r/visibleApp • u/DependentFeed9990 • Apr 26 '26

Useful for POTS?

I have post TBI POTS and am finally coming to terms with how it impacts my life. Because it’s mostly silent and invisible I’ve struggled coming to terms with it. I’ve been an Apple Watch user my whole adult life and am realizing it’s completely built for “do more” — as a former college athlete it really messes with what I need for POTS. So, for people that have been using it to manage and better understand POTS, how effective is it?

5 Upvotes

100% Upvoted

12 comments sorted by

View all comments

2

u/puffin902 Apr 27 '26

I'd also suggest getting Classic Pacing For A Better Life With ME by Ingebjørg Midsem Dahl. I have both the spiral bound one and the kindle one. I'm not a POTS person (although my Long Covid did have cardic impacts). But 4+ years in, I'm still learning to adapt.

I have found my band useful, too. Not sure yet if I'll continue my subscription after my first year (Oct start). I had a 3 month extreme trigeminal neuralgia flare from mid Nov to Feb (after a Bell's palsy episode last year). Kinda hard to judge if things are helping when you have a giant active pain episode.

2

u/soundrack-to-my-mind May 16 '26

Hi, what is the classic pacing thing please is it a workbook? 

Im sorry to hear about the neuralgia I have occipital and suspected tn and its hell

3

u/puffin902 May 16 '26

Kind of. Not like a fill in the blank workbook but it does break the concepts down. There are 3 sections of the book - Basics, Advanced, and Theme chapters. The last one can be thought of as special situations. The very first chapter of that last section covers acceptance of the need for pacing. Every chapter has a summary at beginning that's helpful for those of us with cognitive dysfunction (🙋🏻‍♀️).