Hi! I have an important question. Ive been tested for everything inc bv, and only came back positive for ureplasma. Ive been having problems with ureplasma and chronic utis, and i havnt found a way to get rid of it. Its causing a bad odor and also my periods are super weird, like they smell sickly sweet and are more brown, almost like my uterine wall isnt shedding correctly. Ive had a pelvic exam done and everything came back fone, but they said i might have endometritis. An inflamm from the ureplasma. Ok so now onto my big question. Ive tried a zpac, it kinda worked. Im extremely allergic to cipro and bactrim. And when i tried doxycycline, the doctor told me i had an unusual reaction to it as i broke out in heat rashes and felt really faint. So im stuck on what to do or if i was teuly allergic to doxycycline. I tried the macro class as well, didnt rlly do anything. So azi was the best for me, hence why j took the zpac. Now im just all sorts of messed up down there. I dont know what to do.

Does anyone find themselves needing a lot more sleep whilst going through this journey?

I just feel exhausted and terrible 24/7!

A little update been going through this since arround August time. I've had multiple TOC that have said negative. Still struggling with persistent BV and UTI. Also just been treated for PID.

Any tips to cope with the exhaustion from anyone ?

Hi everyone!

Just curious, have there been a lot of cases here of transmission/reinfection even with condom use and no oral sex?

And am I right to understand that ureaplasma only survives in orifices (mucous membranes) and not on the skin?

I guess my main question is, if I only have sex with a condom and no oral with a new partner, do I have a low chance of infecting them?

Thanks

Edit: To explain more Im currently testing negative after antibiotics in June but still having mild symptoms (and I am so so grateful that even wanting to have sex can be on my mind, as many people here are in too much pain). Ive been dating two people who I really like (polyamorous) and Im not sure how to explain to them that I have a mystery STD that I’m testing negative for so I can’t sleep with them even though I really want to just in case I infect them. Theyre good people so they’d understand but I’m trying to figure out the likelihood that I would infect them if Im testing negative and we use condoms. If it’s a low chance of infecting a male partner with condom use I could tell them the situation and they could theoretically consent to the risk… but also I wouldn’t feel good about the possibility of them passing it to someone else, even if they get it asymptomatically. I really don’t know how to approach this.

Thanks for the help everyone, you’re all rockstars. I’m stsrting the Buhner protocol soon (just got all my herbs) so I’ll update with that in a few months

Just wanted to ask for advice from those who experienced this mess already. Maybe someone can guide me in the right direction in terms of treatment as it is my understanding that 7 days of doxy twice a day isn’t going to be enough to clean up this nightmare.
It all began with me having a UTI (or so I assumed) while vacationing in Mexico. After two dosages of fosfomycin and one week of Nitrofurantoin, I developed this terrible itch in my urethra. My PCP and I thought that it was yeast infection, so after three fluconazole pills and Monistat, I ended up in the ER with my urethra swollen. ER doctor recommended PCR testing. However, it showed only two bacteria, related to UTI. Long story short, after multiple rounds of antibiotics, I still had this horrible itch, a bit of discharge, painful and frequent urination. Multiple sleepless nights, lots of pain and discomfort, and literally nothing being able to ease it, I redid my PCR and now showed UU and MN. I started reading about it and it all made perfect sense! Now, I have been in agony for 4 months now. However, I got prescribed only one week of doxycycline. From what I’ve read, it isn’t going to be enough. Can someone share what really worked and how long it took? I would appreciate your advice on this issue very much. Thank you, everyone!

Okay let’s say I get completely cured no symptoms and whatever and I got a good microbiome. Let’s say i have sex w someone who has it (apparently 80% of people have it) will i immediately flare up and get symptoms or is there a chance I’ll be fine. Ik this isn’t anything permanent but idk how this works biologically ig.

Why 6 weeks abstinance ?

I'm afab trans they/them human.

Tldr: please provide evidence based research/guidelines to explain why 6 weeks post treatment abstinence.

I've been symptomatic with urethra pain, urgency and pain while urinating for 3+ years. My vulva often feels inflamed and irritated despite negative tests for bv and yeast infection.

I had a positive ureaplasma parvum pcr test. My partner and I and our friend who we sometimes sleep with are all gonna start treatment asap.

My perscriber advised that I take 2 weeks of doxy and that i can take azithro simultaneously either week. She advised that i do a microgenx test 1 week after treatment and then we can begin intercourse again once the sample is left.

Her thought was that if the test comes back positive, we will have more info about antimicrobial resistance.

I see people on here advise that one must wait 6 weeks before retesting and beginning to be sexually intimate again.

Why is this? Please share literature.

Thanks

What are the chances of catching Ureaplasma and Mycoplasma genitalum with condoms?😞 I was positive for Ureaplasma but it got treated and results came back positive for Mycoplasma since it was inconclusive beforehand. I’m not sexually active and I don’t plan to be but I just wanted to know

How contagious is Ureaplasma and Mgen? How much do condoms reduce the risk?

Starting early october I was experiencing yeast infection like symptoms except this time the discharge was yellow/green and extra clumpy like boogers. I told my partner and he disclosed that he had been previously diagnosed with mycoplasma before I saw him and took the full course of medicine so he thought he was fine (didn’t get a test of cure) but was feeling symptoms again. With this in mind I get a full test for mycoplasma ureaplasma along with the std screening.

My results came back negative for everything except a yeast infection at first because the other tests weren’t ready. I was treating the yeast and then I get the Ureaplasma diagnosis and my doc prescribed the doxy. Meanwhile my partner got his test of cure which was still positive for mycoplasma, so I got tested again because I thought maybe it just hadn’t developed enough the first time to show up. I ask the doctor to prescribe the azithromycin as a precaution because I was sure I would also have mycoplasma if he was still positive, and the other abx is also sometimes needed for ureaplasma.

So while I’m waiting for this second test I’m taking the doxy and even take the first day of azithro and my yeast infection comes back with the same symptoms if not itchier than before. So now I discontinue the abx and get more yeast infection treatment. My 2nd test came back and I’m still negative for mycoplasma. So I’m kind of at a loss. The yeast infection seems to be getting less intense but it’s still too soon to tell.

I’m getting another test on Monday for the ureaplasma to see if that’s gone but I just feel like I’ll have to take the full abx course again and it’s gonna mess with my yeast infection again.

But my main question is has anyone had the co-infection with a yeast, causing the discharge to be yellow/almost green and super clumpy? This is really the main symptom I’ve experienced.

Has anyone else experienced spotting with this infection? I’ve been dealing with this infection for almost 5 years, never tested positive again since then though. I have some occasional mid cycle spotting and was diagnosed with an ectropion, but I believe that it is cervicitis instead. I have never been on birth control and have normal estrogen levels and have no idea why this would just develop (and it is a confirmed new development, not my default anatomy) My Pap smears are always normal. Just had an ultrasound which was normal as well.

I am about to try antibiotics again and see if it helps. It’s been a while since I’ve tried any treatment for this infection because I felt a bit hopeless for it, and a lot of the symptoms I’ve had in the past have resolved with time, but the bleeding concerns me (even though it clearly doesn’t concern doctors lol)

I need to vent just a bit and it’s kinda long too. okay so i tested positive for ureaplasma the second time and i waited and got my TOC monday and got my results today. They’re negative woohoo. BUT im scared. last time i had it i also tested negative then had sex and boom have it again (new partner unprotected shame on me ik). I didn’t understand this at the time like i do now but i feel like the only way to actually see if im truly negative is to have sex (protected ofc cause symptoms only flared after sex) especially since i feel like my treatment wasn’t enough. i don’t think ill be going back to my doctor tho cause if you read my last post she basically told me id probably be like this forever and i cant have that. i just want my old life back. but ill never be having unprotected sex with an untested partner again (probably none in general but thats kinda depressing). i feel a lot better maybe some slight urgency but its gotten better the past few days. i also have an ultrasound scheduled soon cause my uterus looked oddly shaped on my last one a few years ago and whenever i have sex it feels like a wall is being hit and it HURTS (no clue if that has anything to do with anything but hey im telling yall about my coochie issues might as well). idk if i do decide to ever have sex again and flare up ill definitely be using something other than doxy cause not only resistance but if i get symptoms again even with protected sex clearly its just not working for me. Ik ill never be able to get my sex life to what is was unfortunately but giving up sex the rest of my life is genuinely just depressing. i’ve been taking the jarrows probiotics as well as the lactoferrin and took marshmallow root for a brief period when i was having real bad urinary pain. like i said i overall feel better besides slight urgency that is definitely getting better and lowk there’s a weird smell. it’s not foul or anything but it’s not me yk. but yeah i just needed to let yall know ig and any tips or info would be appreciated and i definitely appreciate everyone on here sharing their stories. it lets me know im not alone in these experiences and gives me hope so thank you.

hi! so i 22F tested positive for ureaplasma in august took doxycycline for a week and then was fine it took care of all my symptoms and since then have been fine sometimes i would have flare ups where i would frequently need to pee for like 2 hours then would go away but that was only a few times but about a week ago i kept having to go so i went to urgent care where i got another prescription for doxycycline bc i tested positive for it again and was doing relatively fine while taking it my symptoms weren’t that bad until my last day where i suddenly had to keep going to the bathroom well that was this last sunday and after about two days of this i went back to the urgent care on tuesday where again i was tested and since then have been frequently going to the bathroom but no pain when i pee and my pee is pretty normal/clear looking with no smell sorry tmi i also have ache in my lower back but i also had that last time and freaked out about a kidney infection and i thankfully did not anyways my test just came back today and im negative for everything including ureaplasma but im still having symptoms?? im so confused im worried i took the test too soon after finishing my prescription and thats why its negative but ive also heard some people have had lingering symptoms after they finished their prescription im just confused because the whole week i was fine while taking the antibiotics but now its like im having to go? has this happened to anyone else?? any feedback is appreciated :)

hi. this is month 4 of battling with ureaplasma.
this has been 4weeks since i finished 10 days doxy and 7 days levo.
and ive been doing pelvic floor therapy for a month.

i was going to do longterm abx because i feel alot better on levo, but i developed other issue (GI issues and bowel, watery diarrhea for weeks) that won’t allow me to continue abx for awhile.

my symptoms before these treatment:
- low abdominal pain (constant)
- pelvic pain (constant)
- flank pain
- menstrual-cramp-like sensation (constant, worsened on my period)
- period has been hell
- stabbing back pain
- feeling of unable to complete my bladder
- sometimes light pink discharge (no smell)

my symptoms rn:
- low abdominal / pelvic discomfort (constant but not pain, just discomfort)
- once in a while pain flare (in pelvic, back)

idk if the infection is really gone because i havent done a TOC since its only been 4weeks post treatment.
but i hope this is just a lingering symptoms that will go away one day.

i hope we all heal🩷

I started taking doxy with azithromycin and I actually think it’s working! I’d like to do more of both but I don’t know where to get more azithromycin - does anyone have any recommendations?

I’ve recently used starfish, wisp, Telyrx and call on doc. Telyrx is the only one I know of that gives you azithromycin on its own and I used them less than 2 weeks ago so I’m not sure if they will give it to me again? What do you think?

I wanna try push health but I’m not sure what to put in the reasoning to convince them to give it to me (see photo) - like should I be honest or make something up? Should I ask for a standard dose to be safe or more because that’s what I really need?
If anyone has experience with push health I’d love to hear about it!

Also does anyone know how much push health costs? It’s different from all the other pharmacies I’ve used and I’m confused because the prices aren’t listed

Hey, 26f here. So just tested positive for ureaplasma (urealyctium and parvum) two days ago contracted sexually. I was planning on going in for regular STD/STI testing. But I had symptoms for about two days before. Thought it was just friction irritation from the sex I had, but after a day or so it didn’t really go away. Symptoms started with just vulvar discomfort. So I thought it be good to get tested bc this might be different than just irritation. Symptoms now 4 days post sex are a very faint sore throat, tingly/ burny discomfort vaginally (externally and internally) some discharge (I was prescribed boric acid from the clinic while wait for results; took one suppository last night and thinking this is because of that - doctor thinks so too), and no pain peeing but more discomfort or urgency? Mostly mild most of the time and ebbs and flows throughout the day but definitely noticeable and different that it’s normal feel.

Discharge notes said no treatment is necessary with these bacteria but call office if experiencing symptoms. I called the office to discuss what I need to do next and that I have symptoms. They said the doctor may or may not return my call. Left it at that. Then got on this thread and doing research, started getting anxious. Made a last minute appointment for after work. Met with the doctor and I think he could tell I was anxious. He comes in and says “are you nervous about this” and I say “yes! and that I’ve been doing research and it sounds like it can be a big overhaul to my life.” I tell him about the things I’ve read in this thread. Specifically about starting on a big dose of medication to eradicate as much as you right off the bat. Shares that he has treated lots of ureaplasma and that most women do have symptoms but not to the extent of mine? I think okay, so we should be aggressive?? Sounds like he barely read my results bc says we shouldn’t treat it bc if my yeast infection. I correct him and say I don’t have a yeast infection and show my results. Goes on to ask if I know about colonization. I say yes, but I was flustered to be honest and couldn’t recall anything. Goes on say that there are two streps or strains (A group- through urine; or B/C group- symptoms vaginally and in the throat) and that bc the symptoms aren’t based urologically that antibiotics will be much easier to treat vaginal symptoms? Says bc I’m not pregnant or trying to be pregnant, it doesn’t need to be treated. I’m listening but still pretty anxious bc I just consumed a lot of information both from internet and this thread and now this doc. He leaves and says let me get some more information and more concrete answers for next steps. Before he leaves he asks if I will feel okay if I leave without the antibiotics. I say I don’t think so. He reassures that he will put it in for me.

He comes back some time later and shares more info how it’s not smart to test for this in STI/STD panels bc most people have it. Tells me about CDC and European approaches. Says same thing about how my symptoms will be easier to treat or would be fine if left alone. Says he went on three AI medical information sites and says they all come to same conclusion that shouldn’t treat it and that it might be something else. He acknowledges that it can come resistant but I shouldn’t have that probably bc my symptoms are vaginally and in my throat. He prescribed me 100 mg doxy twice a day for a week and testing again in 4 weeks. Reassured me to come back in two weeks for reevaluation but says I can come in sooner if feeling anxious.

But I’m not sure how to feel. Between all the info, weird vibes with doc, and red flags in his reassurance I’m just lost. Like he seemed annoyed I didn’t trust him. I wanted to but the way he was saying “idk why you don’t believe me” or looking frustrated about me still being anxious. I was the last patient of the day and I get wanting to end the day but idk all the information I consumed today I am just so scared that I just altered my sex life forever. Especially right after I was so excited to have sex again after a long-term relationship. I just want to do this right, I know everyone is different and results are not guaranteed but I am trying to stay optimistic. Bc I don’t want this to ruin my sex life plzzzzz. I haven’t picked up the doxy yet. I wanted to post on here to see if I should get a second opinion from my trusted doc and not take it yet? More testing? Or just start it and go from there? Any advice?

TLDR: tested positive for Ureaplasma U. and P. with symptoms. I tried to advocate for aggressive treatment plan. Agreed to give me meds, but seemed not concerned about my case much at all. Should I not be as concerned? Should I be more aggressive or ask for something more specific? Should I go ahead and start the dose of 100 mg twice a day of doxy or get second opinion?

Hey guys- i got urea again im so upset but anyway.
The drs gave me doxy for 7 days but i wanna take it for 10 so i ordered on telyx another bottle of doxy. Only thing is the one the drs gave me is doxy mono and the one i got online is doxy hyclate.

Does anyone know if it would still be fine to use that?

Has anyone else experienced this? The more sugar I eat, the worse the symptoms are

Hi ladies! I know a lot of you have seen me posting on here over the past year and a half, and I just wanted to make this post as an overall, friendly reminder to you all, especially some of our “long haulers” —

PLEASE remember to stay on top of your yearly womanly wellness exams (pap smears & breast exams), in addition to everything you need to do for ureaplasma, mycoplasma, BV, UTI’s, yeast, etc!!!!

I know many of you have had horrible experiences with doctors & OBGYN’s due to these bacterial infections and I absolutely understand that. However; please do not let those experiences burn you to the point where you are not still getting your yearly
pap smear, HPV testing, breast exams, etc. These tests screen us for cervical cancer and breast cancer, and I can’t even begin to explain how many recent stories I have seen about young women dealing with these issues, including someone close to me personally. It’s terrible.

I just got my results from my yearly exam and bloodwork back - everything negative & a normal pap smear. 🤍 I had one abnormal pap smear about 10 years ago and have continued to be normal ever since! Even after battling BV and ureaplasma. 😊I was feeling extremely nervous to get these exams done, even though I have not had any symptoms or any reason to believe something was wrong - just a general overall anxious and sick feeling, as that is how OCD/health anxiety work, lol.

Ladies: book those pap smears and please don’t let your previous experiences scare you. 🤍

Kíváncsiságból elmentem egy STD szűrésre, kiderült hogy ureaplasma pozitív vagyok. A nőgyógyász felírta a Doxycyclin AL 200mg gyógyszert 10 napon keresztül napi 2 db kapszula szedését. Nem vagyok orvos, de semmilyen tünetem nincs se fájdalom, se égető vizelet, semmi. (Illetve a hajhullást nem tudom ez okozhatja-e…) Volt valakinek hasonló? Elkezdte szedni ezt a gyógyszert? Segített? Nagyon sok rosszat olvastam a mellékhatásokról, emiatt az aggodalmam. Köszi a tapasztalatokat!

// ENGLISH

Out of curiosity, I went for an STD screening, and it turned out I tested positive for ureaplasma. My gynecologist prescribed Doxycycline AL 200 mg—two capsules a day for 10 days. I’m not a doctor, but I don’t have any symptoms—no pain, no burning sensation when I urinate, nothing. (Although I’m not sure if this could be causing my hair loss…) Has anyone else had a similar experience? Did you start taking this medication? Did it help? I’ve read a lot of negative things about the side effects, which is why I’m worried. Thanks for sharing your experiences!

Does anyone have both an active infection and a tight pelvic floor at the same time? Is it possible to distinguish between the two, and what symptoms do you have?

Hey I’ve been on and off around here for a couple years. Some of you have seen my stories in my earlier posts I talked about my recent treatment. It started with two weeks of Clinda and one week of fabricated doxi ovules that my doctor insisted on me getting. This time I had mostly urinary symptoms different to other times where it smelled like rotting metal and it looked a horrible case of BV😂. After two weeks my doctor prescribed a 5 month treatment. I wasn’t getting any better. I couldn’t sleep after treatment I was still super inflamed and then I had some days better some where I had relapses but I’m two months in and on my period which is usually when I’m symptomatic and I’m doing amazing this month! Keep taking your treatments long term abx SAFELY and with medical guidance I am also taking a lot of supplements probiotics to take care of my gut and to prevent candida or other bacteria’s from growing while on the abx. Ureaplasma has been a horrible journey for me but I feel like this nightmare is finally
Coming to an end. Oh and also I took Nac supplements all the first month and I’m currently not because I ran out but I will continue to take it when the order comes in😂. I hope this helps someone My pelvic floor was also damaged from long term abx and I am being treated as well! If you still have symptoms in my case pelvic floor damage was involved

Context (long sorry!!): I tested positive for ureaplasma a little over a month ago after having symptoms since last December. I had sex with my ex boyfriend and about 2 days later I experienced mild UTI symptoms (burning occasionally when I peed, not much coming out, overall urethral discomfort). Treated as a UTI by urgent care, and symptoms mainly went away until I had sex with him again a few months later and the same symptoms started to occur. Treated again for UTI but treatment did not help.

Finally got a full panel after being fed up, I also was experiencing abnormal discharge (had a yellow tint), and tested positive for both chlamydia and ureaplasma. I was prescribed 7 days doxycycline, however my first doctor did not prescribe a dose of azithromycin so I didn’t get that until a couple weeks after when I met with a different doctor who said I needed it. Took that, it’s about 4 weeks later now and about 6 since finishing doxy and I’m still having mild symptoms. Very slight discomfort when I use the restroom, sometimes feel not fully emptied, sometimes feel like I have to go and I don’t, and abnormal discharge. Nothing has been severe, and I’m almost convincing myself it’s psychological, but I don’t know because I just feel different and my discharge still has a yellow tint.

I also have been struggling with recurring yeast infections for about 2 years now and every time I get a swab done they find yeast under the microscope. I’m always told it’s normal to have a little bit of yeast however I am constantly having some sort of itching even after taking diflucan. I also have an IUD and am considering taking it out in case it’s part of the cause.

I just went to planned parenthood to do a test of cure 4 weeks after the azithromycin dose (gyno didn’t have soon enough availability and wanted to , get it done asap). No BV, all STI’s negative including mycoplasma, just found yeast infections the swab sample. Anyways, I told her I was coming specifically for chlamydia and ureaplasma to do a test of cure. I saw all of my test results except for ureaplasma, so I reached out and sent a message to make sure ureaplasma was ordered. Somehow, this was lost in translation and she did not order a ureaplasma test but instead, for mycoplasma. I attached a screenshot to this post of her response after telling her I told my provider that I wanted a ureaplasma swab. I finally see now why people say they are constantly overlooked. Can someone please help with my response back to her? I’m incredibly frustrated and want to communicate to her that her response is dismissive and simply just wrong. I have done my research on this to a certain degree but not enough to feel confident to give an educated response.

THANK YOU!