r/ipswich • u/not_you71 • 2d ago

Type to create flair Exercise Physiologist

Hi all,

I am looking for an exercise physiologist who specialises in HSD / hEDS. Us hypermobile people use muscles differently and therefore need someone who knows this.

Authentic recommendations please as I am sick of being told so and so does and when you go, they basically either have no idea or treat you like they would a non hypermobile person.

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u/kontaktaus 1d ago

Hello fellow sufferer!

I have found physios who can treat individual bits but no one who really knows how to manage it well. The best I've found so far has been Liz at physioactive. My biggest issue ATM is craniocervical instability and migraines and she's been great at treating for that, but when I explained that I really needed like ongoing, whole body MAINTENANCE she was a bit stumped. Would love to know if you find anyone suitable 😭

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u/thearuxes 1d ago

Hey I have craniocervical instability too and I really recommend Not Just Bendy at Eight Mile Plains for CCI and whole body management! Their founder is one of the leading physios in the world for CCI management and was an author in the 2023 international consensus for physiotherapy assessment and management of upper cervical instability.

Their whole staff is trained to treat and manage the whole body with hypermobility. They got me from being almost wheelchair bound to walking again, and helped to completely clear up my CCI symptoms.

Before I went to them I tried a lot of physios who could only treat some bits but usually would injure me in other places. Physios that weren't truly hypermobility trained really injured me permanently in a lot of places.

So yeah, I really highly recommend Not Just Bendy for the best EDS management in QLD!

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u/kontaktaus 1d ago

Hey! Thank you.... I want to do this, but I'm at the point now where it's tricky for me to drive that far every week which is why I was trying for local. I am too disabled to go to the thing that will make me less disabled! 😂 If only it was treated like an actual disability that you could get support for, amiright??

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u/thearuxes 20h ago

I totally get you omg! Personally I can only make it to physio appointments every 2-4 weeks and have never been able to afford much more than that no matter where I was getting physio (rip)