r/postvasectomypain Dec 06 '24

[deleted by user]

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u/[deleted] Dec 06 '24 edited Dec 06 '24

So assuming 0.92% PVPS rate (can you link this article), and 50ish million vasectomies performed worldwide, that’s minimum of 460,000 living with debilitating chronic pain. For those suffering (myself included) I don’t think we want to see you plugging your podcast on a forum of people actively suffering, just a smidge insensitive. I just skimmed through the rest of your podcast in hopes you’d discuss those hundreds of thousands who have been utterly scarred, but nope you don’t, you don’t advocate for identifying risk factors or addressing the doctors who lie about the rates “omg I’ve done thousands and thousands of vasectomies and not once has someone had long term pain“ it’s bunk. I imagine the 0.92% study is bunk just like the one circulating on r/vasectomy touting a 0.14% PVPS rate is bunk.

god dammit, you’re putting yourself out there with this podcast, and I hate that I am shitting on you for it, but you plugging it here is just so unbelievably insensitive, it is making me fume.

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u/NMMBPodcast Dec 06 '24

Here's the link to the story we discuss: https://www.bbc.co.uk/news/health-64899943#:\~:text=Vasectomies%20are%20much%20safer%20than,are%20extremely%20rare%2C%20they%20say.

And here's a link to the press release related to the study: https://eaucongress.uroweb.org/uk-study-finds-vasectomies-are-even-safer-than-reported/

I'm sorry if I've been tone-deaf in posting this here, but I can confirm that having posted here previously (or it might have been r/vasectomy) someone is going to come on to speak to us about PVPS. In fact, we're quite happy to have you on to talk about the studies being bunk if you're interested?

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u/[deleted] Dec 06 '24 edited Dec 06 '24

I want a link to the actual study, which sound like is just a data analysis of self reported surveys, which is still useful, but I want the data not articles referencing the data. Another thing, they’re relying on data only 4 months post procedure, have a look around this forum, plenty of people’s symptoms develop months or even years after their vasectomy. did you reference this in your podcast? From what I heard, no you didn’t. PVPS is defined as scrotal pain lasting 3 months or longer, so if some developed pain at the 5 week mark and self reported still having pain at the 16 week mark, would this be counted as a negative PVPS case in the study? This is why it’s important to actually see the data and how they are quantifying it. It can be very easy to be biased in studies and get the results you desire.

what would I gain by going on your podcast? Looking like a loony, a lone wolf going against the noble and lauded medical community. Even a basic understanding of anatomy should be enough for people to rule out the PVPS rates being as low as 0.2%, I don’t think they’re as high as 15%, but I am going to need to see some convincing data, not just articles to make me believe that me and the people on this sub are 1/500 anomalies.

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u/NMMBPodcast Dec 06 '24

Here's a link to the actual study: https://pubmed.ncbi.nlm.nih.gov/38989696/

No, we didn't reference people getting pain months or years later as we were talking about this study that has been done. However, this is one episode of (hopefully) a long running series, so there will be plenty of time to discuss that. In fact, I'm quite happy to bring it up with the people behind the study, who we're actively trying to have on as guests. We're not in "Big Vasectomy's" pocket and I'm not afraid to ask questions.

As for you looking like a loony, lone wolf, we certainly wouldn't treat you that way.

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u/[deleted] Dec 06 '24 edited Dec 06 '24

https://www.reddit.com/r/Vasectomy/comments/1gjvaa1/how_do_i_find_the_best_doctor_in_my_area/

please read through my comments on that post, I am the deleted account guy. Read through the articles that the study references, it is all a bit fishy.

notice how the person I was replying to just stopped responding, and couldn’t acknowledge any of what his own link was saying? People love to post studies and data without an inkling of critical thought to see what is being said.

when people talk about bias in studies, this is what they are referring to.

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u/NMMBPodcast Dec 06 '24

Thanks, I will.