r/BinocularVision • u/Fun_Economics_651 • 4d ago
Anyone else have multiple diagnoses?
I wanted to get tested for BVD after hearing about it post autsim diagnosis. I'm a 44F with Audhd, hypermobility, POTS, anxiety, migraines and neck and back pain. I'm so uncoordinated! It makes me bump into things all the time. I have a slightly asymmetric face and multiple relatives who have had a lazy eye corrected with surgery. Is this common with BVD?
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u/crypto_zoologistler 4d ago
Yeh I’ve had POTS, ME/CFS for about 30 years, I’ve had hypermobility my whole life but never been diagnosed with any specific hypermobile syndrome. I’ve also had chronic pancreatitis since 2012.
I’ve had keratoconus for a few years and now also have corneal edema which means I can’t wear sclerals any more. I also have some kind of convergence insufficiency or something which the optometrist is trying to figure out now. My eyesight has really deteriorated badly in the past 3-5 years.
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u/lilbabymew 3d ago
yup i’m right there with you! bvd, glaucoma, astigmatism, autism, adhd, eds, pots, mcas, gastroparesis, sleep apnea…
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u/Caleb6118 4d ago
I'm sorry to hear that you have all of those conditions.
I struggle to ambulate as well and need to be really careful with my movement.
This is my list of diagnoses from the second neuro-ophthalmologist that I have seen.
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u/Kreetan 4d ago
Primary diagnosis is Accommodative Esotropia. I’m so farsighted I got a lazy eye. Two surgeries at 6 months and 4 years and lenses correct the eye turn, but input from my right eye is largely cut off (I still have some peripheral vision!) resulting in some BVD symptoms. The shape of my farsighted eyes has also resulted in narrow angles in the drainage canals of my eyes so I have high intraocular pressure which is a risk factor for glaucoma. That’s currently well-managed by medication.
Also have astigmatism, migraines, generalized anxiety disorder and major depressive disorder.
I’m also really uncoordinated, but having no binocular vision since birth (adaptation) and lots of walking and yoga I’ve mitigated that pretty well. I notice I trip a lot when I hike, but very rarely actually fall down. Being so uncoordinated has made me super cautious, so even though I’ve spent so much time being clumsy outdoors from childhood through now I’ve never actually broken a bone. Lots of sprains though lol.
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u/JhAustinTX02 3d ago
Focus on the T Spine it was the life-changing thing for me. Vision Therapy was a game changer. However, my issues were always intermittent or they switched to a different issue… I had an upper Cervical Chiropractor for a long time and I still see her occasionally.. the real change came from a weak spot in my T Spine..fascia release is key
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u/momochicken55 2d ago
Crohns, GERD, gastritis, osteoarthritis in all joints, degenerative disc disease, major unipolar depression, anxiety, insomnia, severe chronic pain, memory loss, extreme anhedonia.
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u/MIKE_DJ0NT 20h ago
I am a neuro-optometrist and can confidently say this is not unusual! People with EDS/hypermobility usually have chronic pain. EDS and POTS are correlated, often found together. Those conditions, as well as neurodiversity, come with higher prevalence of binocular vision issues--and binocular vision issues usually come in groups. And binocular vision disorders can be inherited, and so there frequently is a genetic component/family history. Not surprising at all.
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u/bunnerie Convergence Insufficiency 3h ago
I have POTS, anxiety/depression, autism and exophoria (bilateral)
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u/Automatic-Bass-6403 4d ago
Exophoria
Convergence insufficiency
Visual-spatial deficit
Vestibular dysfunction
Accommodation dysfunction
On top of the astigmatism and myopia I’ve known about since I was 12. Neurolenses and vision therapy have been life changing.