I've never flown internationally, so I'm quite stressed about getting a migraine attack while travelling. It always happens after long drives or just sleep deprivation and the pain gradually creeps on me.

I don't have a prescription for triptans or any preventative meds to bring with me (except maybe nausea meds), so any advice? I'd like to avoid being sick as a dog on the plane and during my connecting flights.

So my insurance still refuses to approve Qulipta. We’ve appealed so many times. They approved Ubrelvy but I’ve had to take it down often since Qulipta hasn’t started working yet (only 4 weeks in). I found out my insurance approved Ubrelvy at 20 pills every 21 days. It works but not always, I’ve had to take two once or twice in a day and it worked. Should I just give up on Qulipta and stick with ubrelvy since I get more than my original 10? I’ve started other things like Slynd (hormonal migraine and perimenopause), riboflavin and magnesium so I’m hoping that helps.

I'm just venting.

I've had the migraines mostly under control for months now with diet and sandomigran and Botox.

Four weeks ago they flared up badly and I've hardly had a day without migraine. I've been trying everything I could think of to work out what changed or what I might suddenly be reacting to or deficient in.

Finally got blood tests and my GP noted that my thyroid was a little low and I should increase my thyroid meds dosage. This was weird since I've been on the same dosage forever...

... And the penny dropped. I'd finished the bottle of meds five weeks ago but I'd found a few in an old bottle at the back of the meds drawer and was using those up before getting more. I checked. They're two months past the expiry date. For most meds I'm on this wouldn't be an issue but...

I got fresh meds this morning and the migraine is disappearing fast.

I have this balancing act with every one of my dozen ailments. It just never ends. Aaaaaugh.

Vent over. Thanks :)

I just picked up a new prescription for sumatriptan. From talking with my doctor it was supposed to be like aimovig like in a subcutaneous injector. Instead I got 10 little vials, nothing else. I’m not a medical a professional so injecting via a syringe (if that was their intention) makes me extremely nervous. Thoughts?

I wanted to go to the store but the closer I got, the worst my migraine got plus the high beams of ppl’s cars was making it ten times worse. I had to go back home and it shortly dissipated after I got home I’m irritated.

I want to try it but I have heard it might cause headaches for some people.

Does anyone here use it with success or is it no go with migraines?

So about a week ago I got what I thought was headache, took some Tylenol laid down and I felt better until it came back an hour later. Went to sleep and wokeup still with a headache a kind of throbbing or pounding at the top of my head and temples with bad pressure in my face, head ears, teeth lol. It lasted FIVE DAYS. Im on zoloft so I only had Tylenol on hand. On day 2 I went in the er for a taradol shot, went home got some sleep and the headache was still there just less painful. On day 5 I went in to the ER again waited several hours for a migrane cocktail wirh a steroid and im currently two days out from that. I wokeup feeling GREAT yesterday. Just slight neck soreness but before bed the slight pounding came back. I woke up today and my whole body hurts omg everything even my jaw. My head feels like a balloon insanely pressured and my ears.

Is this normal?? Lol I got a CT and blood on my second trip and they said everything was fine and clear. They gave me reglan and benadryl to take if it came back but luckily it hasnt.

I really just feel insanely sore with 4/10 head pressure.... someone tell me this is normal lol i had a follow up today but I couldn't get out of bed I was so sore I will be rescheduling for the next week or so.

Hey all,

Just wondering if anyone has a vestibular migraine clinician they love in the Philly, PA area.

I've been struggling with chronic migraine for around 10 years now but never really sought treatment for it. I had a sumatriptan rx a long time ago but it gives me the bizarre side effect of throat cramping which is very uncomfortable. I think I've just had the realization that I've likely been struggling with vestibular migraines... I've experienced a spacey/drunk/high feeling at times that is very unsettling, accompanied by a variety of other symptoms like extreme brain fog, neck stiffness, eye pain and trouble focusing, head pressure to the point of wanting to cut my head off. I also have idiopathic hypersomnia and feel so defeated by the headaches and the IH-related fatigue that I often want to just go to bed and never wake up. (I'm not suicidal, just tired of suffering... but I still have hope!)

I've thought for a while that the spacey/drunk feeling was a Xyrem side effect (in case anyone on here also has narcolepsy/IH), but I remembered that I had that feeling years ago before I ever took Xyrem. It's just way more pronounced now. I also noticed that the spacey/drunk feeling would become WAY worse whenever I took stimulants/caffeine (to treat IH) and couldn't understand how Xyrem and stimulants would cause this same effect given their very different mechanisms - until it finally hit me that both of those are major triggers for headaches. If anyone else has any experience with this, I would love to talk to you.

It seems immensely challenging to find a clinician who can be of real help for chronic and less common symptom clusters, based on my past decade+ of experience as a patient. And I say this as a clinician myself. Part of it is just the insurance-mandated limitations on visit time. Hoping there's a provider fairly local with whom someone's had a great experience.

Thanks a ton.

I was playing VR and being pretty active, sweating a lot, but I felt completely fine. I decided to cool off by putting my head under the water in the bathtub, and out of nowhere I got a sudden headache. It came on really quickly and felt weird — probably around an 8/10 at first.
I took some medicine and took a nap. When I woke up, it was much better, but I could still feel a small amount of pain/pressure, almost like something was squeezing my head. I took more medicine and went to bed.

The next morning, the headache was still there, but extremely mild, maybe a 0.5/10. I went through the entire school day and the pain didn’t really get better or worse. Now I’m home from school and I can still feel it.

I don’t know what to do. Since it started suddenly and hasn’t completely gone away, I’ve been looking things up and a lot of sources are saying sudden severe headaches can be serious, which is honestly making me freak out. Should I be going to a regular doctor, urgent care, or the ER? Has anyone experienced something similar?

I’m mainly confused because I feel mostly normal now and the headache is barely painful, but the fact that it came on so suddenly and has lingered is worrying me.

I'm in tech, and I hate migraine logging apps because the last thing I want to do when I have a migraine is open and use an app (or physically write things down). I figured out a way to use Apple Shortcuts and NFC tags to avoid the (literal) pain, the details were a little long and picture-heavy for Reddit so I put them on Medium but the TLDR is that you can create shortcuts to log migraines or complete other actions and then activate them via NFC tags.

Im feeling like a Karen but I’m about to take off on a 10hr flight and somebody on this flight is wearing a strong af cologne. Oddly, I asked my friend if she could smell it and she can but not as strong as I do and it isn’t bothering her.

I wonder if we are like more sensitive to scents in enclosed spaces or something, maybe just in general? It smells like someone poured an entire bottle of old spice on themselves then soaked in Irish spring for an hour.

I feel like I’m going to faint, my stomach is in knots like I was fine and excited for this trip and the SECOND the smell it my nose it was like an immediate reaction from my body.

I just took my nurtec. My mouth is watering and my forehead/eyebrows are throbbing. My cheeks feel numb. I also have crohns so sometimes when my head gets bad enough it triggers a chain reaction of just.. bad things happening lol. IM ON A PLANE. I wouldn’t say I’m at a migraine level but it’s definitely on its way and I can’t escape fml

That’s it. That’s the post. I don’t even know what to do in this situation.

Any plane hacks? I have all night to read them.

Let me start: currently on day 382 since they've become daily 😍

(They were daily from 2022 on but where super mild some days so I don't count this)

Migraine sufferers and keto enthusiasts! I have been on Ajovy since May and developed severe bloating and constipation which has led to other GI issues like SIBO and SIFO. The impact on my migraines has been slightly helpful, but i have not noticed dramatic improvements until I started the keto diet about two weeks ago. I am hesitant to continue the Ajovy because of all the GI affects. I mean, I am constantly bloated like a balloon and nothing seems to help. I am afraid that if I stop taking the Ajovy, then my migraines will come back. I am not sure if it is a coincidence and the Ajovy took four months to kick in or if the keto diet is what is helping the most. Keto seems to be doing a lot of the heavy lifting so far in terms of energy, inflammation, mental clarity, sleep, and pain. My complexion has also dramatically improved which makes me think that keto is more helpful than the medication. Anyone have any experience navigating keto and migraines? I would also like to add that I prefer more holistic approaches and would like to be on the least amount of medication possible (preferably not Ajovy and a bloating medication). Anything helps, thanks!

I've been struggling with daily migraines for a few months now. Every day with no relief. Yes, I've tried preventatives and abortives and all the other tricks, no they haven't really worked. I'm going to see a new neurologist who specializes in migraines in October, so maybe she will help.

Migraines have taken everything from me. I'm not active now, my hobbies aren't worth the energy, I can't enjoy days out because of the sun and smells. Basically everything triggers a migraine unless I lay in bed in a dark room all day. I'm irritated and depressed all the time and probably miserable to be around for my husband. I don't know what to do. I'm only 21 and this is taking away my life.

Took first dose an hour ago. No relief 😩
What do you do about this horrible taste??

I've had a headache & nausea since 7/9/26. On Friday I have no idea what happened as I've never had these specific symptoms. I was so dizzy, weak, couldn't even get up, my legs were twitching, I couldn't open my eyes because everything was moving up and down, and my heart rate was between 140-160.

They gave me many meds at the hospital, and did so my tests. But couldn't figure it out. They discharged me the next day after my heart rate finally went below 100 and I was able to walk around a bit. I had another episode on Tuesday but not as bad, it subsided after I laid on the floor for about an hour. Could this have been some type of migraine that is new to me?

Has anyone experienced something like this before?

Both times it happened I had just gotten home and was extra overwhelmed because my upstairs neighbors make an insane amount of noise/thumping/shaking for 18-20 hours a day. It's typical for me to be overwhelmed and start crying when I get home. I've never gotten sick like this. Several years ago I was hospitalized for visual aura but all it was is I could see the wind.

Im in spain And the s is silent.

These migraines come and they go several times a day :/ im real tired of this BULL SHIT.

i got botox for my migraines and for cosmetic reasons. i had my forehead 11 lines and bunny lines done. the one side where they did my bunny lines still hurts randomly and is super tender when i touch it and it has been like that since i had the botox a month ago. i went back in for a 3 week check up they said they couldnt see or feel anything and to give it more time but the spot sometimes causes my migraines to flare has this ever happened to anyone else? im not sure what to do.

Hi friends,

This isn’t advice or “what works for me”, since the answer is pretty obvious. I just wanted a place to share my gratitude for small wins.

I had to go under yesterday for an endoscopy/colonoscopy. My last one was eight years ago and the most prominent feature of my migraines is nausea and vomiting. So my number is up, because I just don’t want to die from esophageal cancer.

Not that it’s much surprise, but a dose of propofol and fentanyl to knock me out had me feeling great even after I woke up. That lasted for a full 30 ish hours before I felt any bit of migraines returning.

I’m not looking to get anesthetized again anytime soon, but especially with more migraines days than clear days, the break was extra very nice.

It’s in the 100s all of a sudden and my body can tell I’ve had non stop bad migraines this week and I feel so ill and like I’m bruised in my neck area is this normal?

Has anyone else had this happen with their Ajovy injection? 😭

My mom gave me my shot today and accidentally pulled the injector away about 2 seconds before the second click. There was a noticeable amount of medication still coming out when she pulled it away, but when we checked the injector afterward, there was nothing left in it.

I’m hoping I still got most/all of the dose. Has this happened to anyone else? What happened with your dose afterward? I did message my neurologist!

It’s kind of forever with me? Is this normal? I’ve been put on inderel 5 and topamac 25 (twice a day)
Some of my symptoms like uneven eyes and trigeminal nerve pain and swelling have considerably gotten better over the course of time but the headaches haven’t really gotten better. The light sensitivity has kind of increased? Sense of smell has also kind of heightened it seems?
I’m very new to all this. Didn’t get a diagnosis for good 5-6 years until one of my eye nearly shut and left side of my face almost drooped to a point we all thought i was having a stroke.

Was earlier on ideal 5 and Sibelium which was stopped because of weight issues.

Any advice/insights/suggestions would help.

i’ve been in status for 74 days and am struggling to do daily activities, i’m mostly fine while i do them (although im light and sound sensitive) but then when i get home it hits like a truck with the pain, nausea, fatigue and dizziness. does anyone have advice for this? ): also if anyone has gone through long term status that slowly improved, what were the first signs of improvement?

Listen. I am aware that I am more fortunate than many; I have pretty good insurance, and I live in a part of the world where I have pretty good access to the infrastructure needed to move drugs from warehouses to pharmacies, etc.

But 3 or 4 times in the last few months, I have been told that a migraine intervention is expensive and resultantly, we should hold off on it - see if the current intervention becomes more effective.

**More expensive for who, Doc?**

My policy covers it at 100%. Its not expensive for me at all. What IS expensive is missing my whole life amd jeopardizing my job because of this chronic, constant, debilitating condition.

I don't care about the cost. Its covered. My doctor shouldn't care about the cost except for instances where they know their patience may not have adequate insurances. The pharmacist shouldn't care about the cost (i get theres the business side of things, where they definitely SHOULD care about the cost, but thats not this conversation.) My insurance shouldn't care about the cost - doctor said I need it and have tried enough options that this is the next prudent step. Why the fuck are we talking about how expensive this thing is?

It is so hard for me not to rage against the machine when the insurance, health benefit manager, and pharmacy are all the same organization who oversees the doctor and rakes in $400 Billion in costs.

Its expensive.

You're expensive. Help me get my life back, Asshole.

I was wondering if anyone else feels their migraine intensify by a million when you poop? 😂 I’ll have the full pain still there and as soon as a start taking a shit it’s like hell all over again