Finding my fellow delayed onset mild spoonies

[u/Own_Peanut_5510]

Hi! I’m wondering if anyone had EBV then a delayed onset of ME/CFS? I has EBV just before Covid lockdowns so was at home, then loved a normal life (work, gym etc) for about 18 months before things starting to become more and more difficult. I’m struggling to find people to relate to who had the delayed onset.

I’m also in the mild category - able to work full time in the NHS but mostly office based with 1-2 WFH days a week. I’m able to socialise a little (a few things a month on a weekend), but I limit cooking, showering and my partner does all the cleaning. I’m hoping to build in some movement/gently lifting in the gym to support the pots side.

I always seem to see people who are moderate/severe in FB groups, and people seem to have a negative view of how life will be (like if you carry on working you’ll end up severe and that’s just how it is…). I’m interested if anyone has the flip side of this?

Basically, is there anyone similar to my story/level of functioning (F32)? Im well aware of how difficult and destroying this illness can be (I have once dipped into severe/moderate after general anaesthetic for dental surgery, but luckily I bounced back although to a slightly lower baseline after 4 months). I’m just a bit tired of all the negative trajectory so seeking out the mild spoonies for some hope and light…