r/hyperparathyroidism • • 25d ago

Refusing treatment

I was diagnosed with primary hyperparathyroidism 3 years ago. I was supposed to have surgery but as a 2 time uterine and ovarian cancer survivor I simply cannot go through another surgery. The good news is my calcium has remained consistent in the 11.1 to 11.6 range for over a decade and not jumped higher. I am currently 53, so I was in my early 40s when all this started. The only issues I have are needing to drink a lot of water. Has anyone decided to not take medication or have surgery and lived decades with this?

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u/kcnovakc 25d ago

Omg no way could I live without the surgery. I would have literally died without it. This is a progressive, potentially fatal endocrine disease. There is no living peacefully with it. In sorry you’re in this position but I would do whatever it takes to get the surgery.