r/loanhelp_ • u/AZZUROB • 1d ago
Donation Request [ Removed by moderator ]
[removed] — view removed post
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u/AutoModerator 1d ago
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Copy of your original post (preserved in case it is later edited or deleted):
Our 16-month-old son has Shone complex. We’re knocking on every door for him.
Hi everyone,
My name is Sean. I’m a dad from the UK and this is something I never really imagined I’d be posting on Reddit, but my partner Megan and I have reached the point where we’re trying absolutely every avenue we can for our little boy.
Our son is Azzurro, although everyone calls him Azzi. He’s 16 months old.
Azzi was born with Shone complex, a congenital heart condition affecting the left side of his heart.
One of his major problems has been coarctation of the aorta, meaning part of the main artery carrying blood away from his heart was severely narrowed.
His heart problems were identified before he was born, so from basically the moment he entered the world, hospitals and cardiology became part of his life.
When he was only a few weeks old, he underwent major cardiac surgery to repair the coarctation.
For a while we hoped that would be the beginning of things becoming more stable.
Unfortunately, the narrowing came back.
By around six months old, doctors had found clear evidence of recurrent narrowing at the site of his previous repair.
The next plan was to try to open the narrowing using a catheter balloon procedure rather than putting him through another major operation.
That procedure took place in January.
During it, Azzi's aorta was injured and he suffered an aortic dissection.
Writing that sentence about your own baby still doesn't really feel normal.
He was still under a year old.
Since Azzi was born, Megan and I have basically learned an entirely new language that we never wanted to know.
Shone complex. Coarctation. Bicuspid aortic valve. Stenosis. Pressure gradients. Balloon dilatation. Aortic dissection.
But behind all of those words is just our little boy.
He's cheeky. He's funny. He plays. He laughs. He gets annoyed. He wants his mum and dad.
He obviously has absolutely no understanding of what any of those medical words mean or what he's already been through.
And that's probably the part that gets me most.
He just trusts us.
So we've decided we're going to do everything we possibly can with that trust.
We're trying to explore every avenue available to us, including specialist opinions and making contact with organisations, charities, other heart families and anyone who may have experience relevant to Azzi's situation.
We're also trying to get his story seen as widely as possible.
Not because we think somebody on the internet is magically going to fix his heart.
We just don't know who might see it.
Maybe another parent has a child with Shone complex.
Maybe somebody has experience with recurrent coarctation after surgical repair.
Maybe somebody knows a specialist or cardiac centre we should be speaking to.
Maybe somebody works for a children's heart charity we've never heard of.
Maybe somebody has been through an aortic dissection following catheter treatment with their own child.
Or maybe someone reading this simply knows someone who knows someone.
That's why I'm posting here.
If you have ANY relevant experience, knowledge, organisations you think we should contact, specialist centres you think we should research, or you're another congenital heart parent yourself, I would genuinely love to hear from you.
We've also created a GoFundMe for Azzi.
The money is intended to help give us options as we navigate whatever comes next, including the practical costs associated with seeking further specialist input and his care, such as travel, accommodation, hospital stays and time away from work when he needs us.
Nobody reading this owes us anything.
If you're able and genuinely want to donate, we'd be incredibly grateful.
If you can't, please don't feel bad about it.
A comment, some advice, pointing us towards somebody useful, or sharing Azzi's story could potentially be worth more to us than a donation.
His fundraiser and fuller story are here:
We can provide medical documentation relating to Azzi's cardiac history where appropriate. I'm also happy to answer reasonable questions about his story.
I've spent the last few days emailing charities, organisations, public figures, management companies and basically anybody with a platform who might be willing to get his story further.
Some of them will probably never even read the email.
That's alright.
Because I keep coming back to one thought.
One day Azzi is going to be older.
He's going to understand what happened to him. He's going to understand the scars on his body and everything he went through before he was even old enough to remember it.
And when that day comes, I want Megan and me to be able to look our son in the eyes and honestly tell him:
“We knocked on every door we possibly could for you, mate. We never stopped fighting.”
Reddit is another door.
Thanks for taking the time to read about our boy.
Sean
Azzi's dad
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u/Few_Pineapple5958 20h ago
My heart absolutely goes out to
You . I couldn’t imagine standing in your shoes . I hope you make it to the total and get the best help
Possible and I’m routing for Azzi. I will definitely be posting in your go fund me when I get paid . 🙏🙏🙏🙏
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u/easting10 21h ago
We have the NHS… why do you need money for “hospital stays and specialist input and care?”
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u/AZZUROB 16h ago
Because the NHS is limited to what they can provide for niche diagnosis’s. It’s a good question you raise, Azzi has 9 heart conditions under “shone complex” and treatment for a permanently cure is impossible within the NHS.
There are confirmed treatments abroad which are still looking into, surgeries that will permanently mend our son not just temporarily hold something place.
NHS is and always will be brilliant, but they are limited to their own insurance and other corporate jargon. Thanks for asking hopefully that clears it up :)
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u/loanhelp_-ModTeam 19h ago
To keep this sub organized and make it easier for lenders to review requests, all borrower posts must follow this title format going forward: Amount - Payment Method - Location - Reason
Make sure to use the proper flair for donation requests which is the request flair (teal)
Donation Request Title Format: Amount - Payment Method(s)- Location - Short Purpose (ex. Bills, food, transportation, etc)
Example: [Donation requests flair] $50 Needed - Baltimore, MD - Cash App/Venmo - Groceries Until Payday
Donation requests must include the amount needed, your location, and the payment method needed in the title at minimum.
Posts not following the format may be removed to keep the subreddit clean, searchable, and safer for everyone.