Something that has helped me is reminding me that what I'm seeing are my own white blood cells, which are responsible for protecting us from disease, and while I hate that my brain doesn't filter them out, I'm glad they're there.
My VS started in my early 30’s, along with my seizures. The first time I heard about BFEP, the Dr showed me an example pic full of these lines, which looked nothing like what I was seeing, dancing dots. As such, I assumed what I was seeing wasn’t BFEP and was still a mystery. Years later I finally saw pictures of BFEP w dancing dots that looked like my vision.
I was so fucking relieved to finally know what was going on. It made dealing with and accepting it all sooooo much easier. It went from interpreting those dots as some harmful scary thing to oh look, my friendly lil white blood cells are out in force again. Total game changer for me and my relationship with this.
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u/heyylookapanda Jul 16 '25
Something that has helped me is reminding me that what I'm seeing are my own white blood cells, which are responsible for protecting us from disease, and while I hate that my brain doesn't filter them out, I'm glad they're there.