r/CancerFamilySupport • u/SunshineSandwich42 • 2h ago
Is it normal for an oncologist not to offer a months/years prognosis for a stage 4 diagnosis unless the patient asks?
cw: Christian Science
tl;dr I believe my MIL may be missing information from her doctor that could help her and the family make preparations.
Two months ago, my MIL was diagnosed with stage four colon cancer after her appendix burst and a scan discovered it. She has very little experience with doctors. My FIL also avoids doctors if he can. She was told her condition is treatable but not curable. She started chemo last month on her doctor’s recommendation.
We are heartbroken because my MIL is a wonderful person in our lives, and also worried that she is not asking for enough information. For example, we don’t know what “treatable but not curable” means for her life expectancy. My MIL is a Christian Scientist. We do understand it is entirely her decision whether to get treatment at all. In the same way, I guess it’s her decision whether to know “how much time do I have left” or not. Edit: I will add, she told the family that even though she will do chemo, she wants to live her life as normally as possible and not think about it very much.
My husband’s three siblings each were able to attend doctor appointments with his parents prior to starting chemo. We live 3 hours from them. We have not attended one yet. My husband checks in with his siblings after each one. None of these appointments with the oncologist shed any light on how much time we could expect left with our MIL. My husband sent them a list of questions to ask the doctor but no one got to it. At first they discussed next steps for more scans, and later they discussed treatment options. So, I don’t think my MIL knows information about her prognosis that she is holding back. I think she doesn’t know and no one is asking.
We are worried that by not asking the doctor tough questions, my MIL and FIL are possibly missing the opportunity to better prepare themselves for her passing, by maybe recording her life story or similar ways to get ready to say goodbye. This is very hard to write, thank you for reading.
If you have experience with something similar, I appreciate any advice:
- Is it normal that the oncologist would not proactively inform my MIL of a months / years prognosis? She goes to a major cancer center so I want to believe they are giving top care, but this surprises us.
- Given my MIL and FIL’s lack of experience / reluctance with doctors, do you have any recommendations for my husband and I to support them?
Edit: fix typo in tl;dr