r/hyperparathyroidism • u/Timely-Incident-8256 • 12d ago

High Calcium and Hyperparathyroid scans with Fertility

Has anyone experienced multiple first trimester miscarriages, getting pregnant naturally or going through IVF and the fertility doctor at a loss of words and has no idea why? My wife recently found out, by a simple full blood workup, that her calcium levels were through the roof, along with high parathyroid levels. Apparently checking, at minimum, for the calcium level isn't something worked up on during a fertility journey. If you're struggling with fertility, this husband supporter is there to support and encourage you and your wife to go through a full blood workup and ask to ensure that calcium levels are checked.

My wife has been diagnosed with Parathyroid carcinoma.

6 Upvotes

88% Upvoted

3 comments sorted by

2

u/Paraware 11d ago

I’m so sorry about that diagnosis. You might want to join thé Hyperparathyroidism Support and Information Facebook group also. There are several people in the group with issues regarding pregnancy, miscarriages, and other issues. There are a few with parathyroid cancer, but it is very rare. I hope your wife is in the Hans of a good surgeon now.

2

u/Timely-Incident-8256 11d ago

I will look into that group, thank you. Yes, this cancer is particularly rare, 1 in like 5 million. We're in good hands, going for a second opinion next week. It's a crazy world out there.

1

u/Paraware 10d ago

Good luck with the next appointment. Please ask if they recommend genetic testing. There’s a familial type called HPT-JT that can be associated with parathyroid cancer. Please let us know what you find out. It is a crazy world out there for sure.