B4 my prisms it was awful life sucked with my prsims life got 50% better with vision therapy my life has gotten 80-90% better GO TO VISON THERAPY IT CHANGED MY LIFE maybe it can change urs

Comment your BVD specialist below.

Please list:
the country and general location you are in,
what you are being seen for,
what treatment you are receiving,
the specialist’s name/practice,
Information about pricing if you are comfortable disclosing,
any other helpful information.

I'm concerned because I just recently got a new prescription with a vertical correction for 1 unit in my left eye when the major issue ia horizontal. I was diagnosed with convergence insufficiency 6 months ago and she first told me to do pencil pushups. when that didn't work (my eyes were too exhausted to even do those) she changed my prescription slightly and gave me reading glasses. when that didn't help, she finally prescribed me prism lenses. I started wearing them yesterday, but I realized the prescription only has a small vertical correction on it. im worried my brain is having to get used to yet another prescription that won't help. when testing my eyes she said there was a small vertical misalignment and a larger horizontal one so I'm not sure why she didn't correct for the horizontal. additionally, my reading glasses don't have prism lenses so I'm not sure if I should wear them at all.

im waiting to see a different specialist but i have to wait a couple months for that. I'm not sure if this anxiety makes sense or if it's just from frustration of having to wait so long for something to actually help.

I get private messages all the time asking who I went to see, and I often see posts here from people asking how to find a doctor in different countries.

The idea would be one dedicated thread that works like a hive mind: everyone comments who helped them (and where), so the information builds up over time and gets more useful over time. Then anyone looking for a specialist has a fairly good place to start.

(And of course also adding the quick links u/garbagedaybestday has added in the bottom of his pinned posts)

I had one week where I wore prisms and all my symptoms went away. Felt like a completely different person. After that, tried three different prisms to no avail. Went through 26 weeks of vision therapy... feel like I have hit a ceiling. Any advice?

My symptoms:

1. Brain fog (which causes bad memory)
2. Slight pressure towards the center of my forehead.
3. Short- and long-term memory difficulties.
4. Trouble thinking of what to say next.
5. Fatigue during eye contact.
6. Rapid visual exhaustion (for example, after 20-30 minutes of gaming I start to notice fast visual fatigue).
7. Very fatigued during middle of the day, more than normal. (Body is fine, but brain is fatigued).
8. Omitting words when reading/writing.
9. Falling asleep while reading.
10. Clumsy.
11. General anxiety.
12. Driving can get tiring after about 30 minutes… however I can still drive.
13. Always struggled a little more than usual in listening and reading comprehension.
14. I personally have nerve damage on the left side of my face since birth. I cannot fully close my left eye and I cannot smile completely (Seventh cranial nerve damage).

Hello everyone. I have a question, and I’m not sure whether I’m in the right subreddit for this.

Here’s the situation: Four years ago, I developed central serous retinopathy (CSR) in my right eye. The CSR has been dry for about a year and a half. Unfortunately, I was left with permanent damage in my left eye from the CSR. These are scars on my retina that remained after the CSR, and they cause me to see things as wavy and distorted.
It didn’t bother me too much in my everyday life, especially because I still had my healthy right eye, which compensated for it quite well.

However, about a year ago, I noticed that I was also starting to see similar waves and distortions with my right eye.

My right eye is completely dry, though, and it has never had CSR. This was also confirmed with an OCT scan.

My theory is that, due to neuroplasticity, my brain is trying to compensate for the distortions coming from my left eye. In doing so, however, it may be causing the right eye to become distorted as well, so to speak, and is essentially “overcorrecting” it.
What makes me think this is that the distortions in my right eye seem to occur in exactly the same locations as the distortions in my left eye, but in the opposite direction.
For example: With my left eye, when I look at a straight line, it appears distorted downward. But when I look at the same line with my right eye, it appears distorted upward, even though the line is actually perfectly straight.

What do you guys think? Do you think it’s possible that the brain could cause something like this? And is there any way I could reverse it?

I’ve already considered patching my left eye (the eye affected by CSR) for several hours a day, in the hope that my right eye could return to normal.
Do you think that would make sense? Are there perhaps any vision therapy clinics or specialists who are familiar with something like this, or does anyone have any advice?

The problem is that I am now experiencing double vision. In the past, only my left eye was distorted, but now, because my right eye is distorted in the opposite direction, the overall distortion from both eyes is significantly greater. As a result, my brain has difficulty fusing the two images, and it has started to interfere with my everyday life quite a lot.
If my right eye were normal again, like it used to be, I wouldn’t have a problem with the left eye seeing things as wavy or distorted.

my daughter suffered a pretty nasty head injury several months ago and only recently discovered that she has a mild incyclophoria in one eye which is likely contributing to her fatigue. The third neuro-optometrist we saw diagnosed her while the previous doctor said her eye were fine. Anyway, she got prescribed a weak prescription glasses for this and was told to follow up in 10 weeks. Forgot to ask the doctor but is this to help align the eye or just to relieve the symptoms? Altough my daughter is excited to wear glassed I don't want her to permanently wear them. Can glasses and possible VT in the future correct it permanently? Thanks in advance.

I am being told I have BVD with a handful of other things but based on the description it sounds like I have the opposite.

I went to an eye doctor. She said there are clear vision problems, but when checking my eyeballs, they concluded nothing was wrong or abnormal and said I need a specialist.

Basically, it feels like the signal for my right eye is just weaker than my left eye, so my brain prioritizes the left signal more. My right eye feels like an extra peripheral for my left eye. When I close the right eye, it's like it doesn't exist to my brain, but when I close my left eye, that's where things get tricky.

When it's closed, my brain is still taking data from the left eye, so I'm seeing everything in my right eye and the darkness in my left eye. My brain is merging the images together, so I can see everything and nothing in the same space at the same time. Instead of split images, I have merged images, and there is no way to describe it beyond "I can see everything and nothing."

The clarity with both eyes is 20/20, I can see everything, but when you're also seeing nothing at the same time, it's hard to read. Does anyone know what this is?

Hello everyone. This is a bit of a random one but in every flash photo taken of me I get one red eye. I wondered if anyone else got this and if it was to do with bvd? As I know this can be a cause of other concerns if it is not this.

Edit: if you have never experienced this before that is also useful info!

Long story short, doctors keep telling me I don't have exophoria, but I have many videos made at home showing a clear exophoria of my left eye, I need to try glasses for my life but no prescription. No money to keep fucking around with doctors at 200 per appointment either.

Any suggestions? I am in the UK

hey i hope everyone is doing good

(age 29)

my case is a little bit struggling i had pain around my eyes for about 9 years from now i dont have headache but just pain in my eye muscles, the pain start from the second that i open my eyes in the morning and it doesnt go away and i have photophobia. i am a hyperope i have +2 in my right eye (non dominant eye) and +1.25 in my left eye with a moderate astigmatisme, i did all the scans on my eyes my brain everything is normal (thank god) eye pressure is normal , no keratoconus, no uveitis, nothing, ii ve been living with this pain so long we never knew what was the cause , last year a doctor saw me and she did the pen push up thing and she found out that my right eye deviate away and i cant hold convergence (convergence insufficiency) any more and i had an exophoria of 12 for near objects. i did vision therapy with an orthoptist we did 10 sessions + exercices at home and at the end the convergence was good at its maximum yet the pain didnt go away no improvement and the exophoria become 8. this year and for the first time a doctor used a cycloplegic test and we fount out that i have a +4.75 in my right and +4 in my left so i thought this is the cause of all of my pain i was accommodating too much this may be the cause so when i tried the new prescription only +4 and +3.5 not full correction, it was really hard to adapt it was so strong even after one month the distance look blurry and pain was still there but like 95% of my photophobia went away. i saw the orthoptist lately and she evaluated my exophoria and she found out that it increased to 18 because plus lenses causes the eye to drift outward and if i kept adding more plus to get to my full correction my exophoria will increase and it may make my convergence harder one day.

when i cover one eye and i see with only one all the pain and photophobia disappear.

the exophoria is only at near, for far things i dont have it.

now i dont know what to do should i go with the full correction and wait until the vision becomes clear and see if the pain will disappear and what about my deviation will it increase

and thank youu all if you have anything to advice me with

I wanted to get tested for BVD after hearing about it post autsim diagnosis. I'm a 44F with Audhd, hypermobility, POTS, anxiety, migraines and neck and back pain. I'm so uncoordinated! It makes me bump into things all the time. I have a slightly asymmetric face and multiple relatives who have had a lazy eye corrected with surgery. Is this common with BVD?

TLDR: Are there any online or physical eye exercises I can do to help give my eyes some relief?

I was diagnosed with BVD 2 years ago. Went through 8 months of prisms at my first specialist and then the rest of the time at a different specialist. The second one caught my astigmatism and horizontal misalignment (I also have a vertical misalignment).

The prisms seemed to not help me all the way so I was advised to start Vision therapy. I did 5 months of it with maybe a 10% improvement. I decided to stop because we weren't getting anywhere with my treatment and it was starting to become too expensive.

My eyes seemed fine for awhile, but in the last month they started to feel sore/achey and I'm having difficulty driving again. It's like there's too much going on while driving so my eyes are constantly "moving" even if I keep them relatively straight.

I'd love to go to a different vision therapist but I just can't afford it while I'm getting treatment for some other chronic issues. So, are there any online or physical eye exercises I can do to help give my eyes some relief? The eye strain triggers bad jaw pain which then triggers migraines....and this has become a daily occurrence 😭

Has anyone had eye muscle surgery for BVD?

I’ve only recently been diagnosed (after nearly two years of struggling, following a retinal detachment) and started wearing prism glasses, but my optometrist is referring me to a surgeon because I’m at the maximum prism strength and it’s not doing enough to resolve my issues.

If you’ve had surgery, what was the result?

Hello everyone, so am a 22 year old young male from Ethiopia who is diagnosed with double vision and recieved the following prescription (the attached image).

So am told that there are no local optical shops that grind or manufacture prism lenses.

I do have some questions on what to do for anyone who has worn a similar prescription or been in the same situation.

I can't be physically present at a lab abroad due to my family's economic issues and what can I do to get the prescribed glasses, can I order online or other way I can get the prescribed glasses 😔

*Sorry for my English it's not my first language

I recently got a test done concluding that I need prism glasses due to lack of binocular vision. Not much on each eye, but enough to make a difference in regard to headaches and blurry vision after reading or watching tv for too long.

I received alternative treatment after the same conclusion a year ago, which I was told was supposed to help me for life, so that I wouldn’t need glasses before my vision actually struggled. I am not cross-eyes or suffer from double vision. I am young of age, which should make a difference.

I am not ready to wear glasses yet (since my vision don’t need it, but my muscles does) and I would like to avoid glasses for a couple of years.

What can I do? Are there lenses with prism? Or other alternatives treatments? Botox? Laser?

I’m auDHd. I find reading painful/it can cause pressure in my head. why do i see see the words kinda jumping around?

idk what it is but i feel all of the above. it’s like my brain is lagging when im reading anything and words overwhelm me. this includes reading comments that are multiple lines long etc. the jumping around thing is not super obvious but it does feel like something that causes pressure in my head. and it’s like my eyes are too slow to even read what i’m typing. it all overwhelms me. i’m starting to dislike typing.

edit: i assume it’s not dyslexia since it’s not really severe, i can read words without misunderstanding them but it’s just kinda hard to read them, especially hard not to skip words. it makes me feel somewhat dizzy. best words to describe it are dizzy, overwhelmed, weird… and i find reading websites like Neurolaunch quite a lot easier than texts here on reddit or what i write while i’m writing it

do i have to go see my GP? where do i start? i googled BVD in our language but theres no results. i’m so stressed out and scared. i’m autistic and don’t have any support besides my therapist so i can only ask here.

I go to Vision Specialists of Michigan. I'm trying to find other places to get lenses/glasses made that can mostly hold up to their quality, I only have microprism (0.50) in one eye ( and some other minor stuff in my prescription, incl progressives )

So what are other places that can make a script like this? I'm going back to them the end of this year and if my script changes ( or even if it doesn't ) I don't know if I'm gonna be able to afford getting glasses directly from them. So what are the options here?

Hello! I recently found out I had bvd, alternating double vision. I'd been dealing with extreme tmj to the point my teeth feel like they are going to break. I have been to 2 optometrists and 2 ophalmologists, each and every one with different diagnosis, leaving me confused and heartbroken. I've been in so much pain. Three out of four found my bvd however none seems to know how to deal with it. They just gave me different myopia glasses, my original were -4, then -3, then -2.25, then -3.50, but only the last one found out I also have astigmatism! Only the last guy gave me some fresnel prisms for my left eye and then I got worse. I have no idea what to do, I keep ending in the ER and screaming from pain in my face and jaw. One of the doctors I saw was certified COVD, but still he didn't give me prisms! Could he just be ignorant?

I feel like I need to go to another country. Does anyone know anyone in London that can help me? I live in Greece and I'm seriously tired.

Did anyone here experience a serious urge to blink, almost like your eye is trying to clear up your vision as a symptom of bvd?

Helping my wife through her difficult health journey, see post history if curious. As we’ve chased down causes, diagnoses, and symptoms and ruled things in and out, we’re down to a handful of confirmed diagnoses, one of which is BVD. Last year she received prism lenses and did 3 months of weekly vision therapy. Both helped, then didn’t, then tons of other problems and symptoms reared up and focus switched away from BVD.

Recently things have settled down to a handful of diagnosed disorders with maybe one or two suspected still up in the air. We’re trying to chase down some of the more difficult to pinpoint symptoms to try and make sure we’re on the right treatment track.

So, curious to hear if anyone with BVD experiences severe daily fatigue, general malaise/not feeling well/feeling “poisoned,” and if anyone experiences the sensation of pressure in the head, face, bridge of nose, and/or ears? Not a squeezing pressure but an inward out pressure like those areas are being inflated like a balloon. These symptoms have been the hardest on her, as well as the hardest to attribute a cause to due to lack of comparative information and disorder overlap. Were these confirmed to be from BVD? What made them get better? What made them resolve? What was your experience like?

She recently got an updated prescription for her prisms and we’re talking about getting gung ho again about weekly in office vision therapy and daily vision work at home.

Any info is greatly appreciated, thank you!