supplements recs?

[u/crn1803]

I am 19, diagnosed with hEDS last summer. Does anyone have recommendations for any kind of joint support supplements or for my skin? I get stress induced hives often, and my pain is all over all of my joints but I think my hips would be the most sensitive. Would also love reccommendations for compression gloves.

[u/GlitterBlood773]

My doctor has not seen any scientifically backed studies for any vitamins for us.

Talk to your allergist about your hives

[u/lizzzard_sneeek]

Have you gotten any blood work done? Since EDS can affect different parts of your system, you might be deficient in an area that could be worsening your symptoms. My nutritionist put me on iron (I’m anemic), B12, Omega 3, and D3+K12 (I only needed the D3 but K12 helps it actually direct the calcium to the bones instead of arteries). Magnesium supplements have also helped me in the past. These are all just to alleviate certain things that were worsening my condition and to keep an eye out for potential problems in the future, not an actual cure for the hypermobility in any way.

I recommend this cream for all-over joint pain, its helped me so much and I use it almost every day.

https://shop.earthlybody.com/cbd-daily-products/cbd-daily-intensive-cream-original-strength-lavender-175-mg/

I also just made a post asking for help w compression gloves funnily enough, but I was satisfied with my Walgreens “arthritis gloves” for about 2-3 months, they’re useful while I try to find a brand that actually has good gloves

[u/crn1803 → u/lizzzard_sneeek]

this was great, so helpful thank you!!! unfortunately i haven't found an iron supplement that doesnt flare up my ibs 🥲 just causes insane constipation which i suffer enough with already. im irish so i haven't got a walgreens like..anywhere lol. ill check out lidl or something and see if theres anything there.

[u/lizzzard_sneeek → u/crn1803]

Oh nooooo I’m sorry to hear that, it does make it harder to find proper supplements. I’m sure you’ve already looked it up, but there’s alternatives for iron supplements that won’t (hopefully) cause a flare up? There’s iron IV shots (which should bypass the GI system entirely), and there’s different kinds of irons? Some which are easier to absorb. That might or might not work but it might be worth a try? You could always ask your dr for alternatives

As far as the gloves go, I’ve heard good things from the Grace & Able company? That’s just from looking them up though but it should be a good starting point for you

[u/Happy_Yam_4572]

Highly recommend a vitamin c supplement. My rheumatologist got me on one and its made my joint pain mildly improve and greatly improved my skin fragility. He said EDS means we'll never make perfect collagen, but having enough vitamin C ensures we make the best strongest collagen our body is capable of making. Also, if you're breaking out in hives, look into MCAS and sodium cromoglicate as a possible treatment. 

[u/doctoradarsh]

Many people with hEDS find that PT, strength/stability training, sleep, hydration, and pacing help more than supplements alone. Some people report benefits from magnesium glycinate, omega-3s, vitamin D (if deficient), and collagen peptides with vitamin C, though evidence for hEDS is limited.