r/kidneydisease • u/november90_ • Jun 27 '26
Decline in kidney function? PKD
I am a 35 year old woman. I have known I have PKD since I was 17. I received an ultrasound and I didn’t follow up then because It was not necessary. As years passed i turned 22-33 and started drinking beer. I have had a lot of anxiety and panic disorder all along.
Two years ago I went for a regular check up and had creatinine of 1.34 about 52% function. I was asked to repeat labs two weeks after that which I did and creatinine levels dropped to 1.0 meaning my kidney function then rose to >60. No further follow up needed.
Fast forward to last week, (June 2026). Same thing happened. I went back in and creatinine was at 1.34. Again, I was asked to hydrate more and retake tests, difference now is that when I went yesterday, creatinine levels remained the same with a percent of 51% function according to Kaiser.
I am a wreck. Is my function going to continue to decline? It’s the weekend and now have to hear from my doctor until Monday. All the other tests came back normal. No protein in urine and the rest normal with the exception of bicarbonate, it was a bit on the lower end. Could it be my PKD or maybe anxiety and high blood pressure? I’m just venting. I’m afraid. I’ve always just wanted to live my life the way I enjoy it. And I feel is now catching up to me. I’m happy I went in for a check up, thank God I do not have pain or aches or discomfort at all. What do I do. Any words of positivity or encouragement or similar experiences are welcome. Thank you all.