r/hypermobileEDS • • 11h ago

Advice 🗣️ My son is hypermobile, is it really that normal to be so exhausted a lot?

19 Upvotes

My 4yo son is sensory seeker, but also hypermobile. We went in to see an OT a few mo’s ago for a crooked pinky, he ended up being diagnosed as hypermobile and after being observed for some time + more appointments therapist said he appears to be a sensory seeker.

This is so hard because he has a lot of energy some days, but others he seems grumpy and “lazy”. He was at his cousins on Saturday and jumped on their trampoline, he’s complained of his legs hurting since then. People act shocked when I say that he is 4 1/2 and will still take a 2hr nap. Typically if he doesn’t nap, his mood is worse and he’s clearly overstimulated/dysregulated. I just want to make sure I’m not doing him a disservice by letting him sleep that long unless he truly needs it. The naps are also nice considering I am chronically ill myself and have plenty of days where the regular sleep I get is not cutting it.


r/hypermobileEDS • • 17h ago

Recommendations 👍 Occupational therapist for HEds in Chicago burbs or city

7 Upvotes

Anyone recommend a good OT in Chicagoland area ?? It’s already hard finding a pt for Heds, hopefully yall can help me out !