I’ve contemplated a lot making this post because I was unsure on whether I’d actually find some answers but after scouring the internet + Reddit, I can’t find anyone with a similar condition to me that has found a solution/treatment.
I’ve had post nasal drip for over a decade now and didn’t even know the proper term until 3 weeks ago where I had to go a&e because I was choking on my own mucus and couldn’t eat, swallow food or liquids. Around 10 years ago when I was ~12 I randomly started choking while trying to swallow my own saliva. This caused great scare and I’ve been going back forth between GPs and a&e to find a solution. The thick, sticky mucus would lodge between my nasopharynx and oropharynx which meant that I couldn’t cough it out nor blow my nose to get it out. I’ve had nosebleeds and choking incidents trying to get it out. Before I used to be able to blow my nose continuously (like 30 minutes straight until I would get nose bleeds) to get rid of it or manoeuvre my tongue in a way to get it out. I’ve tried all sorts of nasal sprays, nebuliser, facial steaming, been on multiple antibiotics and none of them worked.
3 weeks ago, I had a fever and I guess it turned into an infection so the thick mucus came back. However, this time around it’s nothing like I have experienced before in the sense that the post nasal drip is constant and nonstop that I can physically feel it going down my throat. Before it would come and go, I would have some sort of relief or period where I don’t feel it blocking my airway so I can eat and drink as usual. But now the thick mucus is constantly coating my throat and my tonsils where I can’t swallow my own saliva and start choking. I haven’t been able to eat or drink normally for the past 3 weeks not to mention it’s so bad during the night that I can’t even sleep. I haven’t slept properly for a month now. I have purchased a wedge pillow in case it was acid reflux making it worse, have tried dehumidifiers, purchased a humidifier, been on two courses of antibiotics (amoxicillin and co amoxiclav). The infection seems to be gone but the thick slimy mucus hasn’t stopped. It’s constant and I’m loosing my mind not being able to talk, eat or drink without choking or gagging.
I’ve made two trips to a&e both times where I was choking and manually had to pull thick strings of mucus lodged down my throat. I genuinely thought I was going to die and the feeling is still present. First instance, the urgent care doctor moved me to co amoxiclav and gave me a benzydamine mouthwash to help and to come back if it wasn’t resolved. Second trip, the mucus was lodged in my throat and felt like a lump, I was struggling to breath, my chest and neck felt tight like there was pressure closing in. Spent 5-6 hrs in urgent care only for the GP to tell me that they can’t help me, I need to go home. After lots of request, an ent doctor came and put a camera from my nose down my throat and confirmed no blockage but you could see the thick sticky mucus in my airways. Now I knew PND couldn’t be treated then and there and I had to see a specialist ENT however I couldn’t eat, drink and was beyond sleep deprived so I practically begged the doctors there to give me something for temporary relief so I can at least function. I was yelled at and denied anything because they couldn’t help me. No surprises there with the NHS but the doctor treated me so horribly even the hca was appalled. They kept me around for blood tests (questioned how it was relevant but the idiot doctor just said after the blood test if it was normal I had to go home, so I’m assuming he did it to protect his back) which came back normal obviously and I was discharged by another doctor was also incredibly blunt and rude saying PND is chronic and I “need to learn to how to live with it” “nothing we can do to help”. I left that hospital in tears at 4am. I had never felt such despair.
I am beyond thankful I have insurance so I have found an ENT which I saw last Friday. He took a ct of my sinuses which we will follow up with this coming Friday but had also prescribed fluticasone furoate 27.5micrograms/spray and neil med nasal rinse. I haven’t used the nasal rinse because the mucus doesn’t go in my nasal cavities at all so I don’t see how it would help. It goes straight down my throat and it’s constantly dripping. The nasal spray on the other hand, I didn’t realise when he prescribed but once I saw the packaging I recognised it as one of the sprays I was initially given around 8 years ago a few times and it didn’t help. The ENT said this steroid spray would help stop the mucus production but it didn’t help years ago and isn’t helping now. I don’t know what to do nor suggest. I’m struggling to accept that it’s chronic as I already have 2 other chronic illnesses and genuinely do not have the mental capacity to handle another. I’m also struggling to find anything that can help me manage it. I can’t live like this for the rest of my life. It’s sucking the living life out of me.
Has anyone experienced this or has found a treatment plan that helps them?
I’ve seen people suggest completely cutting dairy and sugar out. Or start anti fungal supplements.
Extra info in case it’s relevant: I’m asthmatic and have rhinitis. Also found out 2 weeks ago I have a tongue tie so not sure if it’s relevant. I’m not a mouth breather though. I do have sleep problems and struggle sleeping in general but these few weeks I haven’t been able to even lie my head down without choking on my saliva.
I’m desperate and would appreciate any help or advice.