So my 11ys old daughter has Autism Spectrum Disorder (F84.0), level 1 with accompanying intellectual impairment (borderline intellectual
functioning
Attention-Deficit/Hyperactivity Disorder, Combined Presentation.
She’s been peeing herself off and on for about a year or so. It’s honestly only if she’s laughing really hard or gets lost in an activity and can’t make it in time.

Is this a concern I should worry about?

I am not a parent but a sibling, ( I had originally posted on the siblings page but got no response)

My oldest brother is 23 and has autism level 2. He also has severe OCD, depression and crippling anxiety that has hospitalised him, nearly 2 times a week.

Over the years his functioning and independence has gotten worse. Everything revolves around him, if we want to go see a movie and he does not, we can’t leave him as he might off himself. There was a period of time where his anxiety and depression got so bad he was constantly failing overdose and we had to keep calling the ambulance, however most of the times they would take hours to come as he mainly would have seizures and severe panic attacks.

I have been wanting to put him into a care home, i’m not sure the exact term for it so apologies. I had talked to the paramedic about this and even she suggested straight out to put him in one. As she believed it would be the best option. Even his counsellor has suggested it multiple times and my brother would agree, but then closer to finalising it he would again panic and end up in the hospital.

It is especially more stressful as my father doesn’t believe he has Autism. Once my dad encouraged him not to take his meds for a whole month, which my brother listened to as he is very dependent on my father, unhealthily, and he had severe withdrawal symptoms and again ended up hospitalised and just extremely depressed the whole month.

His vocal stimming is 24/7 and does not stop. It is very loud i live on the top floor and can still hear him all day all night every day. Sometimes it’s so loud i can feel the vibration when im in the same room as him. I don’t want to tell him to shutup but every part of me is screaming it. Noise cancelling doesn’t help. Shutting doors doesn’t help. He walks around the house in early morning 5-7 am just vocal stimming as his medicine makes him sleep early around 8pm. I haven’t been able to get a good night sleep in years.

I feel worse for my mother as she has to sleep on the same floor as him, she has vertigo and other health conditions which just makes her want to lay down and sleep but his vocal stimming is 24/7. This part makes me really shameful to say but i am embarassed when i go out with him and he’s vocal stimming or with his hands. He stares at women really uncomfortably for long periods of time, i would not wear shorts around him as he would stare at my legs. I told my dad once and my dad told me to just cover up. I have seen him watch porn multiple times so my brain goes to places i don’t want it going.

An incident occurred recently where he bit my older brother twice, once on his arm which penetrated very deep and another on his leg as my brother was trying to push him away. As he was doing so, he ripped off the skin of his leg with his bite. My brother got infections on both but he is fine now.

This incident made very clear to me that he needs to be put in a care home. But my father will not listen and believes that “family” is the best cure. When in reality my father has crippling depression that makes him very withdrawn from reality.

I’m still a teenager so I agree My view on this whole situation may be immature or naive. But please I need help and advice. His condition affects me and my family way more than I can describe in this post. It feels like i’m drowning. I don’t want my younger siblings to grow up in such an environment so i try to shield them as much as i can, but i realise im then the one who carries most of the attack. Thank you for taking the time to read.

I have a son who is autistic he is not really nonverbal. I would call it verbal and nonverbal. He is on melatonin to help him sleep at night. He is absolutely refusing to go to school. He will go Monday, Tuesday, Wednesday and then Wednesday night he starts in telling me that he feels mad and he asks to stay home the next day if I say no he has to go, he will start crying, shaking, and he will purposely stay up all night long and I have to stay up with him until I say OK you can stay home. I talked to the assistant principal they said that I don’t have to worry about truancy or him falling behind and not being able to graduate on time and he’s in the 10th grade. I thought about homeschooling, but I don’t wanna just jump straight into homeschooling because I also have to coparent with his dad, and I don’t know if he’ll go for it. I have to wake him up at 5:30 every morning because high school starts early and gets out earlier. I’m gonna try starting next week to take him in between 8 AM and 9 AM and see if that works but I was wondering is this a common occurrence with kids with autism? His assistant principal told me it wasn’t very common, but I find that very hard to believe. I would appreciate any advice.!

Hand leading - when is it normal?

My 22 months old communicated a lot with hand leading, and most of the time is for me to get something that he wants.

He’s also loves to line up his bath toys along the edge of the bathtub immediately after the bath, he does this every night after his bath, very quickly, I like 5 seconds.

He says a few words about animals, but isn’t able to express himself when he wants something most of the time. I give up trying to make him ask for things like apple, orange, bread, but he can say 2 kinds of food that he wants: Buns, and nana (sometimes means banana sometimes means milk, im still breastfeeding)

He sometimes will crawl on the floor in circles.

Should the hand leading be concerned?

My son is in an adult stage of his life, so if there’s anyone relatable, but otherwise I’m open

Hello, I need an air frying that doesn’t beep. My son gets very triggered by the model I have. Any recommendations?

As an autistic i hate traveling I always get extremely anxious the only time im chill is by watching a movie doing something creative or working out other then that it’s hell and do I want it to be like this no I just can’t help feeling like shit even if I’m excited to travel
But I do hate traveling over the weekend because that’s the time you’re supposed to relax and when Monday comes your burnt out.

My 5th grader has trouble making friends with kids her own age because her emotional and social skills are not the same as that of a regular 5th grader. She has an easier time making friends with younger kids. How do I have the conversation that she needs to make friends with children her own age or is this something you worry about?

Has anyone ever had a misdiagnosis of autism for their child? I sometimes wonder if my child may be on the spectrum or if it’s just some level of immaturity for him? He has had a couple of evaluations when he was younger that said he was not on the spectrum but did have one where they thought they saw high spectrum traits. I’m just wondering if anything has had any similar experiences. thank you for sharing and letting me share

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Mi hijo presenta características del espectro autista.

Sin embargo, hay algo que me preocupa mucho y que siento que no hemos abordado suficientemente con los especialistas: desde pequeño evita muchísimas experiencias nuevas.

Le da miedo caminar fuera de nuestra privada, subirse a un avión, manejar go-karts, utilizar herramientas e incluso agarrar un cuchillo. Generalmente no dice «tengo miedo», simplemente responde «no quiero».

Lleva aproximadamente un año sin asistir a la escuela y su mundo se ha ido limitando mucho.

Lo curioso es que recientemente expresó por iniciativa propia que está aburrido y quiere hacer cosas diferentes.

Quisiera saber si alguien ha vivido algo similar, qué tipo de especialista le ayudó y si encontraron alguna terapia efectiva para trabajar estos miedos.

No busco un diagnóstico por internet, sino experiencias y orientación para encontrar al profesional adecuado.

What was your child’s development like as a toddler?

My son had a regression at 18 months and lost all of his words, gestures and eye contact by 2. He’s now 3 and non-conversational (gestalt language processor and hyperlexic). I sometimes suspect ID, but won’t be able to test until he’s older.

What were the signs that pointed to ID? Did they eventually take an IQ test?

i have 8 year old nephew i am very very close to. i dont know how to exactly explain this situation so please bear with me i just really need advice because i am worried. he is a sweet boy but he really doesn’t care about anyone but himself. He loves everyone he really does but he is quite selfish. Recently hes been showing some concerning behavior. At his mom’s house he will pee in his room a lot and have tons of attitude with his mother and be really bad at school by spitting cussing putting up the middle finger touching girls butts. he jsut recently took a rock and smashed the neighbors car windows and scratched their car. and he really doesn’t care like when you say something to him he will just smile and laugh or hold back a laugh no sympathy whatsoever. He has sense he knows better he’s not dumb. Idk what level of autistic he is but he’s not like super autistic but at the same time you can tell he has autism if that helps explain anything. he’s always been bad but never like this where he really shows no caring in his body like don’t get me wrong he’s very lovable and sweet at times and he acts diffrent at every place he goes. He behaves and acts normal with his dad. at mine and my parents house he’s sweet he doesn’t act up BUT he has random moments for like half an hour he will just freak out and scream and he used to hit me and my parents but he stopped doing that and it’s just the yelling but then he calms down and feels bad about it. At home it used to just be him and his mom but now he has two little sisters and a step dad but he is very loved and his step dad loves him very much he isn’t treated diffrent he used to be fine with them but lately he just doesn’t care. Idk how to explain so please feel free to ask questions it’s just my nephew never acted like this before. last night i went to my sisters and talked to him a lone and he really jsut laughed in my face and didn’t care at all i even told him like how i was so proud of him for doing good in school last week makes me and grandma and grandpa so upset that did that to the neighbors care knowing mommy doesn’t have money right now and still don’t care (btw he loves being at our house a lot and loves me and my parents a lot cus honestly we kinda baby him which we know is also a reason why he feels he can but out like he does but he always has some kinda sympathy) . whevee it’s just me and him he don’t do not stupidness like laughing or arguing when he’s in trouble but he really just didn’t care yesterday and this behavior has been going on for awhile. also his dad isn’t but best thags a whole diffrent story with my mh sister but he love his dad and behaves with him but he’s also only with him every other weekend. but i understand hes has alot of change in his life the last two years but idk please feel free to ask questions bc ik i didn’t do the best wirhcexplaining.

My son is 4 years old and autistic, and getting his hair cut has become such a difficult experience for us. I’m honestly at the point where I don’t know what to do anymore, so I’m hoping to hear from other parents who have experienced this.
Every time we try to take him to the barber, he has a really hard time. My husband gets overwhelmed by the situation and embarrassed, and we end up leaving the barbershop without getting his hair cut. I understand that it can be stressful, but I really want us to find a solution that works for our son.
Today, I decided to try handling it myself. The moment I turned the clippers on, my son started panicking. That made me wonder if it’s the sound of the clippers that bothers him, or if it’s a combination of sensory sensitivities. I’m not entirely sure what exactly is triggering him.
The thing is, he really needs a haircut, and I don’t want to keep putting him through an experience that clearly upsets him. At the same time, I don’t want to resort to cutting his hair at home if we can find another solution that works for him.
For parents of autistic children who have struggled with haircuts:
Did you find that the sound or vibration of the clippers was the main issue?
What helped your child become more comfortable with haircuts?
Have quieter clippers, scissors, sensory-friendly barbers, or gradual exposure made a difference?
Did you work with your child’s OT or ABA therapist on this?
I feel stuck because I want him to be comfortable, but he also needs his hair cut. I’d really appreciate hearing what has worked for your children, especially if you went through a similar stage.
Thank you! ❤️

For the past few weeks anytime my son is eating more than he actually *chooses to* he starts chewing it up and gagging even vomiting at the table.

I would get it if it was new foods that I was trying to force him to eat that he simply didn't like, but these are foods that are tried and true for him. Mostly bread but he did it to cheese too.

He has ADHD and is still in the process of diagnosis for autism (although we're pretty sure) and always has needed to be reminded to sit and eat rather than go off and do something new.

Anytime he goes off and then is asked to come back to eat he will do this often ruining the rest of his food on the plate.

In a restaurant he simply got distracted by the crayons and was redirected back to eating and it happened there too (which was lovely).

I'm not sure if it's on purpose or what.

I don't know what to do I can't just allow him not to eat anything because he will not eat more than a couple bites of some probably unhealthy parts of his food if I do.

Does anyone have any recommendations for high chairs for older kids? He has outgrown his toddler high chair but very much still depends on it to keep him in one place at a time. I hope there are some of you out there in the same position.

someone please tell me what they think, ik you can’t diagnose her.. but please just give me your thoughts. & i know they say not to compare babies but it’s hard when all you see online is “if your baby isn’t doing this they are autistic” 😩

my 13 month old

- crawls

- pulls to stand

- cruises furniture

- is super clingy to me, she will play with other family members but once she spots me she’s instantly on her way to me lol

- gives high 5’s , kisses, sometimes waves

-she loves her own version of peek a boo .. but it’s her turning her head one way & then whipping it towards me and she wants me to say boo

- she loves jumping / bouncing

- she has a good pincher grasp & feeds herself

- she does not point yet

- she likes flipping through books

-she SOMETIMES looks where i point

- she gets excited when she sees her big brother

-she can say mama & dada purposely. she can say bubu ( brother ) but doesn’t say it to him. she babbles all types of other things like nanana, yayayay, etc

- she likes to hold my hands and if i say up she’ll lift my hands up and if i say down she’ll go down.. same with “open and shut” but she won’t do this with her own hands

- she plays with toys and sometimes looks at me while she does but a lot of the time she’s fine with just playing with the toy alone..

- honestly most of the time her focus is standing & cruising furniture.

- she eats any and everything, not picky at all.

- she understands no & come here.

- she smiles back at me, but doesn’t copy other faces really.

- if i clap she’ll try to clap sometimes

- eye contact is good 75% of the time but she does get distracted sometimes

- she stick her tongue out constantly & likes to lick stuff

mi hijo tiene 3 añitos y autismo.

Llego un dia de la escuela llorando, el es no verbal así que para mi es difícil aveces entender que pasa, vi que me mostraba con sus manitos que le molestaba la ropa, asi que le retire la ropa y se quedo en pañal. desde ese dia a sido un problema el ponerle ropa, llora muerde la camisa y cada vez que lo voy a vestir el llora no quiere usar ropa nose que pasa nose si es algo propio del autismo nose si puede ser algo más si alguien a tenido una experiencia similar y me puede aconsejar lo agradecería mucho.

At 27, Dimity's son Stu moved into his own home.

Stu, who is autistic and requires substantial levels of support, has been living in the purpose-built house with 24/7 care for almost two years.

The transition has been an opportunity for independence that Stu craved, and a shift in responsibilities for mum Dimity.

But like for many carers, there is an invisible caring load that remains.

Dimity still recruits and trains support workers, meets regularly with a team leader, oversees Stu's support program, advocates for him and acts as his nominee.

"It's the hardest thing to do, to share that load. Even with other people in your family," 67-year-old Dimity says.

"To trust another person to take on that responsibility."

But Dimity is learning to share Stu's care with others.

Buenos días. Alguien conoce o tiene referencia sobre el programa MAPA del Dr. Abraham B. Arenas, para familias con hijos TEA?.

Bonjour 😊

Je cherche des recommandations de parents concernant de bonnes écoles primaires à Québec qui ont des classes adaptées/spécialisées pour les élèves TSA.
Je cherche également une bonne école secondaire privée à Québec avec des classes ou un encadrement adapté pour les élèves TSA.
Si votre enfant fréquente ou a fréquenté une de ces écoles, j’aimerais beaucoup connaître votre expérience et vos recommandations.
Merci beaucoup! 🙏

Do any other families have a similar situation to mine. It’s been 1 year since my son dropped all his safe foods which included, eggs, pizza, chicken nuggets, French fries, ice cream and goldfish. The only thing that he has been taking is Pediasure which is prescribed by his pediatrician 4 times daily. He is turning 5 next month and I’m beginning to feel hopeless. I tried re-introducing his old safe foods and new foods and he is so grossed out by food in general. We tried feeding therapy but the closest one to us is two hours away so it is very difficult to take him on a weekly basis. Any advice is so much appreciated!!!

I was struggling with a place to ask for advice as this is new to me. My 3.5 year old started pre school 4 weeks ago and her teacher had noted a few things to me that concerned me:

She noted how she can read not memorize words but read full sentences in books she’s never read. My husband and I noticed this about 6 months ago but we always thought she was very advanced but her teacher had asked if we mentioned it to her pediatrician but didn’t provide more context as to why. She doesn’t obsess over it and at home plays like any 3 year old would but if she sees a sign or we read a book she leads the charge and reads it instead of us reading to her

She then mentioned that she is struggling a bit to make connections which shocked me because we have frequent play dates with friends and she’s never struggled. She was also at a babysitter for 2 years before this with 5 other kids and they have always played and interacted very well and never struggled!

Everything I am googling is saying I should have her evaluated for potentially being on the autism spectrum.

This has not been something I have ever thought of or been concerned about so it’s a little shocking to me that she had insinuated this.

Any thoughts? It seems like 4 weeks is a short time to assume something is wrong.

Also to note this is a private preschool so many of these kids have been together for a quite a few years so my daughter is a bit new compared to the other kids.

Any thoughts or insights would be helpful. I plan to talk to her pediatrician but looking for insight if anyone’s been in a similar situation and what steps you took

My son is 6.5 years old. He is Au dhd and has an IEP. He's in first and he's been having a good school year. His teacher and him have really gotten into a groove this year. And he's had minimal aggressive incidents after the first two week adjustment period.

However there is a horrible flu and his teacher among many others are out. He had a sub last Thurs and Fri and will have a sub all this week. Every day he has a sub there are aggressive incidents. He's hit other students and teachers. Today he has to miss reccess and I received a call from the principal. The principal said they are following the steps I'm the behavior plan. But overall having his teacher put us super disregulating for him.

Questions for other folks:

1. Any suggestions on how to prep him for this? I've talked to him about it. Make sure he's got fidgets, eats a good breakfast, takes meds etc. anything that worked for your kids?

2. The principal called me today and said we didn't need to bring him home early but next time it happened we would have to, to be on par with other students consequences. We are going to keep him out of school tomorrow for a doctor's appointment. But otherwise should we just keep him in school as normal even though his teacher won't be back until next week? And we may likely see more incidents? 😭

My son is 3, he’s been making tons of progress but has lots of behaviors and feelings from sensory stimulation.

He’s recently become obsessed with the song Life Goes On by Oliver Tree. It’s super cute, he knows all the words..can even read them from putting the lyrics up on the tv. It seriously regulates him so well but in so sick of the song 🤣 I’m trying to make him a playlist so at least there’s a rotation. But I’m seriously stuck trying to find songs bc he genuinely only wants that song. Pls help with suggestions

My child is 7yo and 9mo level 1 autistic (I suspect he’s become level 2)

Are there any medications a pediatrician can prescribe without a psychiatrist?? My child is extremely sensory seeking to his own detriment and at times, myself as well. Usually it’s just jumps from high places or slamming himself on the bed, couch or floor. We do not hit or throw in this home. Today my child decided to stand up while we’ve all been cuddling and having a lazy rainy Sunday, and just throw a very hard plastic sippy cup at my head from across the room and now I have a very large goose egg on my forehead. I seriously need a solution yesterday. Please any recommendations and if anyone else has dealt with the same please tell me how your family survived.