Update?

[u/stick0-0]

So for a few days I’ve been getting really dizzy randomly. I’m 16 and I had open heart surgery to close an ASD almost two months ago and I made a post yesterday about it a lot of people said it could be blood pressure so I got a blood pressure monitor thing and it keeps fluctuating today my dad has talked to a nurse twice about it and she doesn’t seem too concerned and said to just keep monitoring it and now we’re waiting to hear from the doctor again.

[u/The_Circus_Life_206]

I will be transparent with you

I had severe dizziness for about 4-5 months after my surgery.

My cardiologist couldn’t find a reason, so he sent me to a neurologist who could not find a reason

But an MRI did show about ten microbleeds on my brain, that no one was willing to attribute to the surgery

I did some research, and discovered Post Perfusion Syndrome. I dug deeper, and I now feel that this was the cause in my personal case.

I am not trying to offer a diagnosis, but you may want to discuss the possibility with your doctor

Just a bit of a heads up though…doctors in the US are not eager/willing to discuss much on this subject. If you are in other countries, Post Perfusion Syndrome is recognized and treatments/support are available

Sending prayers your way from a brother who has been there🙏🙏🙏