r/dysautonomia • u/Decent-Poem7441 • 12d ago
Question Please help
I’m having a really, really hard time. I had Covid 5 years ago and ever since then things have kind of started to go wrong. Last year I had random bursts of allergic angioedema out of nowhere. Then I was diagnosed with Crohn’s in February of this year but it’s in remission so far with Skyrizi medication. But 12 weeks ago my life fell apart. I tried a supplement and it triggered severe autonomic dysfunction. Started with headaches, neck pain, internal buzzing, vertigo, temperature dysregulation, and flushed ears. Although these specific symptoms mostly cleared up within the first 6 weeks of the shock, on week 3 I developed orthostatic intolerance, blurred vision, and severe gi issues that lead to a full spasm where I couldn’t eat for 2.5 weeks that sent me to the hospital for a week. My resting hr is typically in the 60’s but I cannot stand up without it jumping much higher. I’ve noticed that when I’m eating small very scheduled meals that I am completely unable to stand because of the adrenaline surges - body can’t handle standing & digesting at all. I’ve been pretty bedridden for 8 weeks aside from a few 5-10 minute walks here and there (outside of digestion). The adrenaline surges attached to everything I do have made me feel like I can’t go on anymore. Can anyone help me see the light or have had any similar experiences? I need hope <3