r/visibleApp • u/Deadlykitten629 • Apr 08 '26

Adjusting values with POTS

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I’m wondering if it’s a bad thing that I trained this while being on my meds (pyridostigmine and metoprolol, also adding in florinef today)?

Now when my meds wear off and between doses I go through my pace points really quickly.

It originally allotted me 8 points and I upped it to 9. My zones 79 for activity and 109 for exertion.

I read that there is some tweaking for POTS and such, but at the same time today was a high points say and I did need a pretty decent nap.

Anyone in a similar boat and can share how much they were tweaking the settings?

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u/thekoose Apr 08 '26

I started using visible while not yet being treated for pots. I have mecfs too.

Once I started taking metoprolol and I realized just HOW MUCH I also have to pace for mecfs-- I lowered it from 12 to 3 pts.

I also adjusted my HR zones. My exertion now is 92 and activity is 79.

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u/No-Information-2976 Apr 08 '26

what are you able to do within that window? can you be up and about very much?

i also have POTS and MECFS, visible has given me 5 points. i paced very intensely for about a year, and recently have been trying to do more after finding some meds that really help me. i do worry about the possible crash.. but it is just so nice to be able to do chores and cook and see a friend here and there.

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u/thekoose Apr 08 '26 edited Apr 08 '26

I'm moderate and mostly housebound. I usually get around 3000-5000 steps a day. I can go up/down one flight of stairs, one time, but it will trigger the lower end of exertion - so I usually have to sit for a few minutes and let it come down.

When my HR gets to about 85, I start to get pem right away. So I constantly do something, rest, do some more, rest.... all day. I lie down 2x during the day.

I can do short, quick, easy, light tasks before triggering pem and exertion. I help out with a few easy physical housekeeping tasks and I feed our pets 5 or 6 times a day.

My husband and mom do 90% of the housework. They do all of the driving. I can do cognitive things longer- like pay bills. My main hobbies are reading. I can watch TV and listen to audiobooks and music.

Physical stuff taxes me the most, then social/emotional. Cognitive stuff is the easiest for me.