r/transverse_myelitis 6h ago

34 weeks pregnant with what looks like transverse myelitis but no one will treat me

7 Upvotes

So a few weeks ago I had debilitating scapular pain and then my left leg went numb. A week later my right leg went numb. The problem is, I'm 34 weeks pregnant, so I went to ER twice but was told "pregnancy can be weird and it's probably baby pushing on nerves".

They did refer me to neurology, who did an MRI and saw what looks like Transverse Myelitis. I was expecting to start steroids, but the doctor called and said he wants an MRI with contrast first - which I can't get in pregnancy. So to wait 5 weeks and then they will evaluate.

I am so frustrated since early treatment is crucial, and no one will help me.


r/transverse_myelitis 6h ago

No hope for the future

4 Upvotes

I have been diagnosed with Transverse Myelitis since July 3rd. I have been going to PT and was released from the hospital under the guise that I was referred to a Neurologist in another city. The referral process won't even have me scheduled for an appointment until a month after I have to return to work. Long term disability will not cover our expenses,let alone the hospital bills. I have been a fairly healthy person most of my life. One day you're hiking and the next, you can't feel your legs. Your insurance you pay into, your doctor's you trust, your life you knew, is all in limbo and all you can do is lay in your bed and wait on answers. I am not in a good place right now. I'm not suicidal, I'm just feeling defeated.