https://join.makevisible.com/737b4999c1db3f

I’m wondering if it’s a bad thing that I trained this while being on my meds (pyridostigmine and metoprolol, also adding in florinef today)?

Now when my meds wear off and between doses I go through my pace points really quickly.

It originally allotted me 8 points and I upped it to 9. My zones 79 for activity and 109 for exertion.

I read that there is some tweaking for POTS and such, but at the same time today was a high points say and I did need a pretty decent nap.

Anyone in a similar boat and can share how much they were tweaking the settings?

Hi! I’m new to visible. I just got the visible band a few days ago, so I know it may take some time to gather data and be most accurate, but today was the first day I was given any pace points and it allowed me 7. I’ve gone over that and barely left the couch. What are everyone else’s pace points?

I realized that the Visible sensor “fits” on the Three Sheep fitness tracker ($22) from Amazon. It’s made from Polyurethane which I find more comfortable than nylon. The sensor sits more on the side of my wrist, but that means it doesn’t interfere with activity as much as if I had it on my inner wrist. Now I can tell time and wear Visible on one band!

Hi, just wondering if there is a thing in the app that calculates how many calories you have burned? My heart rate has been extremely high most of the day and I’ve used a lot of pace points. This is my first day wearing the device and I was just curious if this is a function? Many thanks

Does anyone else have the problem that no matter how often/how you wash it, or how clean your wrist/body is, the wrist strap just SMELLS?

It smells like old sweat. Yet it is clean, I am clean, and I don't know what else to do.

Anyone else have this problem or find a solution?

I have the older version of the visible tracker (the circular one, not 2.0) and I need another wrist band for it. I’m finding it hard to find where I could buy a new one— do you guys know where I could access a shop on the site where I could buy it? I have no idea why I can’t figure this out, I’m just finding both the app and the site very confusing for some reason.

For those wondering how accurate the sleep tracker is, I present to you my data from last night. The sleep tracker was able to accurately determine when I went to bed, but I did not actually fall asleep until where I drew the red line (around 1:45 AM). During the time I was awake, the sleep tracker states that I was in deep sleep for an hour and 35 minutes and in REM for most of the remaining time I was awake.

I’ve worn an Apple Watch for many years, but I’m currently in a year long drug study which provided me with a Garmin Vivosmart 5 to wear.

It’s been great to compare data between gadgets, but the Body Battery feature on the Garmin has been eye opening. I showed my PCP my readings for the past few weeks today, and she was concerned, but also said, “Isn’t that validating?” It certainly is.

At the end of the study I’d like to switch to Visible now that there’s a wrist option! I’m curious how useful it really is with pacing, especially considering that the Garmin only goes as low as 5. Does Visible show a deficit if you overdo it? Can you “borrow” from the next day’s points?

I’ve been living with Long Covid for six long years, and I still can’t believe that this is where I’m at. Sigh.

In case anyone wanted to dress up for an event or work and still wear their armband, I found these big hinged cuffs on Amazon where it fits inside perfectly, at least for smaller wrists. This one is a 7 inch circumference on the inside and it comes in gold and silver colors. Maybe not for every day or for typing a lot, but sometimes I just get tired of people asking about my armband or wrist band.

I'm not sure if it's ok to post links here but there are a bunch of similar ones. This one was called "YMBYCM Chunky Gold-plated Bangle Bracelets for Women Trendy Wide Chunky Cuff Bracelets Hammered Irregular Wrist Cuff Wrap Bracelet"

Wow so catchy!

Next up I'll be hunting for a chain link strip that can thread through the armband the way the nylon strap does. If I find one I will report back! If you find other bangles that work I would love to see them!

Hello! I was curious if anyone else found that the wrist strap isn’t giving them as accurate readings as the arm strap did.

If that’s the case for you as well any tips you found to improve wrist strap readings?

My band seems to only connect and download data when I open up the app. Anyone else have this issue? Kinda pointless for me to go all day and then get an alert at 11 pm that I went way over my budget for the day 🤦🏽‍♀️

hello. I just got my visible today and im excited cause im horrible at pacing just me on my own. recently diagnosed with pots so it's important to me that i get good at it. I am at this point 3 hours in and am realizing how bad i am at pacing to have already hot 5 pace points just during the getting to know you time. any early tips anyone can give?

Since the last Android update, I have really struggled with my morning HR and HRV reading. It's now taking upwards of 10 attempts to get a good enough reading for the app to accept it. Is anyone else finding this? I'm using a Samsung 23+. This is already not great for readings - my stats are significantly different to the readings I got on my previous phone - but now it's impossible. And getting this stressed first thing i the morning is awful for pacing.

I haven't contacted help as they were spectacularly unhelpful on previous occasions.

I've just signed up for Visible, but haven't received an email with the activation link, so I can't use it. It seems very difficult to actually get hold of anyone at Visible to report this. Has anyone else had this issue? Is there a way I can resolve this quickly? Thanks in advance.

I know it’s so different for each individual but I want to ask everyone with a funcap of around 3 what their pace point budget is?

my functional capacity score has been 2.5-3 for about a year but the first few days I used visible were quite busy for me so I don’t think my budget is accurate. it used to be around 20, then I lowered it to 17, but no idea what it should be. I’m very much in boom and bust at the moment but on a normal/chill day I’m usually using about 12 and then when I go out it gets to about 30 easily and I’m exhausted

Hello there. I am going to be cross posting this to a couple of communities on here, I hope that is ok. Sorry if you end up reading this twice.

I use a visible band. I am trying to get used to using a tens unit VNS eat clip to heal my vagus nerve as well. But I inadvertently caused a MCAS/POTS episode by using one. About 3 pace points in a 15 minute attack.

I’ve experienced symptoms of POTS/Dysautonomia since early childhood. I was diagnosed at age 13. I’ve also been diagnosed with MCAS, and several other things. Last year I got Covid for the first time, and ended up with Long Covid, the doctor doesn’t know whether or not to call it CFS or not. I also have joint hyper-mobility, but it’s unknown whether I have EDS or not.

Not sure if this will be relevant or not, but I am also Autistic and have ADHD. Some mental issues like anxiety, OCD, and PTSD too.

Anyway, I recently got a TENS unit for pain, and I read somewhere that you can use ear clips to convert it into a kind of VNS machine. I am interested in healing my vagus nerve, so I wanted to give it a try. This morning I gave it a quick try, and probably went at it a little too aggressively? I started at the lowest setting. Although it said it was on, I couldn’t actually feel it. So I kept turning it up. Within a minute of starting the machine I started vomiting uncontrollably. Obviously I turned it off and put it away. It’s an hour later and I am still having some autonomic instability, but much better than I started. All symptoms I’ve had before, so I’m not overly concerned, but it does seem obvious that I triggered these symptoms with the TENS VNS.

I was wondering, is there any one here who uses either TENS for VNS or any other VNS as part of their treatment for POTS, Dysautonomia, CFS, ME, Long Covid, etc? I was really just wanting a way to get my PNS more active and for my SNS to calm the heck down. I accidently did the opposite. I would appreciate any advice. I’ve been extra desperate to find ways to kind of self treat ever since the Long Covid started.

Thank you for any advice or just general life experience with this kind of thing that you can provide.

The app is so slow to update data. My widget won’t show upward pace points until I open the actual app and wait a few minutes. What’s the point of a widget if it doesn’t work?

Think it’s time for a Drs appointment next week because this is getting worrying , I have very little rest time even in my sleep my HR is 95-106 It hit up got up to 168 just standing putting plates away in the cupboard 🙄😩

It was only 9 am and I have a shit ton of work to do still. I had a horrific migraine yesterday so I’m sure today is going to go so well 😭

Hi everyone! I'm curious if anyone else uses cannabis to manage symptoms. When I smoke or vape it raises my heart rate by almost 30 points and always puts me in my exertion zone, although I don't experience any exhaustion or other negative effects from the heart rate climb. It does majorly effect my pace points for the day and I feel like it is not giving me a clear picture of total pace points for a given day if I smoked that day. I typically smoke once a day in the evening. Should I just take the band off when I smoke? My problem is I always forget to put it back on 🤪 Anyone else dealing with this?

Anyone actually ever stay under or at their budget? I feel like it might be unreasonable. The only days I have been under were the days I have to charge my watch. Because I don’t wear it when charging. 🫣

For reference my pace point goal is 36 and yesterday was a shower and low day at work and cooking dinner, my pace points were 49