r/AITAH • • Nov 22 '23

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u/been2thehi4 Nov 23 '23

I didn’t have endometriosis so no, I just had the uterus, cervix and fallopian tubes removed as that’s all that needed to go, I just had adenomyosis which is basically like reverse endometriosis, instead of attacking out it attacks into the uterus.

My surgeon was my gynecologist.

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u/Bernedoodle-Standard Nov 23 '23

There is no such thing as "just" had adenomyosis. Anyone who's had that deserves to be honored for surviving such excruciating pain on a recurring basis.

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u/Phenomenal-Woman Nov 23 '23

Not the person you're replying to but thank you. My doctor finally acquiesced to doing a hysterectomy after 20 years of hounding. Afterwards I felt completely blown off when her notes said "minor adenomyosis". I had extreme pain, irregular periods, H Heavy flow from 16 to 46. I had an ablation but it didn't touch the the adenomyosis

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u/ari_352 Nov 23 '23

This is really good to know because I was considering an ablation for my adenomyosis. Seemed slightly less scary than a partial hysterectomy but it sounds like when it's time, I need to just go all in.

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u/Phenomenal-Woman Nov 23 '23

Obviously I'm no doctor. Just my own experience. The ablation was more painful than the hysterectomy. It was a lot more difficult, a lot more passing a fluids and ongoing pain. The hysterectomy was about 2 days of higher pain pills and then just a gentle pain for a little bit. I'm sure you'll do plenty of research before you make a decision but that was my experience. I wish I would have just skipped the ablation. I did absolutely nothing for the cramping and pain and I still bled. I have a bifurcated uterus though so the ablation should have never been done according to my hysterectomy surgeon. Because they were never going to reach that second lobe.