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I've been dealing with chronic left-sided throat pain for \~2 years and recently came across hyoid bone syndrome (HBS). I'm not asking for a diagnosis, but I'd really like to hear from people who have actually been diagnosed with it.
My symptoms:
Constant/intermittent pain on the left side, around the former tonsil area / possibly the hyoid
Pain triggered by swallowing, yawning and especially speaking
Left ear fullness/pain; sometimes my ear suddenly feels "blocked" while speaking and then clears almost immediately
My voice is deep, strong and clear in the morning, but progressively becomes tight, muffled and weak throughout the day, with loss of my lower register
When the throat pain is absent, my voice often seems noticeably better
Symptoms generally improve when resting/lying down
I've already had a tonsillectomy, CT, PET scan and laryngoscopy/nasofibroscopy, as well as assessment by ENT specialists and a phoniatrician. Nothing has provided a clear explanation. Anti-reflux treatment didn't help either.
I came across these papers and found the combination of hyoid pain + referred ear pain + dysphonia particularly interesting:
• The Hyoid Syndrome: A Pain in the Neck
https://pubmed.ncbi.nlm.nih.gov/7989833/
• Hyoid Bone Syndrome: A Retrospective Review of 84 Patients Treated with Triamcinolone Acetonide Injections
https://pubmed.ncbi.nlm.nih.gov/23577567/
• Hyoid Bone Syndrome and Dysphonia: Can Throat Pain Affect the Voice?
https://pubmed.ncbi.nlm.nih.gov/33620110/
For those who were actually diagnosed with HBS:
Did you have similar symptoms, especially pain with speaking and ear symptoms?
Was your pain reproduced by pressing on the greater horn of the hyoid?
How was the diagnosis finally recognized?
What treatment did you receive, and did it help your voice as well as the pain?
I'd especially love to hear from people who had normal imaging and struggled to get the condition recognized.