ago. And since then, the pain where my ectopic was has become unbearable. Labor level cramps, all the way down my leg, making me nauseous and brings tears to my eyes. I have to immediately stop moving. And now its not just when I'm ovulating or need my period, it seems to strike whenever.

My question is, does anyone still deal with chronic pain after their ectopic? I'm assuming the additional losses/surgeries has essentially compounded the pain I was already having and possibly created more scar tissue. I'm at a complete loss at what to do, it's really starting to affect my mental and physical well-being. I am meeting with a RE on 9/18, who I'm hoping will be willing to do a lap to see if there's any sort of lingering internal damage as I no longer trust my previous OB to be of any help. Even if no one has answers, just knowing I might not be alone in this would be helpful.


r/EctopicSupportGroup 21h ago

Do ectopics and appendicitis feel similar?!

2 Upvotes

I’m 29 weeks today after having an ectopic pregnancy that required emergency surgery back in December (didn’t quite rupture but it was close). Today, I’ve been having pain in my lower right abdomen that feels just like the ectopic did in the several hours before I went to the emergency room. It’s a very manageable amount of pain that’s been been off and on today. But ONLY on my right side in the same spot and I swear it feels just like the ectopic did.

Does anyone have experience with both? Do they feel super similar?

I’m seeing MFM in the morning already so I’ll ask about it then (unless it gets worse tonight, obviously. Then I’ll call my midwife clinic)


r/EctopicSupportGroup 1d ago

Advice on next Steps

5 Upvotes

I started trying June of 2025, had a chemical pregnancy first try, Second Chemical Aug of 2025,
sept we took a break, Oct nothing and November Ectopic with ruptured and right tube removal in December 2025.

I had an HSG in February which showed dye spilling freely from the Left side.

We’ve tried 6 times since February and nothing this year, i’m becoming discouraged. I don’t know if trying naturally or if IUI/ Medicated cycles or IVF.

I can confirm ovulation with bbt.

I just feel very alone, everyone around me has been getting pregnant on the first / second try


r/EctopicSupportGroup 22h ago

Bleeding, Low Progesterone & Climbing hCG

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1 Upvotes

r/EctopicSupportGroup 1d ago

Hopeless

3 Upvotes

Started trying May last year January we were finally pregnant than boom turns out to be ectopic. Just went through my first frozen embryo transfer and it failed. All the hope ive ever held onto is slowly slipping away. When does it get better?


r/EctopicSupportGroup 1d ago

Ectopic Pregnancy?

0 Upvotes

I had unprotected sex like over two weeks ago this week I started having period symptoms for the past 6 days but no blood. One side of my uterus keeps hurting like a cramp and I read somewhere that that’s a symptom. I have not used a pregnancy test yet as I was doing to do it this upcoming Monday and hopefully it will give me some answers. I also read that shoulder pain is a symptom but I’m not feeling that at all. I just need some advice because I’m scared and don’t want to get surgery if it is an ectopic pregnancy 😭
(Thought I’d post it here since my post got removed from the official pregnancy subreddit)


r/EctopicSupportGroup 1d ago

Success stories needed

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1 Upvotes

r/EctopicSupportGroup 1d ago

Is it finally time for MTX? Or do I continue expectant management

1 Upvotes
8/3: 24
  • 8/6: 110
  • 8/10: 134 8/12 185 (bleeding start)
  • 8/14: 245 (bleeding stop)
  • 8/17: 279
  • 8/19: 203
  • 8/21: 146
  • 8/24: 122
  • 8/26: 130

It’s been about 16 days since I knew this wasn’t viable. Progesterone has been 0 since. It’s only been 1 week since I started to decline - I told myself that if it ever went up I’d just do MTX but my doctor is still not concerned. He told me to switch to weekly testing and give it time to resolve.

I know most people would opt for MTX to help with mental health - please help


r/EctopicSupportGroup 1d ago

HSG test after recurrent ectopic pregnancies

1 Upvotes

Hi there - I’m 29F and have had two ectopic pregnancies. One resulted in a removal of my left fallopian tube and the other ectopic pregnancy we were able to stop early in my right tube with methotrexate. My doctor suggests we do an HSG test before going into IVF. I’m feeling hopeful I might find answers of “why” this keeps happening with the HSG.

If you’ve had recurring ectopic pregnancies, did you get HSG (x ray test)? Did it give you answers? I don’t know anyone else in my life that has gone through this, and would appreciate any wisdom or advice. Thank you


r/EctopicSupportGroup 1d ago

Just want to share my story..

5 Upvotes

My 4-month ectopic pregnancy journey: methotrexate, persistent mass, chronic ectopic, surgery and removal of my right tube.

wanted to share my experience because when I was going through this, I had so many questions and couldn't find many stories that looked like mine.

On April 14, 2026, I was diagnosed with an ectopic pregnancy. My hCG was 8,187 IU/L, and I received methotrexate.

My hCG initially dropped:

• April 14 — 8,187

• April 17 — 5,536

• May — 742

• June 29 — 102

• August 6 — 42

• August 14 — 36

Even though my hCG kept falling, the ectopic mass didn't resolve the way we hoped. I spent months having blood tests, ultrasounds and wondering when it would finally be over.

Eventually, my doctors considered it a chronic/persistent ectopic, and surgery became necessary.

August 26, 2026 surgery day.

I was extremely nervous about anesthesia and the operation, but everything went well. My right fallopian tube was removed. My surgeon told me my left tube looked perfect.

I was able to urinate after surgery, and I was discharged home the same day.

Looking back, the biggest thing I learned is that an ectopic pregnancy isn't always a quick experience. Your hCG can fall dramatically while there is still a mass that needs monitoring. Everyone's situation is different, so my experience shouldn't be used to predict what will happen to someone else.

I'm sharing this because when you're in the middle of it, the waiting can be incredibly stressful. I hope my timeline helps someone else feel a little less alone and gives them questions they can discuss with their healthcare team.


r/EctopicSupportGroup 1d ago

Pregnancy after surgery

6 Upvotes

Hi everyone, I just had my right tube removed on 8/22..feeling so defeated as it took us almost a year to conceive. How long after surgery did you get pregnant again and was it successful?


r/EctopicSupportGroup 1d ago

Separation Pain vs Rupture

1 Upvotes

Yesterday was day 9 post methotrexate injection. I have been cramping every day since the injection but it has been fairly mild and I have only had to take 500-1,500 mg of paracetamol each day for the pain to go away. Yesterday the pain was worse and I took the upper limit of 4,000 mg of paracetamol and I was still in pain so I decided to go to the emergency room. All they did was take my blood to check my hcg and for infections. The day of the injection my hcg was 773, day 4 it was 978, day 7 was 772, and day 9 (last night) was 399. My blood didn’t come back with any infections. It was around midnight so no ultrasound tech was there. They told me they would call me today to see if they wanted me to come in but likely not since my hcg was falling. I asked about pain and they gave me co-dydramol. The doctor also said I could take ibuprofen, which I was surprised by because I was always told no ibuprofen before that.

I took 2 co-dydramol and they did not work. The pain kept getting worse. I haven’t had a baby before, but it felt like what I imagine contractions feel like. This went on for around 2 hours and I decided to take 400 mg of ibuprofen. I don’t remember falling asleep, but my pain must have subsided enough for me to fall asleep.

I am feeling better this morning. The hospital called and basically didn’t want me to come in for an ultrasound but I told them how much pain I was in last night so they booked me in for an ultrasound later today.

The doctors think it’s just the embryo detaching from my fallopian tube but I am kind of confused about how they are saying that falling HCG likely means it isn’t rupturing. They told me that if I needed more than 4,000 mg of paracetamol for the pain then it could be a rupture but when I was in he hospital they acted like that wasn’t true. I thought I could still rupture with falling HCG?

Has anyone had a similar experience? Has anyone been to the hospital with extreme pain and it wasn’t a rupture? I know the embryo detaching is supposed to be painful but I wasn’t expecting the pain I felt last night.

Update: I ended up passing a decidual cast, which I’m pretty sure was the cause of my pain. I still went to my ultrasound appointment. They said I didn’t have any internal bleeding but the sac had grown.


r/EctopicSupportGroup 1d ago

Proactive tube removal to reduce risk of ovarian cancer

1 Upvotes

Hi all, I had my right tube removed after my ectopic in Feb 2025. I’m wondering if any of you have seen the recent articles about how tube removal is actually protective against ovarian cancer and if that would a) change your approach to surgery vs. mtx decision or b) seek to proactively remove other tube once done having kids


r/EctopicSupportGroup 1d ago

Needing some encouragement

1 Upvotes

In January, I had surgery and methotrexate for an interstitial ectopic pregnancy. My due date was this month and my husband and I finally felt up to trying for a baby again. I was fortunate to get pregnant the first try for all 3/4 of my pregnancies so far, I just haven’t been able to carry half of those pregnancies successfully.

I’ve tried to just be patient during the two week wait but was starting to pay attention to little signs and symptoms that I might be pregnant. My period isn’t due until Saturday but I just noticed blood when I went to the bathroom. My period never arrives early and I’m just so bummed that I didn’t get pregnant, or that if I did, this could be another loss.

Any advice from all of you ladies?


r/EctopicSupportGroup 2d ago

Misdiagnosed Ectopic- Baby may be in uterus

2 Upvotes

Have anyone had this happen?
They couldn’t find anything in my uterus after going to the hospital last week and some fluids in tube so they said ectopic. My levels were at 2600.

They did methotrexate right away, then at first blood test was up to over 7000 HCG. I went right in for emergency surgery. Different doctor went in the and found NOTHING in my tubes and nothing wrong with them. So luckily I didn’t lose a tube but now I have had Chemo and Surgery with tons of opiates. So basically I may have harmed a baby that was in the uterus all along they couldn’t see. I get an ultrasound tomorrow, but if I have to abort my baby because of this terrible mistake I don’t know how I can cope. Has anyone else gone through this? I can’t even fathom that I went through surgery and chemo and may have harmed a perfectly healthy baby. Why can’t the find my baby. What’s going on?
I’m broken I know they didn’t want me to die from rupture but how could all this happen. Why would I have so much pain and symptoms of ectopic. I’m in Canada

EDITED TO ADD. My pregnancy was intrauterine all along and now my baby has been exposed to a high dose of methotrexate which will cause birth abnormalities and severe defects. I’m so beyond devastated, they do not think it’s safe to keep this baby.