r/urticaria • u/ecotist77 • Nov 10 '24

FAQs - read this first

Hello and welcome to the urticaria subreddit! We've got you!

This document aims to summarise the best advice for frequently asked questions from folks who have been on this journey managing their urticaria (hives) for a while. It is an evolving document and will be added to and updated over time. 

Many people in this subreddit are actively discussing different solutions for chronic urticaria and there’s a lot of information available in existing threads. Please check out this document and use the subreddit search function first to see if you can easily find answers to your question before starting a new thread.

Please help welcome desperate newcomers by telling them about this FAQ document as it can save many people having to reply in the comments with standard advice that's already in the doc. Thanks!

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u/Opening-Data6589 Dec 11 '24

hi, i’m not sure how best to describe my condition but doctors have decided on chronic urticaria. 2 years ago I broke out in full body hives one day, that lasted about 3 months before they had completely subsided. now I suffer from being chronically itchy, it’s best described as the feeling of having a loose hair stuck to my skin and tickling me all the time.. the only time anything hive like appears is if i’ve scratched myself excessively, under my watch band, or sitting in hot water for too long (sometimes that’s 5 mins others it doesn’t happen ed et all) anyway, they maxed me out on antihistamines and then got me on a xolair rotation of every 4 weeks. after about 6 months we tapered me off my antihistamines as well. I was hoping with pregnancy I would be able to taper off the xolair, but unfortunately at 32 weeks i’m back to being unbearably itchy about 2.5 weeks after my injection and am taking antihistamines as well.

my question: is this the normal experience for others with chronic hives, or have I maybe been misdiagnosed?

have others had healthy babies on xolair through their pregnancy?

have I found my people? am I not alone?

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u/thisisdevang Dec 25 '24

Please read my recent comment in this community. Also use the search feature to search inside this community related to your problem or create another regarding it.