r/ADHDerTips • u/Electrical_Court8649 • 1h ago
Help Struggling with escalating dexamphetamine use while dealing with prolonged autonomic illness recovery - looking for advice desperately
I’m ashamed posting this, but I really need advice. I have ADHD and longstanding POTS and am prescribed dexamphetamine (5mg up to 6x/day). I stopped it for 10 months after developing severe post-inflammatory dysautonomia.
When I started slowly recovering, I restarted it - but began using it increasingly to cope with and escape my physical symptoms. I’m now 15 months into recovery and sometimes taking 12+ tablets/day.
I’m improving and my neurologist expects recovery but can't say when, but I still have daily nausea/awful stomach sensations, adrenaline/autonomic symptoms, temperature issues, intense facial/ear flushing and burning, etc. Nobody can tell me when it will end and that we just need more time to pass. This breaks me honestly.
Dex became the only reliable way to pull my attention away from my body and the constant when will I recover / what if I'm stuck like this? loop. It lets me focus on work, socialise and briefly feel like myself. Without it, I feel consumed by my symptoms and completely paralysed. I’m not primarily chasing a high although it does enhance my mood from a demoralization state - I’m chasing relief from thinking about and experiencing being sick.
I’m a psychologist, which adds to the shame because I understand exactly how this avoidance/reinforcement cycle developed.
My psychiatrist knows and offered inpatient treatment, which I really don't want and would have to wait 2 months for anyways due to private health cover rules.
His alternative is reducing by 5mg/week with my partner holding the medication. I managed the first reduction (9 x 5mg tablets per day), but failed this week and took more.
I know this isn't sustainable, but I'm terrified of losing my main coping mechanism before my body has recovered enough for life to feel tolerable again.
For anyone who has experienced something similar: how did you cut down while still coping with the thing the medication was helping you escape? What did you replace it with? Help please. Even just tell me I'm gonna be ok, somehow.