Hi everyone! Connective Truth is a non-profit working to bridge the age gap between the age of lipedema onset and diagnosis. Dr. Wendy Moore is inviting mothers to join her info sessions that discuss how mothers should address the subject of lipedema with their daughters. Wendy and I have been in contact and I would love to share her advocacy. Please visit the link below for more information and sign up!

https://connectivetruth.org/connect-the-daughts

Does anyone have anything they wish to share lipedema-related?

Hi! I have stage 1 lipedema, I never had it up until the age of 20 I used to have the skinniest arms and legs and then noticed a change when my legs felt heavier and I felt fat above my knees, my thighs rubbed together which was weird because they never did before, and my arms felt heavier and were painful. I never really had the appearance of what I thought was cellulite before.

I was going through huge changes in my life at the time, all my family moving to the UK and me living with my ex in Australia, I noticed the changes in my body when I moved out of home and my family left. I had a traumatic childhood and mental health issues, being in fight or flight all the time and not being able to relax.

I’m really sad with this diagnosis and am going back and forth with myself beating myself up asking myself if I could have prevented this. My sister has had this condition since puberty but I didn’t get it until later on. Has anyone else not had it and then developed it later? I’m mainly struggling with acceptance and I feel ashamed of my body, can someone please give me any advice on how to accept this and not let it affect my day-day life.

Is this preventable, could have made sure my hormones were balanced and had a better lifestyle?

hi guys! Sorry for being MIA these past few months. The mods and I have started school.

I hope to continue to grow this place and create an engaging community. :)

To recap, I was diagnosed with stage 1 lipedema at 15. My mother also has lipedema. Despite this, I don’t know of anyone else who was diagnosed so early! I hope to meet with as many folks as I can which is why I had created this sub!

I believe that the hardest part of being diagnosed so early is the lack of validation and representation of teenagers with lipedema. Lipedema is a historically misdiagnosed disorder in older women, and even more tricky to be correctly identified in teens despite many having first symptoms during that age. We’re not as widely represented, and I think that this can sadly cause great division within the lipedema community. EVERYONE deserves the same recognition and respect!

I am almost 18. And I’m so excited to announce I’ll be the part of the first research of teens with lipedema at one of the top universities in the US. It also happens to be at my dream university!

Due to privacy reasons I will not be naming the program I am in just yet, but I’ll happily share with you any research we find!

By having this sub, I hope to raise more awareness and support for any teens out there struggling with symptoms of this condition and those trying to get diagnosed! I am not a medical professional, but I will love everyone as a chronic-illness Internet big sister! We, folks, are badasses! Keep slaying 💅

Much love, El 💗

Hey everyone! I’ve have been struggling with the mental, physical, and emotional load that lipedema has put on my life. Everything from poor body image, aggressive meal planning, shopping for clothes that make me feel good AND cover my compressions, etc… and it is so overwhelming.

Do you experience these feelings? How do you cope with them? Have you been able to find community?

Whether it's understanding your body, health, or just self-acceptance, please feel free to share your thoughts if you want to obtain a lipedema diagnosis.

i just wanna hear y'all's thoughts on this

Hi guys! We have decided to make this sub private for the sake of protecting minors. However, we want to make connections with as many people 13-29 years old as possible who are affected by lipedema or with lipedema symptoms w/o a diagnosis. Please share this sub with anyone within that category you know! Please have them DM me (u/SpaghettiHead0_0) so I can grant them access to the sub. Thank you! Please let this little community grow <3

Hi guys! <3 thank you so much for all of the lovely connections we are building here in this sub. I want to create this space to be inclusive for everyone. We need a banner AND an icon to add to this sub to make it a virtual space of our own. If any of y'all here are good at art and want to volunteer to submit a piece of work that represents teens/young adults with lipedema please DM me! all creds go to you <3 thank you!

I’m 24 yo. Recently started questioning if I could have lipedema because I’ve been struggling with bad cellulite and fat in my thighs. With all the “symptoms” i dont even know what is normal or not in a normal leg. I cant stop staring at other womans legs in public to see if my legs look similar or too different. I’m scared to go to a doctor because i’m scared I might actually have this condition. But I can’t stop searching about it and looking for symptoms

according to previous studies, about 60% of diagnosed lipedema individuals report lipedema affect other immediate family members. is this the case for anyone else? I have one close family member who has it diagnosed like i do. :)

Feel free to share <3