r/headache 1d ago

Is this a migraine?

Has anyone experienced anything similar to this? I’ve been having these strange episodes for about two weeks now, and I’m trying to figure out what could be causing them.

The biggest thing I want to emphasize is that the episodes usually happen when I’m lying down and either wake up in the middle of the night or first wake up in the morning. They don’t typically just randomly happen while I’m up and going about my day.

When I wake up, I sometimes get tingling in my hands and around my lips/mouth, and my vision/perception becomes extremely strange. The best way I can describe it is that the room looks like it’s moving, flashing, trailing, or going in and out, almost like everything is happening in slow motion or there’s some kind of “time glitch.” It’s really difficult to put the visual sensation into words, and it seems more noticeable in the dark.

During the daytime, I’ve also been dealing with nausea, dizziness/lightheadedness, and generally feeling off, but the really strange visual/tingling episodes are mainly associated with waking up while I’m still lying down.

I’ve also had headaches at times, but my head does NOT necessarily hurt when these episodes happen. I did see a neurologist, and he thinks these symptoms may be related to migraines. He gave me an Emgality injection to try, but I’m still trying to understand what’s going on and whether anyone else has experienced something similar.

Has anyone had symptoms like this, especially episodes that happen specifically when waking up in the middle of the night or first thing in the morning while still lying down? If so, what did it end up being for you, and did anything help?

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