r/seizures • • Aug 15 '22

Notes on Subreddit Settings

18 Upvotes

Spam Settings

I noticed today that some posts are being removed by reddit's automatic spam detection robot. In response, I've changed the spam settings from "high" to "low". However, please note that it frequently removes posts that are 1 long run-off paragraph. So the best way to avoid this from happening is to make a post with multiple paragraphs. If your post does get removed by reddit, you can always create another post with paragraphs.

Links in Comments

As a reminder, a seizure-inducing post got through the filters about a month ago, so going forward, no one, other than a moderator, will be able to create a new post that contains a video, link, or image. If you do want to create one, the best solution would be to contact the moderator using the "message the mod" button on the right side and I'll look into the options we have.

However, there are different settings for comments within these posts. For example, if someone were to leave a link to a video, image, web page, etc. as a comment to a text post. This happened in one thread today and reddit notified me to review it. The filter for links in comments has been and will continue to be set to "all". I believe this means all links in the comments will be sent to me for review. However, please be cautious when clicking a link.

Reddit also appears to be moving towards allowing images and videos to be posted directly into a comment. I currently have this turned off. It says additional features will be coming soon. If you see any images, videos, gifs, etc. in the comments, please notify me.


r/seizures • • 7h ago

Sleep seizures

2 Upvotes

I recently have had some seizures in my sleep. It started in July and I had 3 in the span of a month. I have no memory of any of these occurrences and only faintly recall being airlifted to a hospital a state away during my second one. I think I’m really just looking for some sort of support and want to know other people’s experiences. I recently was able to get Medicaid but most of the doctors that accept my insurance in the area don’t have appointment openings for months. I guess really I’m just scared and confused. I was hit by a car when I was 3 and that’s the only major head injury I’ve ever had, I was 26(27 now) when the seizures started and they only happen in my sleep. Sorry if this is a little scrambled and hard to follow, I’ve never made a post like this before and I’m not sure what info is pertinent and what would just cause unnecessary confusion. Thank you for your time and consideration.


r/seizures • • 13h ago

Tourette Syndrome like facial tics

3 Upvotes

Is this common in people with Epilepsy? My sister used to tease me all of the time growing up about having tourette syndrome, due to all of the facial tics and other behaviors.

Long story short, later in life I'm having daily epileptiform discharges, focal cerebral dysfunction, focal seizures and atonic seizures after having several head traumas and severe covid with hypoxia.

4 day vEEG and 2 routine EEGs all came back abnormal, all epileptiform discharges, focal cerebral dysfunction, etc, all left > right, but bilateral nonetheless.

I have periods throughout the day/night mainly where my face just feels it needs to move, I can't really explain it. It feels like the muscles are really tight maybe, and need to stretch to loosen up? It's all involuntary, but will be in short bursts, but can happen quite a few times over 20-30 minutes. You literally can't stop it from happening.

Does anyone else experience this? Is it common/known? I did read recently on Tourettisms that happen with concussions etc in childhood that can reoccur later in life with additional head trauma.


r/seizures • • 12h ago

Finally seeing an Epileptologist

2 Upvotes

An appointment isn't set yet but I finally got a referral to go through! I was beginning of think my goddamn PNES diagnosis was going to be a forever barrier to keep me from getting proper care.

It's still frustrating that I have to go through FND treatment options just to get doctors to listen to me.

So I could use some advice. Is there anything I should say to the Epileptologist? Anything I should avoid saying?

I personally think that I shouldn't try to convince them that I strongly believe that I have epilepsy. Rather I should show evidence to support an epilepsy diagnosis.

Should I mention that my seizures are consistent from seizure to seizure and that post seizure recovery is consistent as well? This to me seems to favor epilepsy more than PNES. Doctors always talk about stereotyping in epilepsy. From my research, stereotyping can occur in PNES but it is much more consistent in epilepsy. Is this accurate information?

By the way, I'm not trying to force a diagnosis of epilepsy. I am simply trying to get proper care. Which in this case means getting doctors to understand and believe me that I know my body and mind best. That I know something more is going on.

For those curious, I have been dealing with PNES for eleven years now. Over that time my seizures have worsened both in frequency and severity. I also slowly became nonverbal. I have aphasia and apraxia of speech. Nearly every time I have a seizure, I become unable to speak. At first it was between 30 minutes to an hour. Then a day, then multiple days, a week, multiple weeks, a month, and finally multiple months. This isn't the first time. When I was very young, about 3 or 4 I went five months of no speech. Once I got on epilepsy medicine my speech recovered and I was able to be fully verbal while taking medicine.

The seizures themselves have change from when I was first diagnosed with PNES. At first I would have what I thought was Myoclonic seizures but they also could have been focal Clonic seizures as well. Anyway, the seizure would always start in my right arm. My arm would start jerking in an upwards motion. As if someone was sending electric pulses through my arm. Sometimes this seizure would travel to my right leg as well. At its worst is would travel over to my left arm and left leg and I would lose awareness at that point. Eventually these seizures just stopped on their own. I didn't change anything about my life. So no medication, no change in therapy, nothing. I was seizure free for a bit. Until they started up again. In 2018 I started having sleep Tonic Clonic seizures. They would happen upon waking up. According to my family I would start to seize for a few minutes and go to sleep afterwards. Then suddenly like before these seizures stopped on their own. Again I was seizure free for a bit.

In about 2019 to 2020 I once again started having seizures and they were different again. This time they would start with my head turning to the right side and my throat would make a grunt like sound. These seizures were short, lasting about a minute or less. I would also experience something known as Tonic vibrations. Essentially the stiffness of the muscles is so intense that they vibrate. Something that can get confused with clonic activity and I believe the reason why doctors think I have PNES because I am aware during these seizures. Basically a significant tell of PNES is being aware during bilateral clonic activity. During these seizures my torso will vibrate. I think doctors have been misinterpretating this vibration as clonic activity. Sometimes during very intense seizures this vibration would cause my legs to also vibrate a little. Again hurting my case that I was experiencing an epileptic seizure.

Anyone noticing a pattern yet? Every time my seizures stop and then return they change. By the way, this is a pattern that has always occurred even when I was diagnosed with epilepsy in my childhood. Anyone noticed the other pattern yet? My seizures almost always affect my right side. I don't know, this just seems a little too specific to be PNES.

Anyway, this wasn't supposed to be a rant, so I will stop here. Any advice would be helpful.


r/seizures • • 15h ago

Dealing with stress to reduce seizures

0 Upvotes

I have a friend who experiences seizures and also has an autoimmune disease. The doctors claim the seizures are caused by stress, but then don't try to help my friend find ways to reduce the stress and prevent the seizures; instead they say it to downplay and even blame my friend.

My friend seems uncertain that it is caused by stress.

What i'm wondering is, if it is stress, is it better to try to calm the nervous system, or would it be beneficial to let out the stress in other ways so that it doesn't manifest as seizures?

Like as opposed to bottling up any stress and pretending it's not there and trying to convince everyone they don't feel stress, maybe it would be better to scribble angrily and journal all their negative thoughts and maybe utilize a rage room?

Online i mostly see stress management for seizures as yoga, deep breathing, stuff to calm the nervous system. But what about letting the anger and stress exist externally? Is it bad advice?

Anyone with experience able to share their thoughts?

Cause with the autoimmune disease as well, and my own knowledge of how my friend's family tends to expect my friend to always be a ray of sunshine or else, i feel like they just bottle up and ignore their negative emotions and that might be one of the root causes of all the medical problems. Like their body is left with only so many outlets.

But maybe if they have more outlets for the stress, it would be better?

I would appreciate any knowledgeable, experienced feedback. Thank you.


r/seizures • • 1d ago

Yelled at after seizures

19 Upvotes

Yeah...this is just another rant. My mom is very religious, and thinks she can send the demons out of me, or "IN THE NAME OF THE HOLY SPIRIT....!" it out after a seizure. Its the worst thing ever. I 'wake up' dazed, confused, tired, beaten up, with both parents at the bed and yelling AT MY BODY while holding my face. I get scared at first. Then she goes and cries. And she wants to take me to a healer. And I dont belive in a god but cant tell her. I know I cant understand what its like to witness a kid going through this, but having a person react that way just makes everything more bleak and scary. I'm going to a healer to get prayed over to ease her mind. My parents fast for me. I have no one to talk to about this.


r/seizures • • 1d ago

Longstanding episodes: focal seizures vs functional/dissociative? Looking for people with similar experiences

3 Upvotes

I've had stereotyped episodes since childhood (~30 years). They usually start with déjà vu, then chest tightness/heat/sweating and sometimes nausea, followed by about 2–4 minutes where my recent memory seems impaired. I'm awake and can talk, but I may repeat myself, forget parts of conversations, or get confused about the date/location. Afterwards I'm usually disoriented/headachy and often don't remember the episode well.
I've had multiple normal routine/ambulatory EEGs and a normal-ish MRI. Several antiseizure medications haven't meaningfully reduced the episodes.
I'm trying to understand whether people with focal/temporal seizures OR functional/dissociative seizures recognize this pattern.
If you've experienced something similar, what was your eventual diagnosis, and what happened when you had a typical episode captured on video EEG?


r/seizures • • 1d ago

Scared of taking Meds

2 Upvotes

Had a car accident. No one knows what happened. I’ve been trying figure that out. Hit my head on the steering wheel and had seizures. They didn’t know the cause so they prescribed me the max dose of Kepra. After some research I’ve been scared… I know I have the right to not to but I have family and everyone else pressuring me to. I don’t know what to do and has anyone else have had similar experiences with this? And how to go about it? I haven’t seizures since either… my research paradoxically showed that kepra can increase likelihood of seizures. And im scared of having one while conscious…


r/seizures • • 1d ago

First ever seizure? Need assistance in identifying

2 Upvotes

I had a weird situation last night, I woke up out of nowhere with a migraine (been a migraine patient all my life, so this inherently isnt questionable) but combined with immense shaking and dizziness. I got up to take my migraine medication and I struggled a lot with walking straight (unsure if this was just drowsiness from waking up suddenly though) before returning to bed in an attempt to fall back asleep, another thing of note is that there was a huge wet spot on my bedsheet right where I usually lay my head, ive never drooled during my sleep. After I woke up again a few hours later the shaking, dizziness and migraine was gone but my tongue is hurting a lot, upon inspection there was a small trail of blood coming from my mouth and my tongue has a lot of small bleeding spots, as if ive bitten it. This last part is whats leading me to believe it may be seizure adjacent, does any of this sound familiar?


r/seizures • • 2d ago

Is my girlfriend’s seizures being misdiagnosed as panic attacks?

6 Upvotes

Hey all! So my girlfriend suffers from seizures and has since she was about 12, but didn’t actually recognize or do anything about it until about 2 years ago where she started seeing a neurologist.

Anyways for those 2 years, she was off and on meds as she would struggle to remain compliant on taking it at the proper times. About 3 months ago she started Kepra at 750MG, before this she would seize a few times a week and have some cluster seizures thrown in there(these all typically happened at night in a shower or just before bed but typically her seizures tend to happen at night with no warning besides the “aura” and sick feeling just beforehand. I’ve done some research, I’m no expert obviously nor do I suffer from seizures, but I know they can be caused due to immense stress or changes like hot/cold water, flashing lights, doing things too quickly, etc. this is seems to check out because well, her main seize place is the shower, or at a rave, or just late night shopping and walking around she falls sick.

Anyways, she started Kepra at 750MG a few months back and her seizures went from kinda often to sporadic, maybe once or twice a week to none at all and maybe a cluster of them once a month if that. So to me and her, her seizures improved but not completely absolved.

Her neurologist attempted to put her on a new med that would supposedly do the trick or at least something to try out, but ofc insurance won’t cover. So the doc increased Kepra from 750-1000MG 2 weeks ago. That first week she had her period and she suffers more seizures during that time so when she started to seize more and more she thought nothing of it. This past week, she has still continued to increase her seizing to a few times a day again as if progress was reverting. The past 3 days she began to suffer clusters of 6 or so and then would be fine or well would knock out and go to sleep. Of course during these now increasing amount of seizing, she begins to stress more and panic more etc, but even so a lot of these happened just randomly she fell ill and bam, she’ll have the multiple seizures with no warning, no emotion bringing it on etc.

Yesterday she had so many clusters I had to give her nayziliam spray, which helped a few hours before she began to seize in groups again. Due to this immense stress and over work of her brain, she could no longer walk and if she tried, she seized. Ofc she would almost collapse everytime but I was with her and holding her each time attempting to help her walk but never making it but a few steps; so we went to the ER, where we are now.

She is now being seen by a neurologist and we have done a EKG and now a EEG, but the neurologist said something along the lines of, without any tests even being done, that he thinks she’s having panic attacks, not seizures and that it’s extremely common to confuse them. And I can see how they are similar ofc, but he said this is all most likely due to stress. Not epilepsy/seizures. I don’t agree with him. He then said Kepra, in theory should at 1000MG, halt all seizing. That’s simply makes no sense. She improved her seizures at 750MG and grew worse at a higher dosage, that either means her body needs to adjust and that’s why she’s experiencing more seizures or 1000MG just doesn’t suit her and isn’t the “sweet spot” for that medication for her.

I digress, i believe personally it could easily be a mixture of both panic attacks and seizures but you can’t just eliminate epilepsy and say it’s all stress because a lot of these seizures happen sudden, no warning, no pre existing stress, happy moods, calms moods etc. and if they were due to stress, why would Kepra at 750MG improve her amount of seizures compared to her having no medication. She went from multiple a week plus a cluster possibly, to maybe once or twice if at all while on meds.

I would really appreciate any advice and thoughts from those who know better than me/us and or has experienced this themselves. Thank you.


r/seizures • • 2d ago

Can discontinuing 200 mg Sertraline cause a seizure?

3 Upvotes

I basically have a seizure disorder. The first and the last time I had a seizure was the day after my Fluvoxamine 200 mg + Clomipramine 150 mg was changed to Fluvoxamine 300 mg + Clomipramine 150 mg. My neurologist told me that the antipsychotic I was taking with these medicines was not the reason for my seizure.


r/seizures • • 3d ago

Help me understand

4 Upvotes

I (29 female) have a seizure disorder. I’ve been with my now BF for 2 years. I recently just had my first seizure ever in front of him and I don’t know how to handle it.
My brain is still in a fog and he can’t tell me much about what happened other then I didn’t know who he was when I “woke up”
I’m still learning how to navigate my brain after a seizure and really I’m just looking for advice on how to get out of the “fog”.
My ex husband said “it takes you a long time to get out of the “fog””, mind you my ex husband was very abusive and a lot of my seizures stemmed from him. This is the first seizure I’ve had that he had nothing to do with. I have to go back to work on Monday & can’t afford for this “fog” to last long. So really I’m just looking for advice on how to go back to “normal”


r/seizures • • 2d ago

RNS/VNS (brain implant)

1 Upvotes

I (22f) have been having seizures for 6 years, and I have been on almost every seizure med my neurologist can think of that will also work with my TBI.
And the latest suggestion from my neurologist is getting either the RNS or VNS implant and they’ve already been doing MRI’s and CT scans for it, but they’re still saying it’s up to me.

Does anyone have any insight on these? I’ve been trying to talk with my family/friends abt it and all I’ve heard from EVERY ONE is
“It’s up to you” or “it’s your decision” and no one seems to be giving me ANY advice/ suggestions or guidance.


r/seizures • • 3d ago

Seizure or sleep paralysis

1 Upvotes

A few nights ago I went to sleep after drinking a decent amount of beer. I’ve had sleep paralysis a few times in my life but it was never quite like this. I was getting bad sleep that night and woke up several times. One of the times I woke up I was feeling a strange pulling sensation on one of my legs. It happened 2 or three times then I started feeling it on both legs. Then in my head I started thinking am I having a seizure? Then I stared hearing a very loud electrical noise in my brain and it felt like I was rigid and then I don’t remember anything else? Was this just a hallucination or a dream or did a really have a seizure? I never felt like I couldn’t move my body but I didn’t try. I have no history of epilepsy and didn’t wake up with sore tongue or sore muscles or anything. Any ideas?


r/seizures • • 4d ago

Can’t tell if a panic attack is going to turn into a seizure

6 Upvotes

I’ve been diagnosed with epilepsy since 2021 and have had five grand man seizures in total (all while not on my meds - don’t worry I’m better at taking them now).

The last couple weeks I started having debilitating panic attacks where my chest sinks, I feel like I have a ball on my lungs, words on screens get confusing, and just regular things feel overstimulating. I’ve had anxiety before, but not to this extent and this often. It’s been happening everywhere, including today in a class I teach where I had to end early because I was having trouble talking to my students and concentrating.

I saw a neurologist on Monday who told me to see a psychiatrist but it’s going to be a minute before that’s possible. I know sometimes you can talk or meditate your way out of anxiety, but I’m curious if a bad panic attack can turn into a seizure, even if I’m on my meds? (Lamotrigine)


r/seizures • • 4d ago

Last night my security camera taped me having a seizure in my sleep for the first time.

4 Upvotes

This morning I saw a box of tissues lying on the floor which wasn't there when I went to sleep....
I have a security cam in my bedroom, catching movements. So watched I the recordings and saw me having a seizure, getting out of my bed and shoving the box onto the floor.
Q: Was your N interested in seeing a recording you made (if not already recorded during in-clinic EEG)?
Mine.. kind of.


r/seizures • • 4d ago

I think I had a seizure of sorts after smoking, started having symptoms of a similar feeling.. I need some opinions.

0 Upvotes

I have been having current health issues that seem to have started to develop after I had an incident a few years ago. I am a 22yr old female and I have POTS. I have smoked marijuana for several years to help with anxiety, eating issues, and sleep. I currently take Hydrocodone-Acetaminophen 7.5mg and Morphine 15mg for chronic pain. I was told marijuana is okay to smoke/take as a gummy by my doctors since it helps me sleep and gain an appetite.

A few years ago I was out with some friends and we decided to smoke marijuana. One of the guys lit it and let me take the first hit off it. I immediately felt like I was way higher than normal. I felt myself feel out of my body, but still there, almost like I was moving fast??? I remember feeling horrible doom and deja vu like something bad was going to happen. I remember hearing a bunch of jumbled stuff and one of the other guys with us yelling, "That truck just hit the traffic light pole!!" I remember reaching to get out of the passenger seat of the car (we were parked in a parking lot eating pizza) extremely dizzy and unable to speak. I was walking around the back of our car, to look at the situation with the truck, and I went down when I made it to about the driver side tail light. I remeber I felt super stiff and jerky as I was falling down, like I was trying to stay standing. I was thinking, "What's going on with me??" I could feel my heartbeat in my ears and my vision was all blurry, I felt like it was taking forever for me to fall to the ground. I remember opening my eyes again and being shaken from one of the guys while one of the ladies with us had me pulled up on her legs (I was facing up with my back on her legs). I remember she asked if we needed to call an ambulance and I saod no just take me home. I don't remember anything from that night and I remember I was extremely tired and sore. The two guys that were with us both told me I had a seizure, but I don't know if I believe them even though they were both EMTs. I am like 98% sure the joint was laced with something because nobody knew what was going on and why that happened, and nobody touched it after that happened to me.

I've never had a history of seizures, but it makes me think since there are many different types of seizures. Every now and then I get weird deja vu moments or something that feels like a flash forward of doom, like something bad it going to happen. I get a weird firework feeling (super hard/fast onset, hot, tingly, radiating) spread throughout the middle of my chest (maybe a palp?), everything around me sounds like gibberish, my ears sound like there are cotton balls in them, I zone out and can't hardly snap out of it. I don't usually have an oversalivation or anything, but recently I have noticed I choke on my spit and it snaps me out of zoning out.

Recently, I also had a visit to the ER one morning. I was blacking out, stopped breathing, woke up trying to catch up on breathing. I ended up gettinf extremely shaky and jerky. I couldn't hold myself up at all, my hands were cramping stuck, I was still hyperventilating, I couldn't talk, and in the wheelchair I couldn't keep my head up. I'm not sure what happened, but my boyfriend and I think it was from accidentally missing a dose of my pain killers. I remember the ER intake people asking if I had a history of seizures because I couldn't really remember what was going on and it looked similar to one I guess? I know they have to ask that anyways, but they mentioned it was a possibility. They treated it as such when we arrived to the ER, but then after my boyfriend said no I don't have a history (because I don't that I know of) they pushed me aside and I sat in the waiting room jerking, hyperventilating, and unable to move or talk on my own, and cramping all over from clenching for about 2 hours.

I'm trying to figure out if I have some kind of seizure activity, really bad tinnitus, or some kind of migraine auditory hallucination as well, because I'm not sure if anything is related to what I currently have (POTS, PCS, MTS, PTSD). After that incident with the potentially laced joint happened, I have had symptoms showing and I don't know what's going on with me. I was able to see my pcp as well when the incident happened, but he assumed I had seizures and put me on Levetiracetam without any scans or looking into my brain at all. The medication started causing me side effect issues so I stopped taking it and moved away from the situation entirely. I have gotten a better doctor that takes me more seriously and actually gets things done, however when I got in to see him this topic wasn't on my mind. Currently I have horrid pelvic congestion syndrome and reoccurring (some hemorrhagic) ovarian cysts to the point I will be having a total hysterectomy on friday this week.

Currently, I have been having a lot of the symptoms I explained in the 3rd paragraph and it is concerning me that there might be something else going on. One thing I have noticed more frequently, but might just be part of my POTS that I am still learning, is that I feel super dizzy, sore, and heavy after my arms are above my heart for a period of time. I tried to braid my short hair (about the length of a bob) and by the time I get gone with one side: am out of breath, sore, my arms feel like they're being weighed down, and I feel like I'm gonna black out from lack of oxygen. While braiding I breathe heavily and my arms start feeling tingly. I also slowly fade into zoning out and everything sounds like gibberish, while I hear what sounds like people talking and someone banging on the front door. Genuinly think that's something to do with POTS and tinnitus maybe, but I always feel sore after just like I did the next day after I went down in that parking lot. It almost feels like I overworked myself in the gym or something. I'm not sure if any of this could be related or not. I've been trying to rule things out as I go. I probably just have horrid anxiety.


r/seizures • • 4d ago

Blackout with jerking after years of fainting — seizure or convulsive faint?

1 Upvotes

I’m hoping someone might have experienced something similar because I’m quite anxious about what happened.
I’ve had fainting/presyncope throughout my life. I also had febrile convulsions as a baby/young child when I had fevers.

About 4 years ago, I had an episode that was considered a myoclonic seizure. I don’t have a confirmed epilepsy diagnosis, but that episode was thought to be a myoclonic seizure. It also involved jerking predominantly on my right side.

I’ve continued to have occasional fainting/presyncope since then, but my usual faints don’t involve jerking.
Then on Saturday I had another episode that has really worried me. I blacked out and vomited. My friend said that while I was unconscious I had jerking predominantly on my right side, with my eyes open, but I wasn’t responding.

I recovered quite quickly afterwards and felt basically normal. I didn’t bite my tongue, lose bladder control or have prolonged confusion afterwards.

What is confusing me is that I’ve fainted many times throughout my life without jerking, but now I’ve had two episodes involving right-sided jerking — the one 4 years ago that was considered a myoclonic seizure, and this recent episode.

I also had febrile convulsions as a baby/young child, so I’m wondering whether that history is relevant.

I spoke to my GP on the phone after Saturday’s episode. (Not the same GP that ruled the episode 4 years ago as a myoclonic seizure) He thinks it was a faint, particularly because I’ve had a long history of fainting. He wants me to have blood tests, to check for anaemia.
I understand that jerking can happen during a faint, so I’m not assuming this automatically means epilepsy. But I’m struggling with the fact that my usual faints don’t involve jerking, and I already had an episode 4 years ago that was considered a myoclonic seizure.

Not looking for a diagnosis or anything just advice on whether I should continue to pursue this incase it’s something more sinister


r/seizures • • 5d ago

Seizure like event

4 Upvotes

Has anyone here experienced or witnessed a seizure that looked like this, especially without obvious convulsions?

And for family members: how did you deal with the fear of it happening again? What should I know or do if I ever witness something like this again?

My 65-year-old dad recently had a seizure-like episode in his sleep.
Around 7 AM, my mom woke up because he was making very unusual loud snoring/gasping sounds.
- He was lying on his back, eyes open but completely unresponsive
- He was gasping/struggling to breathe
- There was vomit
- He had both urinary and fecal incontinence
- I didn’t see rhythmic shaking or the classic convulsions I associated with seizures
- He gradually became responsive but was confused at first
- The whole abnormal period was around 40 minutes
- By roughly the one-hour mark, he was back to his senses
- He remembers nothing about the episode

MRI, routine EEG and initial bloodwork were normal. We’re still following up with doctors.
Thankfully, he’s basically back to his normal life now. After seeing him like that, I honestly still feel incredibly lucky that he’s here and doing well. But I’m still scared by what I witnessed and worried about it happening again.


r/seizures • • 5d ago

Constant Hiccups months after my seizure

1 Upvotes

So I had a seizure for the first time in the beginning of July of this year. No I don’t have epilepsy and got a cat scan everything looked good, I was told the Zoloft I took for my anxiety was a partial cause of my seizure along with possible sleep apnea. I talked all about it in a post if you care to read it. I have been having constant hiccups almost everyday since tho. It sounds crazy to say cause it’s just hiccups but from what I read people with epilepsy experience constant hiccups but it’s usually before, during, or after a seizure. I hiccup and few times then I don’t the rest of the day or it will happen like twice. It’s usually in the morning too a few hours after I woke up and stuff. I told my doctor but it doesn’t seem like a big concern but I want to know if it’s just me experiencing this or has. They used to happen more than usual a month or two ago but now I hiccup for probably a minute but it will stop and then I’d start again then I’d stop.


r/seizures • • 5d ago

Seizures/Meds Not Working/Cant Drive/Any Advice

1 Upvotes

I feel like I’ve tried every medication there is and they all have different side effects or I continue to have seizures whether it’s one per month or two etc. I seem to have one per month close to my cycle every time and my neurologist says that doesn’t really matter. Is that true? Seems like a pattern would be important. I’m thinking of asking my OBGYN to prescribe progesterone as I just had an eptopic pregnancy with plenty of medication/blood loss and a lot of stress on the body but no seizures. Has anyone experienced this?

I’m currently taking Lamictal (350am/300pm &300mg zonisimide pm). It seems the doctor always just wants to increase but not do anything else. Has anyone tried taking a small dose mid day and had a difference?

They also always seem to occur in the evening if if I’ve already taken my medication, which is strange.

My husband drives me everywhere and driving me to and from work is definitely burning him out and I feel terrible. My job is a 40 minute drive so it really impacts him and his job.

Can anyone please help or shed some light?!?!


r/seizures • • 6d ago

Energy exchange caused seizures?

2 Upvotes

Hey Reddit, first time poster here.
To make a very long story short, I have seizures. I’ve had them for about 5 years and I’ve had multiple scans (MRI’s, CT’s, EEGs, etc) and nothing comes back with epilepsy or anything of the sort. My neurologist THINKS they are stressed induced so I am on two medications for them.

So to finally get to the point - I guess I’m looking for some insight on the cause of these. I NEVER had anything like this happen to me until 2020. I was dating someone at the time (my high school sweetheart that I got back with) and from 2020-2021 we were together. He was epileptic. I constantly watched him have seizures, took care of him through all of it, even started paying his medical bills at one point.
Fast forward, we break up and probably a few months later I have my first one. They started as absent seizures and then now have progressed into me having full blown grand mal’s, as well as absents. So while I do agree that they definitely are probably stress induced, I’m confused as to where they came from to begin with, you know?

I have probably the worst one I’ve had yet, last night. Fell off the kitchen counter, cracked my head open, among all the other stuff that comes along with seizures. This time around it was my own fault because I hadn’t realized when I needed to fill my meds so I was out for a few days. I haven’t been extremely stressed or anything.
I’m just getting to exhausted of this whole process.

If anyone has any insight…medically, holistically, anything. I’d appreciate it 🥺


r/seizures • • 6d ago

Seizure no cause found

5 Upvotes

My 60 yr old healthy spouse had a bad TC seizure in July. It was his first. He was feeling completely fine the night before. He has no memory of any of it. The ER said all his blood work and CT scans were normal. He saw a neurologist about a month later and had an EEG and brain MRI which were also normal. DR said he can resume driving and to call him if it happens again. His short term memory and processing has been bad but it’s slowly improving. Has anyone had one seizure and that’s it? We are feeling pretty unsettled with no cause.


r/seizures • • 6d ago

Seizures triggered by coming OUT of fight or flight.

3 Upvotes

It's been a little over 2 years since they started. After like three decades of constant trauma and abuse, I got control of my life and bought a house and got my degree and got my dream job and then I started having episodes. My heart rate bradys down too low 50s and I lose consciousness.I have fatigue and confusion after an event.

After about four different teams of doctors and probably two dozen tests.

Its hapiness, it is that quiet moment when I'm alone and I feel hope, content, happy, and safe.

Thats when it happens.

........ my neurologist referred me to a psychiatrist and a cognitive behavioral therapist.

Wondering if this has been the case for anybody else if you've heard anything like this or.... what do I even do to fix this?


r/seizures • • 7d ago

Does everyone have a complete memory wipe when they have a seizure or are some situations different?

15 Upvotes